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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 92 views · 2.3K replies

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Participants mistybear4rustymoose54nimbledriver81Kenneth Hernandez67Hannah Davis18Nicole JamesJeremy Flores10Matthew Scott2Casey Palmer5dustybison15Amy Fox97Anthony Rodriguez58Frank Alvarez8northernfalcon30Jerry Moore2electrictinker18wanderingowl7mistyhound2Tyler Sanchez3amberjackal14swiftsailor82casualnomad42Henry Newman9Zachary Ortiz …
goldenstag213 goldenstag213 Member
32 messages
joined Jan 2007
#681 ·
feralorca71 said:Has anyone actually come forward with results from that ointment used by "Michael Ramos3"? Has anyone even bothered to go out and buy it yet?

Michael Ramos3, please, give us an update! What’s the status? You talked about this cream so much that I honestly expected some kind of medical revolution, but instead, there’s just total silence from everyone on this board.
I'm honestly at a loss for words!!
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#682 ·
goldenstag213 said:Michael Ramos3, come on, give us an update! You talked about this cream so much I thought we were going to see some kind of freaking revolution, but now? Total radio silence from everyone on this board.
I honestly don't even know what to tell you!!

Everyone’s just sitting here waiting for news...

If any of you guys are actually testing this stuff, please, speak up...

As for me, I’ve got nothing left to show for it—nothing at all. I’ve tried everything under the sun, from steroids to Rangelov’s stuff, various topical treatments, and strict diets (honestly, I’m so skinny now it’s scary), and even some American specialist (Dr. Schultz), and I’m just lost, man. I don't even know how to fight this anymore, damn it... I've been dealing with psoriasis since I was 19, and now I'm 33... It cleared up twice before—once thanks to that absolute killer methotrexate and once from Rangelov’s therapy—but now, I can't find a single way to make it stay away... It went from being this mild, barely noticeable thing to a total nightmare over the years... it just keeps erupting... I can't even manage to slow it down, let alone get rid of it...

Since January, I’ve been messing around with this herbalist's regimen from overseas... someone who apparently helped a lot of people... (teas to flush out the urinary tract, kidneys, liver, plus some St. John's Wort ointment) and at first, the results were insane—it cleared up about 70% in two months—but then, it came back harder than ever before.😠 😕 😠
Even though this herbalist charged me a little bit for the first round, he stopped asking for money after that; he seems like the only guy who isn't trying to bleed us dry! I know people he’s actually helped, but for me, it just didn't work... everything came flooding back... it's awful...

And my diet? Man, I’ve been sticking to such a punishing regime for years now that I basically look like a starving kid from a famine zone...
But this stupid disease just hits back... it simply refuses to leave... it feels like it’s trying to break me, to conquer me...

If only there was something that, even if it couldn't fully cure us, could at least keep it permanently under control...

I heard somewhere about some German therapies involving snake venom injections.😕

Has anyone ever actually tried that?

I was also reading on an American website dedicated to fighting psoriasis about some new miracle treatment they're testing on 30 volunteers that's supposedly yielding incredible results, but the side effects are still a total mystery because it's only in the trial phase...

Come on, people, talk to me! Tell me about your trials, your progress, anything...

Let's try to beat this monster!

Lord, please help us! 🙏
nimbledriver81 nimbledriver81 Active Member
96 messages
joined Aug 2007
#683 ·
Gregory Mendoza3, look—psoriasis is a chronic condition. It’s just one of those things you have to come to terms with.
What you *can* actually control is your diet, keeping those stress levels from hitting the roof, and maybe experimenting with some "internal" support. I think I mentioned "natural" approaches earlier in this thread—it's all about that holistic vibe.
Now, I really don't want to sound like I'm running an ad campaign here—since we aren't supposed to do that—but I did hear during a seminar once that borage oil and burdock root tea can be quite helpful.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#684 ·
Hey there, it's Elizabeth Lee49 checking in... I've been dealing with psoriasis since I was about 16, and now I'm 35. It's been this constant battle for all these years. I don't have a ton of it, but honestly, being a young woman, it really gets to me... I've just spent years trying my best to keep everything under control and looking normal.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#685 ·
I’ve tried just about everything under the sun... and now I’ve switched to using those medicated patches from China. You just stick them right on the affected spots and leave them there for about 48 hours before peeling them off. They work really well for the milder cases... you can find them in all our local pharmacies here.
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#686 ·
The absolute worst part about this whole mess is that I just can't wrap my head around why everything I've thrown at this—all the different therapies, trying that macrobiotic diet based on blood type, even completely overhauling my entire lifestyle—isn't doing squat, and honestly, things are actually getting worse by the day... I'm totally lost here, man.😠
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#687 ·
As if things weren't bad enough already, my bloodwork came back looking absolutely perfect—ALT, AST, sedimentation, everything is totally fine, even my triglycerides are great, except for my MCHC which is hovering right at the upper limit and my LDL cholesterol which is slightly elevated...

