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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 87 views · 2.3K replies

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Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#781 ·
It’s been proven a million times over that when it comes to psoriasis, one single treatment isn't going to work for everyone. Every therapy is totally individual... what works for me might not yield the same results for someone else. That's why I always say you should try to keep a positive mindset whenever you start a new treatment plan. Maybe that’s actually why I’ve had such good luck with those Chinese patches... because I truly believe they're going to help me.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#782 ·
Kenneth Williams36 said:Dear Gabi, I was using that Sinalar gel at first, back before I even knew what I was dealing with... but nothing really helped. And now, ever since the hair loss started, things have become absolutely unbearable. I’m peeling off these scales—they aren't just flakes, they're thick layers, several millimeters deep... and then the burning starts. It’s this intense, angry redness that spreads across my entire scalp. After a flare-up like that, I’ll burn through an entire bottle of Belosalic in just a few days, which gives me maybe a week of peace. Then, it all just starts over again from scratch. I'm honestly at a loss... I don't know what else there is left to try...🙏

Belosalic lotion helps me too, though right now it’s just working on my scalp... I have to admit, I haven't heard of anyone using anything else specifically for the hairline area. But let's wait and see, maybe someone else will chime in who knows a bit more than we do... cheers.
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#783 ·
Robert Clark2,
Just a heads-up, this forum is open to everyone and isn't strictly limited to medical talk or medications alone.
The ground rules are super simple: please don't be disrespectful and let's keep the misinformation to a minimum!
If someone’s posts are getting on your nerves and you’d rather not see them, you can always just hit that ignore button.
Let's try our best not to turn this space into a massive argument zone.
Thanks so much, jadesailor14
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#784 ·
Kenneth Williams36 said:Dear Gabi, look, I was using that Sinalar gel at first before I even knew what I was dealing with, but honestly, now that it’s spread to my hairline, things have become absolutely unbearable. I’m out here peeling off these scales—and let me tell you, we aren't talking tiny flakes, we're talking thick layers several millimeters deep—and then the burning starts, just this intense, searing redness taking over my entire scalp. Once that happens, I end up burning through an entire bottle of Belosalic in just a few days, which gives me maybe a week of peace before the whole nightmare starts all over again from scratch. I’m at my wit's end here, seriously, what else am I supposed to try?🙏

Man, I’d love to step up and give you a solid recommendation for something that might actually work for you... but honestly? Right now, I can barely even help myself. It's a mess. Like, literally until about a month ago, my scalp was totally clear—we’re talking two whole years of nothing but smooth skin. And then, out of nowhere, it just hits me like a freight train. Now it's just crust after crust, all these thick patches and scabs everywhere. The weirdest part is that I was using basically the same stuff I used before, but it feels like those products actually made things worse, like they triggered this massive flare-up that's way more aggressive than what I was dealing with before. It's frustrating as hell.

Look, I might only have one piece of advice for you, but you really need to hear it: just stop picking at those scales, okay? Seriously. You’ve got to watch out for that Kebnerov effect—it’s no joke. Every single time you mess with a damaged patch of skin, you're basically inviting new psoriasis lesions to move in or making the ones you already have way worse. Just leave it alone!
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#785 ·
Robert Clark2 said:I think this forum, especially the health sub-forum, was meant to be a space where people dealing with these nasty, relentless illnesses can swap stories about causes, treatments, and everything from mainstream medicine and pharmacology to alternative approaches. It’s a place to highlight how some drugs actually work or how much certain holistic methods can help—things we all know firsthand.
The way you, Elizabeth Lee49, and a few others just chat amongst yourselves... I think that kind of thing is better handled in private messages or through decent posts using emojis.
Since Elizabeth Lee49 spends her time crafting these posts without invading anyone's privacy, my advice to her is simple: read the actual instructions on a medication before you use it. Know what you're taking instead of searching for answers only when someone asks. For an intellectual, or someone who’s constantly asking for patches at the pharmacy, it's a bit odd. If you're always hunting for patches, it probably means they aren't doing much anyway—she'll realize that eventually, just like with that butavat cream you guys used that comes from the black market.
I'm not going to ignore your posts, but I’d ask that moving forward, we stick to quality content that interests a wider audience. We need to keep this forum at its peak. And a quick heads-up for Elizabeth Lee49: this is a corner for people dealing with illness, not a place for people to kill time. If she wants to contribute, maybe write a post in the afternoon rather than just when she's bored.
If everyone is so eager to communicate, why hasn't anyone replied to the post by silverjackal20 regarding being born with psoriasis? (Sorry, silverjackal20, for bringing it up here).
Just remember, you're not alone on this forum. Let's stick to the rules of the game.
Cheers!

