Psoriasis [PLEASE READ FIRST POST!]

Gregory Mendoza3 said:It really doesn't matter what was said or who said it...

I have no intention of pointing fingers or passing judgment...

My only goal was to highlight certain directions our discussions tend to take. I just don't want people wasting their energy, nerves, or time on endless explanations and clarifications...

I know that helps very little myself... but as for making peace with it, not a chance 😠 I am simply not the type of person to ever surrender on certain matters in life...

Ultimately, the only true healer is God... though if it is His will for you to be cured, you would be healed in an instant. You go to bed at night and wake up completely healthy in the morning...

Or, if it is His will, you are treated with medicine, ointments, or whatever else you discover—all according to His will, found and created by His will. In any case, if healing occurs, it is His will...

The hardest part is simply deserving His mercy. Once you earn it and He allows you to draw near, the illness no longer feels like anything at all...

I realize this forum isn't meant for these kinds of topics, but that is simply the reality...

Oh, please, it's not like that. Look, I get that you're a believer and that's your perspective, but try to show a little respect for atheists and agnostics...🙄

I was hit with psoriasis at just 21. The diagnosis was Psoriasis vulgaris generalisata, and I’m 58 now. That means I’ve been living with this for 37 years flat.
If there were actually a cure out there, I probably would’ve found it by now. Sadly, neither I nor anyone else dealing with this has been cured yet.
Over all these years, I’ve tried absolutely everything—from heavy-duty pharmaceutical creams and ointments to every weird alternative herb and "healer" you can imagine. Nothing worked. On my doctor's advice, I just stick to neutral moisturizers now, just to make life a little easier for myself and the people around me.
After 37 years of pure hell, I’ve spent a small fortune on treatments (not that I regret the money), but man, if only I had seen even a shred of progress.
My skin has become so thin it feels like a sheet of cigarette paper.
I’ve handled this disease pretty well, honestly—maybe even more than well.
On top of the Psoriasis vulgaris, I also developed Psoriatic erythrodermia and Psoriatic arthritis (who knows what else is coming?), but if God is watching, this is already more than enough.
As a patient in this situation, I’m a regular at the major American dermatology meetings where the biggest names in the field show up from cities like Athens, Istanbul, New York City, Montevideo, Vienna, Prague, and Munich. If these experts can't help me, then who on earth can?
To put it bluntly, psoriasis is a chronic, incurable disease.
But I’m not giving up on making life better, and I refuse to let it define me. Like I always say, hope for yourself the same things you see in others.
I ask the honest members of this Reddit community not to take it personally if I get defensive in my posts regarding "cures."
For now, I won't presume to give advice on psoriasis unless someone specifically asks—though I doubt anyone will. But hey, you never know. I’ll just stick to lurking and following the threads here.
If anyone is 100% certain they can cure me, make a public announcement. In return, I’ll sign over my house on the coast of the Mediterranean Sea, but first, show me proof that you've actually cured someone.
Kind regards.

Robert Clark2 said:I was diagnosed with generalized psoriasis at 21. I’m 58 now, which means I've been living with this for exactly 37 years.
If there were actually a cure, I surely would have found it by now, but unfortunately, neither I nor anyone else suffering from it has been cured...
Over all this time, I've tried everything under the sun—from pharmaceutical creams and ointments to every kind of alternative herbal remedy and healer you can imagine. Nothing worked. On my doctor's advice, I now just use neutral moisturizers to make life a little easier for myself and those around me.
In these 37 years of pure misery, I've spent a small fortune—not that I regret it—if only I had seen some actual progress.
My skin has become so thin, it's practically the thickness of cigarette paper.
I've handled my illness quite well, to say the least.
On top of the standard psoriasis, I developed erythrodermic psoriasis and psoriatic arthritis (who knows what else is coming), but if God is watching, even this feels like too much...
As someone dealing with this, I am a regular attendee at the Adriatic dermatology meeting, where the most famous names in dermatology gather from Athens, Istanbul, New York City, Montevideo, Vienna, Prague, and Munich. If they can't help me, I don't know who can...
To put it simply, psoriasis is a chronic, incurable disease.
In an effort to make life manageable, I haven't given up; I don't let it define me, because as I always say, hope for yourself as much as you hope for others.
I ask the sincere members of this Reddit community not to hold my occasional posts or my reactions regarding cures against me.
For now, I won't presume to write anything further on the topic of psoriasis unless someone specifically asks—which I doubt will happen, though one never knows. I'll be content just following this forum.
If anyone is absolutely certain they can cure me, please announce it publicly. In return, I'll sign over my house on the coast of the Mediterranean Sea, but first, show me proof that you've actually cured someone...
Kind regards.