I’m honestly just baffled, and if I were actually allowed to lose it, I would be absolutely livid, but since I'm stuck playing nice, I can only laugh through the nausea (once I finally get home from scrubbing these floors).
😁
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#688 ·
Gregory Mendoza3 said:The most frustrating part is that I just can't wrap my head around why everything I've tried—from various therapies to macrobiotic dieting based on blood type and lifestyle changes—isn't yielding any results. Instead, things seem to be getting worse by the day... nothing makes sense...😠

Hey... I'm truly sorry to see this condition hitting you so hard. It might sound a bit cliché, but you really have to find a way to stay calm through it all. How should I put this? You need to learn to accept the situation internally and just make peace with it...

I found myself in a similar situation once, with most of my body covered... Now, you'll likely need to look into phototherapy and specific creams to calm the skin down before you can move forward peacefully...

Don't bother complaining to us; we're all stuck in the same mess...😁
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#689 ·
Gregory Mendoza3 said:The worst part is I can't for the life of me figure out why everything I've tried—the therapies, that blood type macrobiotic diet, the lifestyle changes—isn't working. Instead of getting better, things just seem to be going downhill every single day. I'm totally lost.😠

About 15 years ago, researchers here in the States did a deep dive into diet and how it impacts psoriasis. Their big takeaway? Diet doesn't really move the needle on the condition itself—it’s just good for your overall health, I guess.
darkbison18 darkbison18 Member
12 messages
joined Apr 2007
#690 ·
Still hanging out here in Germany! I actually tracked down that HALICAR SALBE someone mentioned... I've only been using it for two days, but I'll let you guys know how it goes... Anyway, it's plant-based, so you can use it for a while without worrying too much.
I used PSORAL for itching, and it definitely helps, though personally, my itching hasn't been that bad.
And about all this talk of "advertising"... Look, we have to use actual names—like specific meds, spas, doctors, whatever—if we want to actually know what we're talking about!!!
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#691 ·
darkbison18 said:As for me, I’m still hanging out over here in Germany! I actually tracked down that HALICAR SALBE N cream someone mentioned, and I’ve been using it for just two days now—I'll let you guys know how it goes... Anyway, it’s plant-based, so you can use it for a while without worrying too much.
I use psoral for itching and it works, though personally, my itching isn't even that bad.
And all this talk about advertising! Look, we have to name names—mention specific drugs, spas, doctors, whatever—if we want to actually know what we're talking about!!!

Since you mentioned you're living in Germany... hey, try to dig around and see if there's any truth to those stories about snake venom injections they supposedly use over there to treat psoriasis. I mean, I saw stuff about it in Stern and on RTL claiming the price is somewhere between 105 and 150 euros per shot (and you need like 10 to 15 of them for the treatment), and apparently, the first patients who got them five years ago haven't had a single issue with their psoriasis since...

I'm honestly crunching the numbers, and even if it just provides temporary relief without wrecking my system, spending 2,000 bucks to be clear for the next five years seems totally worth it, even if it pops up again later...

Either way, I really want to know if this is just some urban legend, another total scam, or if it's actually a real thing that exists...
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#692 ·
darkbison18 said:You guys keep bringing up advertising! Look, if we want to actually talk about anything useful, we have to name names—whether it's specific meds, spas, pharmacies, or whatever—so we actually know what the hell we're discussing!!!

Oh, sure... because clearly, if we stumble upon something that actually works, it’s just common courtesy to shout it from the rooftops for everyone else to hear...