You’ve got a pretty rigid view of things. I agree that the forum should stay high-quality, but honestly, I haven't seen anything wrong here lately, aside from some cheap ads for sketchy stuff like Noni juice or butavat cream back in the day. Why shouldn't we talk about things beyond just psoriasis? I don't see the harm. And why can't we just hang out here? Psoriasis isn't just physical symptoms; the impact goes way deeper than that.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#786 ·
jadesailor14 said:Robert Clark2,
Look, this forum is pretty laid back... it isn't some strictly specialized medical board where we only talk about prescriptions and drugs all day...
The rules here are pretty straightforward... just don't be disrespectful and keep the misinformation to a minimum...
Look, if someone is getting on your nerves and you just can't stand reading their posts anymore... there's always the ignore option...
Let’s not turn this place into a battlefield...
Thanks, jadesailor14...

Thanks, jadesailor14, for the support... really glad to see we're on the same page about this. 😳 Just wondering... what do you all think?
I just wanted to share my story... maybe brighten someone else's day just by putting it out there. I guess I’ve always been a bit of a sentimental person—which is pretty typical for people dealing with psoriasis, isn't it? Anyway... thanks again!!!!!!!!!!!
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#787 ·
Hey there, good people.

I’ve been away for about 10 days—took a pilgrimage to Mount Athos to seek blessings from the monks for the ointment, and thank God, I received them. Not that it matters, other than for my own conscience. I’m here constantly, and almost every day, people from all over the world are picking up the ointment. As for the folks on this forum, I can't speak for them, nor will I call on them to post just so I don't look like I'm "taking credit." We’ll leave that to their conscience. Primarily, let's just give them time to heal.
I can tell you that 4 or 5 people have taken it from this forum, and two of them don't even have psoriasis, but a very similar condition. So, let's be patient and pray they get healed so they can pass on their OWN positive attitude. Anything else would be pretentious—on my part, yours, or theirs.

Stay patient and persistent.

With faith in God,

Best,
Grace Green6 Grace Green6 Newcomer
5 messages
joined Apr 2007
#788 ·
Robert Clark2 said:🙂 Let me dig through my files regarding psoriasis; I have several diet plans in there, including those one-day meal protocols based on the method from Prof. Jovančić, a biologist.
Honestly, from what I've read about these types of treatments, most dermatologists gave up on them ages ago because they barely move the needle when it comes to psoriasis. Still, I'll try to be helpful and send it over via PM.

Please, please send me that psoriasis diet. I want to compare it to what I have at home before I try it out. THANKS.

Right now, I'm just sticking to lemon and basic fish oil. I rub lemon on the affected areas and then apply fish oil, and of course, I'm taking Omega-3. The inflammation has calmed down a bit and the skin feels thinner... seems like things might be looking up.
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#789 ·
Grace Green6 said:Of course I'm taking Omega-3. The inflammation calmed down a bit and my skin feels thinner... seems like things are finally looking up...

Supposedly, taking a blend of Omega 3, 6, and 9 is better than just Omega-3 alone. That's what my dermatologist told me, anyway. Now the real question is how many pills per day? My doctor suggested 6 or 7 tablets daily, which sounds absolutely insane to me—honestly, I don't think that's even good for the heart. I'm sticking to just one a day.
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#790 ·
Grace Green6 said:of course I take Omega-3 too...


