Psoriasis [PLEASE READ FIRST POST!]

Chris Morgan67 said:Go girl power! 😍

🙂 🎉 🙂 🎉 🙂

My apologies in advance if someone has already brought this up, but... I don't personally suffer from psoriasis, though my neighbor did, and absolutely nothing seemed to work for her. Not the doctors, not standard medicine, nothing at all. However, there is a herbalist located over in downtown Chicago who actually helped her! If I recall correctly, the address is 71 Main Street—it’s right next to the old tavern on the left side if you're heading out from the city center. Her condition was quite severe, and she spent nearly ten years trying to find relief before she was almost ready to give up entirely. Ultimately, I ended up visiting that same herbalist myself for several other issues, and everything was resolved.🙂He is truly excellent; his family has been practicing this for over seventy years, so they certainly have the experience. Best regards.

Chris Morgan67 said:Anyone tried Neutrogena T-Gel? What's the verdict?🙂

I even tried that shampoo, but honestly, it just made things worse for me. Nothing really worked. My scalp psoriasis has finally cleared up quite a bit—it's mostly just lingering near the hairline now—but I'm pretty sure that’s thanks to sticking with some mild shampoos. Give it a shot though, you never know.

Hey everyone, I have a quick question for the group. I’ve been dealing with psoriasis on my scalp and body for a while now, but recently I’ve started getting these dark patches on my neck that are just incredibly itchy. Has anyone else gone through something similar? I’ve already put in an appointment with a dermatologist, but since the healthcare system here can be such a slow-moving bureaucracy, I feel like I’m going to scratch myself raw before I even get seen. About a year ago, I picked up some Psorex ointment and some Life Honey, but I honestly can't bring myself to take the honey. Does anyone have any good tricks for masking the taste? Just thinking about it makes my stomach turn...🙂
Best regards..

Brenda Barrett52 said:I want to apologize in advance if someone else has already posted about this, but... look, I don't personally suffer from psoriasis, but my neighbor did, and absolutely nothing could help her... not doctors, not modern medicine, nothing at all. Instead, there’s this one herbalist living right in town who actually helped her! Hmm... I think his address is 71 Main Street! It's right next to that old corner deli on the left if you're coming from downtown. Her condition was quite severe, and she spent nearly ten years trying to fix it before she was almost ready to give up entirely! Then I went to see that same herbalist—who has helped me out with several other things—and everything was resolved.🙂 He really is wonderful! His family has been practicing this for over 70 years, so... they definitely have the experience! Best regards.

When you post stuff like that, you have to realize that most of us are going to be incredibly intrigued, yet you haven't actually provided any useful information!!!
Well, why don't you just give us the herbalist's name, some kind of contact info, and a specific explanation of how he helped your friend? And more importantly, how is she doing today????????????????????????????????????????

Goodness, why all the anger! I simply wrote down the address because I couldn't recall the doctor's surname... so I just looked up the address online and found this: "NATURAL BOTANICALS" LLC, the Steel herbal pharmacy (run by Dr. Steel), located at 742 Evergreen Terrace, phone: 555-012-4674, cell: 555-279-2111...
I hope this provides enough information for everyone!
As for that girl, she actually moved away recently so we aren't in touch anymore, but while she lived here, everything went smoothly. It took a little longer than expected (by "longer," I mean more than a week)🙂for the treatment—I'm not entirely sure of the duration—but the important thing is that she managed to resolve the issue, wouldn't you agree🙂? Anyway... if anyone else has questions, please just ask (and feel free to mention that I recommended him; perhaps we might all get a discount! Haha, all you have to do is say I was there with my mother recently regarding her strep throat)🙂Best regards,

Just wanted to drop an update on how the phototherapy is going.
It lasted about five weeks, and after two weeks of UVB, those flare-ups started dying down bit by bit—getting better every single day. Now that I'm almost done, everything has cleared up. No flakes, no itching, nothing... just some visible changes in my skin texture. It’s starting to pop up again in some spots though, mostly on my torso and arms for now. Honestly, I’ve been a little stressed lately, so maybe that’s why it's acting up again.
I'll let you guys know what happens next, since I've got my tonsil surgery coming up soon.

Someone mentioned the T-gel shampoo earlier, so I figured I’d chime in—it really worked for me. Like, visibly worked. My skin has almost stopped peeling entirely. Also, pro tip: keeping your hair short makes a massive difference. I’ve been using this stuff for quite a while now, and since my hair is short, one bottle lasts for months. Seriously, just cut it short. For women especially, it's a game changer because you can't exactly rock long, flowing hair when you're dealing with this. 🙂
On another note, I started applying some Psorex from Bihać again, and the progress is already huge. The center of the patches has almost vanished; there's just a bit of redness left around the edges. I might snap a photo next time to show how it looks. I'm also back on that herbal tea blend. Honestly, I don't have any flakes on my hands, back, or stomach anymore—just feeling pampered over here. There's still a little bit on my legs, but it's just a thin layer that shows up after a shower once the skin dries out.
I honestly think Michael Ramos3 should be banned; he's more exhausting than anyone else here. Poly, just ban him already—why the hesitation? Anyway, cheers everyone. I'm staying hopeful that by summer, my hands will finally be clear.