I mean, how would that even sound? "Hey folks, I found this incredible miracle cure that's kept me clean for three whole years, but sorry, my lips are sealed, I can't tell you a single thing about it..."

But then again, if we start doing that, we're basically just rolling out the red carpet for those shady advertisers looking to make a quick buck off our backs.
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#693 ·
Gregory Mendoza3 said:It could honestly get even worse. My blood work is basically perfect—ALT, AST, sedimentation... triglycerides are fine too. Everything looks great except for my MCHC being right at the upper limit and my LDL cholesterol being slightly elevated...

I’m honestly baffled. If I were allowed to be pissed off, I would be, but since I can't, I just laugh because I'm so exhausted (once I finally stop scratching).
😁

My blood work is flawless too. My dermatologist told me straight up that blood work is one thing and psoriasis is another. There's really no rulebook for this; there's just zero logic to it...
Joshua Bennett4 Joshua Bennett4 Active Member
53 messages
joined Sep 2008
#694 ·
Apparently, sipping on dandelion tea isn't a bad idea at all! It’s supposed to be great for your liver, and since liver metabolism plays such a huge role in everything happening with your skin... ☕
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#695 ·
Linda Chase81 said:So, I heard through the grapevine that sipping on some dandelion tea isn't actually a bad idea, because apparently, it does wonders for your liver, and let’s be real—your liver metabolism is basically the engine driving everything happening with your skin. ☕

Look, I already know that keeping my liver metabolism in check is huge, so I’ve been slamming all kinds of different teas down my throat, and honestly, I'm still going at it full tilt... you can't forget about the kidneys either, they're just as vital to the whole process.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#696 ·
Psoriasis... we have to beat it. We can't let it ruin us; we have to be the ones to take it down. If it wants to live with us, fine, then we'll just learn how to live with it. That’s exactly what I told myself back when I was 23 and dealing with a massive flare-up... I barely made it through then. It's still hanging around today, though it doesn't act up quite like it used to. It mostly just bothers me on my elbows now, but honestly, those patches from China I mentioned before? They really help keep things under control. 👍
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#697 ·
Just like all of you... I've tried everything under the sun. From heavy-duty prescription creams to those old-school home remedies my grandmother used to swear by. Honestly, I've come to realize that what actually works usually depends on whatever the person feels is helping them most... For me, I stick to using black soap (Doctors) when I bathe, and then I follow up with some baby cream. I also make sure to take Vitamin A regularly, and lately, I've been applying these patches. Every once in a while, I’ll use some butavat too—that stuff was actually really effective when I first started using it. Maybe this might help someone out...
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#698 ·
I haven't even mentioned this yet, but there isn't a single person in my family who deals with psoriasis... yet here I am, stuck with it. So much for having a set of rules to follow...
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#699 ·
The most important thing is keeping your head on straight. Don't let yourself get discouraged... it isn't going anywhere. If you spend all your time obsessing over it, it just drags you down even further. You have to look forward. We can live with this... we have to.
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#700 ·
Elizabeth Lee49 said:Honestly, I’ve tried everything under the sun—everything from heavy-duty prescription stuff to those old-school home remedies my grandma used to swear by—but I’ve realized that what actually works usually depends on what you personally feel is helping you. For me, I use Doctors black soap, and after I shower, I slather on some Johnson's baby cream, take Vitamin A religiously, and now I just stick these patches on, plus I occasionally use some butavat, which is honestly killer when you first start using it. Give it a shot, maybe it'll work for someone else too.

-So, what kind of soap are we talking about here? I haven't heard of "Doctors" before... I usually go for something based on olive leaf oil extracts, but when I can't find that (US product), I just grab Nivea baby wash for sensitive skin.

-Regarding the Vitamin A thing, I just load up on beta-carotene through natural sources, like eating carrots and roasted pumpkin, and I also take brewer's yeast on the side.

-What's the deal with these Chinese patches... what's the actual active ingredient in them? And is there a different version, like an ointment or something similar, that you could use for larger areas of skin?

-As for that Greek butavat, I actually preferred the ointment over the cream; at first, I had this amazing effect, but it was super short-lived, and then just like everything else, it stopped working and ended up making my psoriasis flare right back up.

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