Speaking of Omega-3,
you can actually pick up the Doppelherz Lachsöl 1000mg + Folic Acid + B6 + B12 + Omega-3 at just about any pharmacy here in the States now!
I personally take it for a few other reasons and it works wonders for me. I usually have a super sensitive stomach and most supplements make me feel pretty lousy, but this one doesn't bother me at all!
Plus, those B vitamins are great for your skin, so it might be a real help for someone else too.

If I remember right, the box comes with about 123 softgels, which is $27, and I personally take two every morning.
Kenneth Williams36 Kenneth Williams36 Member
20 messages
joined Feb 2007
#791 ·
Gregory Mendoza3 said:I’d love to give you a solid recommendation for something that actually works... but honestly, right now, I can barely even help myself... see, until about a month ago, my scalp was totally clear (it had been clear for two years straight)... but now, it's just one thick crust after another, with the same kind of thickening and scarring... even though I was using similar stuff... it’s almost like those products actually made things flare up even worse than before...

Maybe I can offer just one bit of advice—don't pick at the scales... because of the Kebnerov effect... where any damage to the skin creates new psoriasis lesions or just makes the existing ones way more intense.

Alright, I'll try my best not to pick at them, but how long am I supposed to just let this stuff build up? I think Michael Ramos3 mentioned his scalp was getting about 2 cm thick! Good grief, I'm going to end up looking like a turtle in a shell. I was reading something about rinsing the scalp with NONI juice. Have you tried that, or does anyone else here have any experience with it?🙏
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#792 ·
Kenneth Williams36 said:Alright, I'll try my best not to pick at them, but how long is this stuff gonna keep building up? I think unnamed mentioned his scalp buildup was like almost an inch thick! Man, I'm gonna end up looking like a freaking turtle in a shell. I actually read something about washing your scalp with Noni juice. Have you ever tried that, or does anyone else have any experience with it?🙏

The whole deal with the unnamed effect is that any kind of trauma—whether you scrape it mechanically or hit it with some chemical or agent the skin just won't take—it basically triggers the first spots where psoriasis might start spreading if it's already on the move... You could technically try (though I really wouldn't suggest it) making a tiny little scratch on some other part of your body... as the psoriasis expansion moves forward, that should theoretically be one of the first places it pops up.

As for those psoriasis scales... you absolutely cannot scrub them off mechanically or use anything abrasive...

So the big question is what do you even do... Basically, you either gotta manage it with ointments or salicylic acid gels (which is what mainstream doctors recommend), or just keep slathering stuff on until that hard, flaky crust softens up enough to just fall off on its own... But look, the effectiveness of any product is totally different for everyone... it's weird, but something that works for you once might totally fail you the next time.

Personally, I always tried to keep my hair cut super short so I could get as much sunlight hitting my scalp as possible, which is great for preventing flare-ups. Also, stay away from blow-drying your hair because that dries out the skin and makes psoriasis worse, and don't rub your head with a towel either since that's way too abrasive.
The best part about having short hair is that it's easy to dry and maintain (plus it looks pretty good on me 😉)

Back when I was dealing with it heavily, I was applying everything under the sun—unnamed, Sinoderm gel, unnamed... all sorts of cortisone creams and corticosteroids, mixed in with natural salves (even honey-based ones) and lotions made of olive oil, brandy, and herbal tinctures... I honestly felt like a freak, just staring in the mirror in total shock...

It would sort of just heal itself, or rather, it would recede sporadically, bit by bit, then disappear again.

But then a month ago, it came back full force, and I'm talking massive... I went back to the steroids, but they did absolutely nothing... now I'm using some ointment (a mix of lard and St. John's Wort oil) but unfortunately, it’s not doing a thing—actually, things are even worse now on the rest of my body 😠

Regarding that Noni juice stuff, I saw a ton of commercials and "miracle" stories about it ages ago, but honestly, I never tried it or used it myself (I just didn't trust it) and I haven't met anyone who actually uses it for psoriasis or anything else.

