Psoriasis [PLEASE READ FIRST POST!]

Or maybe they’re just terrified that if we talk about it too much, she’ll come crawling back in that hellish form... and then none of us will be able to stop her. My husband is the same way; he hates dwelling on it. He just gives me that look like, "Honey, please, you're fine, you're healthy, you're overthinking this." And honestly... maybe I am overthinking it. Maybe she doesn't need the spotlight. Maybe it's better to just live a normal life and deal with her on the fly...

Maria Doyle27 said:I'm currently chugging this herbal tea meant to help regulate my liver and kidneys. It tastes absolutely revolting, but honestly, if it actually works, I'll drink it until the day I die... 🙏

First off, I just love your posts! You have such an amazing, positive outlook, and that's what really matters most 🙏 😍 👍

But seriously, tell me—what's the name of that tea and where can I find it? 😬

Maria Doyle27 said:The main thing is accepting that this condition is simply a part of your life—you just have to manage it the best way you know how. I know plenty of people who have spiraled into such deep depression that they're basically stuck in a loop, mostly because depression and stress are the biggest, most common triggers for Psoriasis. It sucks, but it is what it is; you can't change your skin, but you can help yourself prevent it from flaring up in its worst form.

I usually tell everyone I have it—which shocks my parents, who always chime in with stuff like, "Well, not everyone needs to know." Honestly, I don't care; it's not like I have the plague. Besides, it’s easier for me when I can talk about it openly. It's just a medical condition like any other—though, if I'm being honest, the cost is infuriating. Everything else—well, you just deal with it. 😉

Yes, I agree that mindset is everything. Since I was a kid, I've never had an issue telling people what's going on with me—why? It's become a mechanical response at this point, and it doesn't bother me when people ask. But regardless, I can't help but wonder if I should stop hoping for a total cure. If I give up that inner desire and just accept that I'll be in the ring with this until the end—if I learn to live happily despite whatever flares I have tomorrow—am I essentially closing the door on a full recovery by adapting too much? I've dealt with this since birth, and I refuse to tell myself I'll just carry it forever. I don't think anyone should settle for just "managing" it, either—because you never know when you might get lucky. 🙂

What’s there to "accept" about this life when you know there’s always something out there that might actually help? Honestly, things get easier as you age. When I was just finishing middle school and heading into high school, being an eighteen-year-old guy back then, things were genuinely rough. Even now, there are moments where everything just feels like too much—watching people make conscious, reckless choices to drown themselves in booze or drugs while you're stuck dealing with this mess and can't shake it. Still, I have to admit that having something like this makes you think about life differently than most people would. I try to remember that there are much worse things than Psoriasis. I often think about people who are blind, deaf, or spend their entire lives in a wheelchair... we can see, hear, and walk perfectly fine; it's just this one little thing that trips us up sometimes. I don't really talk about it with anyone. My whole family knows because my parents made it public when I was a kid, so I didn't exactly have a choice in the matter. A few friends outside the family know too, but it's one of those things that stays unspoken. Some things are better kept to yourself; I don't feel the need to broadcast it since I don't gain or lose anything by mentioning it.

Linda Chase81 said:First off, I just wanted to say how much I love your posts; you have such an incredibly positive energy, which honestly matters more than anything else... 🙏 😍 👍

But do tell me, what was the name of that tea, and where on earth can one actually find it? 😬

Well, let me see... once I finally make it back home this evening, I'll dig through my notes to find the address, though if memory serves, I believe it was somewhere near Times Square... I didn't purchase it myself, you see, so I can't be entirely certain of the exact location!