Did that petition actually go through?!🙂🙂
Praise God.......

Haha, I’m watching too... 😍

Does anyone here plan on seeing Dr. Miller for a Salad? I’m genuinely fascinated by how she keeps herself together... even if she has been around since the dawn of time... 😍 I had thought about just retiring since I haven't been up there in two years, especially now that she's back. Instead, she sent me off for all these tests—bloodwork, urinalysis, HLA typing... we'll see...

Jack to everyone...

Chris Morgan67 said:Haha, honestly, me too—I'm still watching 😍

But anyway, is anyone else here seeing Dr. Smith for their 😍 I actually thought she’d have retired by now, since I haven't been back up north in two years, yet there she is. She just sent me off for a bunch of tests—bloodwork, urine, HLA typing... we'll see how it goes

Hey everyone

😂,I'm seeing her too. And honestly, it's kind of weighing on me because I really should have checked in for a follow-up months ago—since I've been feeling so great—so now I'm just waiting for the right moment to go in and hear her lecture me😁
She looks wonderful, though maybe a little slower than before😉

By the way, I'm doing really well—my psoriasis coverage has dropped to about 10%, and it's just redness at this point; no more scaling🙏

Best, 😍

Robin Robinson8 said:😂, I am in the exact same boat. It’s actually weighing on me because I really should be checking in for a follow-up, but since I haven't needed one in three months and things have been going so well, I'm just waiting for the right moment to jump back into the conversation 😁
I'm doing great, though I feel a little slower than usual 😉

By the way, my skin is genuinely doing fantastic; the psoriasis coverage has dropped to about 10%, and it's just some redness now—not a single scale left 🙏

Best, 😍

Jack!
I am truly happy to hear that you are doing so well.
Looking back at your previous posts, I see you were using Sandimmune Neoral. Could you tell me how long it took for you to see real improvement, and whether you dealt with any side effects?
Also, if you don't mind me asking, did your dermatologist recommend that specific medication to you, or did you specifically request it?
It is an absolute disaster, frankly; during my last appointment—which was right when my condition flared up and I had patches covering my entire legs, buttocks, and elbows—my "wonderful" dermatologist prescribed Zora gel, even though his own medical records clearly state it is intended only for minor cases involving less than 10% body coverage.
And that is all there is to say about the "care" provided by certain doctors.

Chris Morgan67 said:Haha, honestly, I’m also keeping an eye on 😍

But anyway—is anyone else here seeing Dr. Smith for their 😍 I actually thought she might have retired since I haven't been up north in two years, yet there she is! She just sent me off for a whole battery of tests—bloodwork, urine, HLA typing... we'll see how it goes, I guess.

Hey everyone!

I mostly see her too.😉
She actually recommended a great cream back when I had my C-section—well, applying it over psoriasis lesions, obviously... though it didn't exactly help the wound heal any faster.😢

Aside from that, she’s never actually sent me for any diagnostic testing, which strikes me as a bit odd considering I've dealt with psoriasis for 14 years and it covers about 80% of my body.😢

By the way, I'm seriously starting to think about moving over to Vineyard street.

steelseal13 said:I tend to see her mostly too. 😉
She actually recommended a decent cream when I was recovering from a C-section—applied over my psoriasis patches, naturally... the incision just wouldn't heal properly for a while...😢

Oddly enough, she’s never sent me for any diagnostic testing, which seems strange given I've dealt with psoriasis for 14 years covering about 80% of my body.😢

By the way, I'm seriously considering moving closer to the Vineyard area.

So, how's the vibe over by the Vineyard?

Man, my doctors are such "come in whenever" types. They just keep prescribing Beloderm.🤷
I think if I hadn't followed Dr. Smith's advice, I'd be halfway to heaven by now.🤣Okay, maybe exaggerating, but...

It actually surprised me that she finally sent me for some tests.😲 I only go back because her office lighting is perfect for me.🙏

@Robin Robinson8/">@@Robin Robinson8, I'm glad you're feeling better.🙏

Chris Morgan67 said:So, what's the current vibe over at the Vineyard clinic?

I’ve actually never stepped foot in the Vineyard facility myself—but I have a friend who went up there for an exam regarding some "minor" nail issues, and the doctor immediately sent her off for every test imaginable! It turned out she was diagnosed with psoriasis, and now she's starting a new treatment plan (and no, it isn't just those light therapies... )

As for me—even after all these years dealing with this condition—nobody at the Salad clinic ever bothered to send me for testing, nor did they ever suggest anything like Petroleum treatments... the most they ever tried to do was insist on hospitalizing me on several occasions... and honestly, they tried that while I was on maternity leave... can you even imagine how much that suited my timing?!