Hope you have better luck than I am.😳
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#793 ·
Look, the real issue with Psoriasis isn't actually the skin, even though that’s where it shows up. The problem is internal—it's in your system, specifically your liver and blood. When things aren't running right on the inside, it manifests on the outside. Period. Because of that, I wouldn't touch anything processed. No canned goods, no deli meats, no sweets, no acidic fruits, and honestly, don't overdo the fruit in general. Skip the sausages, pork, nuts, eggs, ice cream... basically, stay away from anything fried or roasted. Stick to boiled foods if you have to. It’s a massive shift from what most people eat when they aren't dealing with this crap. You should be eating fish, chicken, beef, and vegetables, though you still have to be careful—don't go overboard on things like beets, for instance. I have a specific list written down somewhere, but that's the gist of it. I’ve been drinking a custom tea blend lately. There was a period where I stopped, and everything flared right back up. For my hair, I use T-Gel, which keeps it mostly fine. One tip: keep your hair short. It’s hard to make any progress when your skin can't breathe under long hair. I also take a natural honey blend that helps detox the body. The priority is cleaning out your system; once the inside is clear, the skin follows. Those steroid creams like Beloderm or similar stuff don't solve much besides thinning out and damaging your skin. Beloderm helped me slightly, but I use it very sparingly. I also use a natural salve and take a teaspoon of that honey three times a day before meals. It worked for me two years ago, so I’m confident it’ll work again now.
urbanbadger53 urbanbadger53 Newcomer
5 messages
joined May 2007
#794 ·
Hi everyone. I discovered this forum a few months back, and since then, I’ve been checking this specific thread religiously... you probably already know why. 😎
I first dealt with Psoriasis when I was just 6 years old, and now I'm 18.
There were stretches where it vanished for years at a time. Usually, I’d just have a few spots on my back, legs, or scalp, but things took a turn for the worse back in late 2006. I actually stopped using any creams for a few months, but thank God, it started clearing up on its own. The scaling is almost gone now, though the redness lingers. I'm hoping the warmer weather, some sunshine, and a healthy mindset will help clear that up too.
I really have to hand it to you all; there are so many people here who truly understand this condition. Honestly, I've learned a ton since finding this community.
Lately, I’ve been applying a bit of Vaseline, and I think it’s helping. I’m also staying consistent with Omega-3, selenium, and Vitamin E supplements.
This condition has definitely taken a toll on my mental health. You have to understand, being only 18 makes the psychological side of this much harder to navigate. I think I'll get better at managing the mental aspect as I get older, but right now, it's a struggle.
At the end of the day, I've learned how to live with Psoriasis, but I'm certainly not giving up, just like most of you. One big reason I joined is because the vibe here is so positive. Everyone tries to look at this from a different, more optimistic perspective. Kudos to you all!
That's all from me for now. 👍
Maria Doyle27 Maria Doyle27 Newcomer
1 message
joined Apr 2007
#795 ·
I suppose I should begin by addressing the sheer absurdity of this entire situation... though where one even starts when everything feels so fundamentally disjointed is a question I often find myself pondering during those long, quiet hours before dawn... It’s all quite overwhelming, isn't it? One moment you think you have a handle on things, and the next, the rug is pulled out from under you so abruptly that you’re left grasping at thin air... anyway, I digress, as I am prone to do... kaže:
Regarding all this talk about Soka... I feel like I’ve been bombarded by endless waves of advertising and those suspiciously "miraculous" success stories for ages now, though I must admit I haven't actually tried it myself—nor have I ever even considered using it, simply because I lacked any semblance of trust in the whole thing... and besides, I don't personally know a single soul who has ever utilized it to combat Psoriasis or anything of that nature...

I truly hope that things take a turn for the better for you... may luck finally decide to find its way your way... 😳

I was sipping on some Noni juice about two years ago, which was roughly a year after I first got hit with the news that I had Psoriasis... and honestly, looking back now, I’m stuck in this perpetual state of uncertainty regarding whether that specific juice actually did the heavy lifting for me. It’s quite difficult to isolate a single variable when, at that exact same time, I was aggressively purging my diet of all sorts of junk and making a very conscious, very deliberate effort to maintain a more positive outlook on life... and since my Psoriasis completely cleared up during that period, one could argue it was effective, but then again... it might not necessarily be solely due to the Noni, but rather a complex, tangled web of every single lifestyle change I implemented all at once...