silverjackal20 said:Yes, I completely agree that having the right mindset is everything; since I was a little girl, I’ve never had any trouble telling people, "What is that?" or "Why is that happening?"... somehow, answering those questions has just become a mechanical reflex for me, and it doesn't bother me when people ask, but regardless of that, I can't help but wonder if I should give up hope on a total cure... because if I surrender internally to that desire—if I just settle into the idea that I’ll be in the ring with this condition for the rest of my life and try to learn how to live happily despite whatever wounds my body might carry tomorrow—am I not effectively slamming the door on a complete recovery by deciding I've already surrendered and simply adapted? I’ve dealt with this since the maternity ward, and I don't want to tell myself that this is just my permanent reality for life; I think no one should just assume they can only manage the symptoms, because sometimes, hope can actually catch you by surprise...🙂

Look, it would be absolutely wonderful if they found a cure for psoriasis—for me and for most of the people in this group, it would be a literal dream come true—but until then... until that moment arrives... and from what I understand, when dealing with defective genes like ours, it requires millions upon millions of dollars, yen, pounds, or whatever currency you prefer, spent over years and years of medical research and clinical trials... until then, you simply cannot stop living while just sitting around waiting for it to happen.

It probably requires a perfect storm of certain actions taken toward (un)healing to experience even a single period in your life where you are completely clear. I actually had such a period for about a year recently, but then everything started crawling back... plus the arthritis became so bad that there are times I can barely walk at all. But honestly, I just sit there laughing over coffee with my girlfriends about how at twenty-three years old, I’ve already got an old person's disease and I'm slathering myself in anti-inflammatories. And that helps me immensely—because they aren't pitying me; they're just laughing along with me.

And I go to the doctor, they prescribe some therapy, and the problem is solved, at least for a little while... you know how they say everyone carries their own cross in this life? Well, this is clearly ours, but it isn't quite as catastrophic as it seems... it was only through dealing with this illness that I truly realized how vital health is, and how important it is to listen to your body and not subject it to unnecessary shocks. I mean, sure, I have a drink here and there on the weekends, or I’ll indulge in some chocolate once in a while—thank God we don't have to renounce everything in life—but your lifestyle definitely has to change, and the most crucial thing (which everyone here emphasizes) is your mental state.

Oh dear, I've gone on a bit of a tangent now... 🙂 I should get back to studying for my exams.... enjoy this beautiful day!

Cut out the coffee. You can laugh without it, and honestly, it’s probably doing you more harm than good. Not everyone handles this stuff the way you do, either; I wish more people could react like you, but people are unpredictable and can be incredibly draining. Dealing with this in our age group is definitely easier than it is for a 15 or 18-year-old—we’ve had time to adapt, whereas they’re just walking right into it. The biggest frustration is the lack of actual, concrete support. What wipes one person out might not affect someone else at all, and some things can have a purely negative impact on certain people. Ideally, we should all try to stay calmer about it, but I completely get why it gets under someone's skin and consumes them. That was me once. Maybe it's even tougher for you women than it is for us men. That's why you need to find your own distractions—hobbies or whatever keeps you relaxed—so you can forget about it and stop wasting your energy on nothing.

silentheron25 said:just ditch the coffee; honestly, you can laugh your head off without it, and frankly, it’s doing you more harm than good. besides, not everyone has your temperament—I wish more people could just brush things off like you do, but people are unpredictable and can be incredibly draining... in our age group, dealing with this stuff feels a bit more manageable than it does for a fifteen or eighteen-year-old, since we've had some time to build up a thick skin while they're just stepping into the fray. the most frustrating part is how inconsistent the support is; what might be a minor inconvenience for one person could be a total disaster for someone else, and it hits everyone differently. obviously, one should try not to let it get under their skin too much, but I completely empathize with anyone who finds it deeply upsetting and feels consumed by it, because I've certainly been there myself... perhaps even you women find it slightly more taxing than we men do. that's why it's vital to find your own little escapes, hobbies, or whatever keeps your mind occupied so you can unwind and not exhaust yourself over nothing
.

Oh, believe me, I know—at this point, it's practically a mantra for me; I cut out regular coffee ages ago, moved on to decaf, and then eventually ditched that too!

And yes—I am fully aware that people don't always react constructively and that many might lean toward self-pity, but for heaven's sake, I prefer to actually solve my problems rather than piling more onto them... though I suppose it might be a tiny bit harder for women; personally, I find the aesthetic implications a bit more difficult to swallow!