Chris Morgan67 said:Man, those doctors are just "come here, go there"—all they ever prescribe is Beloderm. 🤷
I honestly think if I had followed certain old-school medical advice, I'd be meeting my Maker by now. 🤣 Okay, maybe I'm exaggerating a bit, but still...

I suspect things would be even worse for me personally 🙂
And the absolute worst part? Every single time I head up there, I end up seeing a different doctor... and then I have to explain my entire history from scratch all over again... I mean, what is the point of having medical records at all?! 🤷

Chris Morgan67 said:It actually surprised me that she even sent me for tests; 😲 I only see her because that specific light therapy works wonders for me. 🙏

Well, those light treatments work for me too... (and that specific setting on the lamps is fantastic! 😍 )... but their office hours are absolutely maddening... I simply can't just walk away from my job for a session, especially when I'm commuting from the other side of town. I really don't get why they don't offer afternoon appointments for those of us who are still working full-time. 🤷

I went to the Salad clinic, though I didn't see Dr. Smith. I've visited her a few times when my regular doctor was out, and they ran some tests on me, but I can't remember what for. Everything came back fine, so I just moved on.
Hannah, nobody at the Salad clinic is going to recommend Petroleum; that's basically a rival hospital.
My condition has definitely taken a turn for the worse with spring hitting. The skin is peeling and the itching is driving me absolutely insane. It’s like everything just suddenly bloomed, if you can even use that word for this disease. I seriously can't wait to get over to Petroleum.

Jack.
My experiences with Vineyard are detailed over on page 83—it might be worth a look.
I’d say they treat patients incredibly well; they really go the extra mile to actually help you. They sent me for a ton of tests—lungs, ears, nose, throat, heart, even a urologist visit—plus they did a full workup on my bloodwork. Even after two months of dealing with psoriasis, things are still totally calm. My skin is completely clear now, no redness at all.🙂 🙂

Finally, Michael Ramos3 is gone.🙏 🙏🙏

goldenstag213 said:Jack!
I'm really glad to hear you're doing better.
Looking back at your old posts, I see you were on Sandimmune—could you tell me how long it took for things to actually improve, and if you dealt with any side effects?
Also, I was wondering... did your dermatologist recommend that specific one, or did you have to specifically ask for it?
It’s honestly such a disaster—my "brilliant" dermatologist prescribed Zora gel during my last checkup, right when my skin was flaring up everywhere—covering my entire legs, buttocks, and elbows—even though his own medical notes clearly state it should only be used for small areas, like under 10% of the body.
So, yeah... that's about all I can say regarding the "care" some doctors provide.

When I first started, I had some headaches, but I guess that's pretty normal until you settle on the right dosage. I'm currently on a minimum dose of 2.5 mg—doses usually scale with weight, maybe 3-5 mg per kg—but since I'm below that, I feel great.
If you've read my previous posts, you probably saw everything else I tried; this was really my last resort before moving to biologics. My doctor suggested this option, and while I was a bit skeptical, I figured I'd give it a shot since it was the only path left that I hadn't explored yet. You really have to keep a close eye on your blood pressure and kidney function with Sandimmune (I think I wrote quite a bit about that medication before). I've been using it for nine months now; things went amazingly for the first two months, then suddenly took a turn for the worse—not sure why, maybe it was the dose reduction or perhaps an infection I had at the time—but after that, it improved again, and since then, it's just been getting better. Right now, it's just Sandimmune and Vaseline for me.
Honestly, I'd stop using that Zora stuff; I used it once on a single patch, and it didn't help at all for months, so I just quit.
If you're dealing with a large area, maybe ask your doctor about Neotigason? Those are the pills they usually suggest after creams fail to work. It's all very individual, though—it didn't work for me and I had quite a few side effects, but I know plenty of people who don't deal with psoriasis anymore because of it.
Best, 😍

Robin Robinson8 said::
By the way, I'm feeling absolutely fantastic. My psoriasis coverage is down to about 10% now. It's just some redness left; the scaling is totally gone 🙏

Best, 😍

Hey Robin Robinson8, I am so incredibly happy to hear you're doing better!!!!!! That is seriously awesome!!!👍

Hey everyone, I wanted to ask you something!! Those lamps people keep mentioning—are those specifically for phototherapy or...?!
Back when I was living in Switzerland, my doctor recommended phototherapy. When I asked my current doctor here in the States about it, he basically went, "Oh, we don't really do that kind of thing around here, haaaaaaaa." 😂What a jerk!

Hi all!

Kate Williams41 said:Hey everyone, I wanted to ask you something. Those lamps people are talking about—are they actually for phototherapy, or...?
My doctor back when I was living in Switzerland recommended phototherapy, but when I asked my current doctor here, he basically just went, "Oh, we don't really have that kind of thing available around here..." 😂 What an idiot.

Best to all!

Yeah, you can get phototherapy at the Vineyard. I'm not sure if it's available elsewhere... though it probably is. 😁