I really must point out that relying on this particular juice requires a significant—actually, an exorbitant—amount of capital... at the current rate, the monthly dosage alone seems to cost me upwards of... $167...and one really ought to commit to a three-month course, though perhaps stretching it to six months wouldn't be entirely out of the question, provided one follows that up with a substantial break of somewhere between three to six months...

Last year, I happened upon an article in *Reader's Digest* discussing some recent research, which apparently concluded that the whole thing was nothing more than a massive embarrassment... they claimed that Noni doesn't actually assist with cell regeneration at all, but might instead offer a sort of temporary "boost" to one's bodily energy levels, which, if you ask me, puts it firmly in the same category as a can of Red Bull... 😕 But then again, one really ought to consider the source... specifically, who exactly was footing the bill for the research in the first place... which, let's be honest, usually tells you everything you need to know about the results...

Honestly, it’s always best to just dive in and experience it firsthand to see how it actually affects you... because, as we are constantly reminding one another in this group, every single human body reacts in its own unique way...
Maria Doyle27 Maria Doyle27 Newcomer
1 message
joined Apr 2007
#796 ·
urbanbadger53 said:At its core, I don't have a massive issue with it; I've learned how to coexist with Psoriasis, but I certainly haven't thrown in the towel, much like most of you here. One of the main reasons I even signed up for this forum was because there's such a positive vibe in this community, where everyone tries to look at our condition from a different, more optimistic perspective. Kudos to you all!
that's my initial take on things... 👍

The absolute most important thing is accepting the reality that this condition is simply a part of your life now, and you just have to manage it the best way you know how... I know plenty of people who have spiraled into such deep depressions that they're essentially just spinning their wheels, mostly because depression and stress are arguably the most potent and frequent triggers for Psoriasis. Dammit, it is what it is; you can't change your skin, but you can certainly try to help yourself prevent the disease from manifesting in its absolute worst form.

I usually tell everyone I have it, which honestly baffles my parents, and they always chime in with comments like, "Well, not everyone needs to know." Honestly, I couldn't care less; it's not like I have the plague, and besides, it's much easier for me when I can actually talk about it with someone. It's just a medical condition like any other, though what really grinds my gears is the sheer cost of everything... everything else—you can survive that! 😉
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#797 ·
Maria Doyle27 said:The main thing is just accepting that this condition is part of your life now... you just have to deal with it the best way you know how. I know plenty of people who spiraled into such deep depressions that they were basically stuck in a loop, mostly because depression and stress are such massive triggers for Psoriasis. Honestly, it is what it is. You can't change your skin, but you can try to help yourself so things don't get as bad as they could...

I usually just tell everyone I have it, which always surprises my parents. They always make comments like, "You don't have to tell everybody." I don't really care... it's not like I have the plague. It’s just easier for me when I can talk about it openly. It’s just a medical condition like anything else. What actually gets to me is how expensive everything is... everything else, you can live with. 😉

Way to go, Maria. You're doing it right... I don't quite have the nerve to tell everyone yet, but with my close friends, yeah, I do. They’re totally fine with it, and sometimes if they’ve read something new, they even give me tips. That's the way to be. Keeping a positive outlook matters... depression and disappointment just drag you down further, and then the flare-ups get even worse. I've been there... when I had a bad breakout, I honestly thought it was the end of the world. Now that I'm older, I know it's not all doom and gloom. It lives with us, and we live with it. You're doing great, Maria... 😍
Maria Doyle27 Maria Doyle27 Newcomer
1 message
joined Apr 2007
#798 ·
Elizabeth Lee49 said:Way to go, Maria Doyle27! You’re doing amazing, and honestly, that’s exactly how you should be handling this... I still haven't quite found the courage to just blurt it out to everyone I meet, though I can talk about it freely with my close friends, and they’ve been so incredibly accepting—sometimes even offering helpful advice if they’ve read up on something new. It really is the only way to be. Maintaining a positive outlook is everything, because letting depression and disappointment take hold just drags you deeper into the abyss, which only makes the condition flare up even worse... I know, believe me, I've been there; back when I had my first major breakout, I truly felt like it was the end of the world. But now that I'm a bit older, I realize things aren't always that bleak... this thing lives with us, and we live with it. You're doing great, Maria Doyle27.😍