People get hung up on the aesthetics because they act like if it doesn't look "perfect," nothing else matters. They think you should just be happy you don't have arthritis or something else, as if having skin issues isn't its own struggle. Self-pity won't get you anywhere, though we all have to deal with it at some point, whether it's psoriasis or something else entirely. You always have to try to fix the problem, but when you look back at how many years you've spent trying different treatments without any real success, that's what can really start to wear you down. Still, hope dies last. You just have to stay tough.

About a month ago, I posted on this forum regarding treating psoriasis with ivy. I just wanted to follow up and let you know that after a month of soaking in ivy, I’m not just satisfied—I’m actually floored. For anyone still skeptical, you can keep spending a fortune on expensive creams and drinking those nauseatingly bitter teas. I truly want to help you out here, especially since this doesn't cost a dime. Maybe try soaking for just three days; if you don't see a difference (and you will), then you can go back to the pricey stuff. In the spots where I used to have open wounds, my skin has turned pale—the scaling is completely gone—and I suppose it’ll take a month or two to regain its natural tone. I’m down to just a few patches of pink skin with absolutely no flaking. Do you have any idea how incredible it feels to apply regular moisturizer to your flare-ups at night and wake up in the morning without a single new scale? It’s honestly indescribable.

Elizabeth Barnes47 said:About a month ago, I posted on here about trying to treat my psoriasis using ivy. Well, just wanted to give you a heads-up that after a whole month of soaking in ivy, I am definitely not happy—honestly, I'm pretty disappointed.

Could you walk me through how you actually do it? Like, what do you do with the ivy, how much are we talking, do you toss it in a bath or what?
How long are you soaking for and all that?

Elizabeth Barnes47 said:About a month ago, I posted on this forum about treating psoriasis using ivy, and honestly, I just had to come back and tell you all that after a full month of soaking in ivy, I am beyond satisfied—it’s been life-changing. For anyone out there who is still skeptical and stuck buying those overpriced dermatological creams or sipping on teas that taste absolutely revolting, please listen... I truly want to help you, and the best part is that it costs next to nothing. Just try soaking for three days; if you don't see a difference—and believe me, you will—then you can go back to your expensive routine, but I suspect you won't ever touch those pricey creams or bitter teas again. My skin where the open wounds used to be has turned pale (the scaling is completely gone), and it’ll probably take a month or two to regain its natural tone. Now, I only have pinkish patches left without a single flake in sight. Do you have any idea how incredible it feels to apply regular lotion to your affected areas at night, only to wake up in the morning without a single new scale? It is simply indescribable...

I actually became quite intrigued by this whole ivy remedy while reading your posts about a month ago, but I am completely at a loss as to where one even finds it! I was just sitting there this morning having a long discussion with my mother about how, out of everything we've searched for, this is the one thing we just cannot seem to track down... I really want to give it a shot, so, where on earth should I be looking? I assume you wouldn't find something like this at a standard local health food store or a typical pharmacy, right?

Well, regarding that tea... I picked it up at Walmart. There's this herbalist from Des Moines who actually leased some space there and has been selling his blends for quite a while now. He even maintains a website if you're interested:

www.travar-mb.hr

Maria Doyle27 said:...so, where should I look then? I'm guessing you won't find it at any local health food stores?

I actually spotted some at a few shops in Chicago!

Hey everyone.

I read this forum every single day. One thing just doesn't make sense to me. Almost 100% of the threads here revolve around supplements that users themselves admit don't work—or they offer half-baked results that vanish quickly, only for the illness to come roaring back even worse. Then comes the endless cycle of questions: where, how, how much, why? We all know the outcome is zero.
Are you really going to sit around waiting for some drug to get FDA approval over the next few years? Based on how things are looking overseas, you'll end up paying thousands of dollars just to get cured, assuming you even have the desire to actually live your life right now.
I deal with an incurable condition, not some lifestyle issue. My "incurable" reality was a major hip surgery when I was seven, leaving me with a leg that's 4cm shorter than the other, a curved spine, and chronic pain every time the weather shifts. There is no cure for that. But for what you guys are talking about, there supposedly is one. I’m telling you that truthfully, and I swear to God. My records are public if anyone wants to check. Remember what I said, because one day you'll look back.