Aaaaah, thank you so much, Elizabeth Lee49... 😘 Truth be told, I didn't even feel this way at first; actually, I’ve always been a bit of a drama queen, and I don't need much to work myself into tears—so, naturally, I ended up breaking down right there in the doctor's office the moment she handed me the biopsy results (Jesus, looking back, it seems almost ridiculous now), and then I called my mom, and then I got home... and it just kept going for a few days. And then, eventually, you settle down, you educate yourself, and thank God I have such wonderful friends who provide an incredible support system... you just shift your mindset, and that's that—life moves forward.

I really have to say, while we're on the subject of the older generation, they can be absolutely baffling... even to this day, they refuse to accept the simple reality that I actually HAVE this condition. They sent me to six different specialists, all of whom confirmed the exact same diagnosis, yet they still stubbornly refuse to believe it's Psoriasis... I honestly don't get it—if I can wrap my head around it, why on earth can't they? 😕

Oh, and someone mentioned earlier that the liver and blood are the most critical factors... something along those lines. I actually came across something similar recently, and every herbalist I’ve visited to pick up teas has insisted that all skin issues stem from imbalances in the liver and kidneys... so, currently, I am chugging this specific tea meant to regulate liver and kidney function; it tastes absolutely revolting, but if it works, I will happily drink it for the rest of my life... 🙏

Best wishes to everyone
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#799 ·
Has anyone here actually tried using Dead Sea mud? A few summers back, I used to apply it pretty heavily... we had it brought over in these special containers, vacuum-sealed in foil. You’d let it warm up quite a bit before rubbing it onto the affected areas. To be honest, there wasn't some massive miracle effect, but my skin did feel smoother... the scaling finally cleared up, leaving just a bit of redness behind. The real headache was the mess. Since it's pitch black and incredibly greasy, you end up getting it everywhere. I ended up doing it out in the backyard, but even then, I felt a little self-conscious about what the neighbors might think... like, what on earth is this crazy person doing out there. Back then—about ten years ago—one of those containers cost a decent chunk of change, maybe around $15 for a single kilogram. I'm not even sure if you can still find it like that anymore, or if it's even available to buy... but hey, maybe it helps someone else.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#800 ·
Maria Doyle27 said:aww, thanks Elizabeth Lee49 😘 I didn't even feel that way at first, honestly. I’m usually such a sensitive soul and I cry pretty easily—so I actually broke down right there in the doctor's office when she gave me the biopsy results (Jesus, looking back it seems almost funny now), and then again when I called my mom, and then once I got home... just a few days of that. And then, nothing, you just settle down a bit, start doing your research, thank God I have amazing friends who really hold me up, you shift your mindset and that's it... life just keeps moving.

I have to say, since we're talking about the older generation, they can be so strange... even today they won't accept the fact that I actually HAVE this condition. They sent me to six different specialists and everyone confirmed the exact same diagnosis, but they still refuse to believe it's Psoriasis. I don't get it—if I've accepted it, I don't know why they can't 😕

Oh, and someone mentioned earlier that the liver and blood are what matter most... something along those lines. I actually read something similar recently, and all the herbalists I've visited for teas said that basically all skin issues stem from imbalances in the liver and kidneys. So now I'm just chugging this tea meant to regulate my liver and kidneys. It tastes absolutely revolting, but if it works, I'll drink it until the day I die... 🙏

hang in there, everyone

I think all parents act the same way. My mom practically threw money at the problem trying to fix me, and I've tried everything, but I think deep down she just won't accept this illness exists. Whenever I bring up a new treatment, she just yells after me, "Stop it, it's nothing, just change your attitude," and then she just ignores me. I get the feeling she's just lost her strength to fight it and she's done.

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