With faith in God,

Best, Bane

I’m just wondering where I can pick up some ivy and what the actual process looks like?

Michael Ramos3, I’ll be the first one in line to buy your product. But like you mentioned, people are going to step up and question if it actually works the way you say... Most of us are still just waiting to see those first real results...

Maria Doyle27 said:Oh, right! Regarding that tea—I actually picked it up at Walmart. There’s this herbalist from Des Moines who rents space there and has been selling his goods for quite a while now. He even has a website:

www.travar-mb.hr

Thanks! 😍

By the way, have you ever tried his unknown ointment? It's pretty great...

Hello, everyone. Just another psoriasis sufferer checking in to this corner for those of us struggling. I’ve been dealing with my faithful companion for eight years now—it all started after a series of unfortunate events that I clearly didn't handle well, which triggered my flare-ups. First, I broke out in chickenpox, and those just wouldn't clear up. Eventually, they sent me to a Salisbury clinic for a 21-day treatment; they did some minor scraping and spent the rest of the time applying ointments. They actually wanted to try quartz therapy on me, but I refused—I heard about some girl who had a terrible experience, and honestly, it spooked me. So, that was that.
For a few years, back when the system still allowed it, I used to get sent to those seaside medical resorts for 21-day stays through my insurance.
Fortunately, my case is relatively mild. I’ve never even had it on my elbows or knees; instead, it shows up on my scalp, patches on my neck, my chest area, under my arms, the inner part of my upper arms, and around my navel. I’ve only dealt with actual scabs a few times, and even then, they were small and cleared quickly. After reading some of your posts here, I realize I’ve actually been quite lucky.
I’ll admit, I panicked for a while. I was terrified that as I aged, things would spiral out of control like they have for many of you, and I started thinking much more intensely about how to fight this. Right now, I rely solely on Salic ointment, and I hate it from the bottom of my heart. It works, sure, but it is incredibly greasy, and because of that, my clothes, hair, and bedding all end up ruined. I don't use it constantly; I only reach for it when the patches flare up and turn red, which usually happens whenever I get really stressed out.
The one thing that truly helped was the ocean. For years, I’d spend the entire summer staying with my aunt at the coast, and during those times, my psoriasis stayed quiet; it would typically only show up in the spring. Nowadays, I can't stay by the ocean for long periods anymore—I just don't have the cash to afford it, and there were even years where I couldn't go at all. Ever since I stopped going to the coast every summer, the psoriasis has been getting progressively worse—slowly but surely spreading, and becoming harder to manage.
I am 27 years old now, and while I accepted a long time ago that I have an incurable skin condition, I will never feel comfortable wearing a tank top in the summer knowing people are staring at my patches as if I have something contagious! It’s a horrible feeling.
Even when it recedes, once I get a bit of a tan, the spots remain visible—the skin stays lighter, making me look "off" again.
I’ve been reading about that Noni Tahitian juice, and since it seems to have helped so many people, I’ve decided I’m going to give it a shot, regardless of the cost. I just need to save up enough money first.
I feel a little better now that I've let it all out. It's a bit lonely, too; I don't know anyone else facing this same struggle that I can actually talk to about it.

I cleared up my psoriasis pretty quick and easy without breaking much of a sweat, though I’ll admit I had to shell out a bit of cash to make it happen—but hey, you get what you pay for when it comes to the good stuff. If anyone wants the lowdown on how I did it, just hit me up...

Of course everyone wants to know who’s looking to offload. It's not exactly a deep mystery, so there's no point overthinking it. Just write it out. 👍