Robert Clark2, please don't leave the forum!😕
I truly enjoy reading your posts; it's clear you have a very healthy perspective on your condition.

Because accepting this reality isn't the same as giving up. It's only through acceptance that the real fight begins...👍

Robert Clark2 said:I was diagnosed with plaque psoriasis at 21. I’m 58 now, so I’ve been dealing with this for exactly 37 years.
If there were actually a cure, I would have found it by now. Unfortunately, for me and everyone else suffering from this, there isn't one.
In all this time, I've tried everything—pharmaceutical creams, ointments, herbal remedies, alternative healers. Nothing worked. On my doctor's advice, I just use neutral moisturizers now to make life easier for myself and those around me.
Over 37 years of hell, I've spent a fortune. I don't regret the money, but I wish I had seen some actual progress.
My skin has become so thin it feels like cigarette paper.
I've handled this illness pretty well, to say the least.
On top of the plaque psoriasis, I developed erythrodermic psoriasis and psoriatic arthritis. Who knows what else is coming, but if God is watching, this is already too much.
As a patient, I regularly attend major dermatology conferences where the biggest names in the field show up from places like Athens, Istanbul, New York City, Montevideo, Vienna, Prague, and Munich. If they can't help me, I don't know who can.
Simply put, psoriasis is a chronic, incurable disease.
I'm trying to make life easier, so I won't give up. I'm not insecure about it. I always say, hope for yourself the same things you see happening for others.
I ask the honest members of this Reddit community not to hold my posts or my reactions regarding "cures" against me.
For now, I won't claim the right to post much about psoriasis unless someone specifically wants to hear it—though I doubt anyone will. You never know. I'll just stick to following the threads here.
If anyone is absolutely certain they can cure me, announce it publicly. In exchange, I'll sign over my beach house on the coast, but first, prove you've actually cured someone.
Kind regards.

Saosec, I respect you. Please don't leave the forum; keep sharing your experiences, however difficult they may be. Just trust the process and be patient. Things move slowly. Let's hope for God's will and that the members here who were the first to try the ointment find relief. Hopefully, it gets easier for everyone after that.
Don't sign over your house to anyone; nobody deserves it except your rightful heirs.
I suggest that once you are cured, invite the forum members over to your place for a little get-together—a mini seminar for former psoriasis patients.

Let's trust in the Lord's mercy.

Well, there you have it—that ointment actually worked for my little one. It’s a shame that what works for one person doesn't necessarily work for everyone else, but at least it isn't just snake oil. I’m currently using Psorex myself, which I pick up over in Little Rock. Even though it helped me before, it isn't clearing the skin on my hands right now; the redness is still pretty glaring. When I get worked up or stressed, things take a turn for the worse—I get this massive itch across my back and legs that gets so intense I end up scratching myself raw. Trust me, it isn't ideal. And yeah, God knows it’s expensive. No one will tell you that because you're selling a product, but honestly, if you want to help people, you can't just give it away for free when you have a family to support and bills to pay. Giving up a little money for it isn't an issue for me. The main thing is that it helps as many people as possible. 👍

Alright, figured I’d jump in here and vent about my own mess.
I’m honestly not even sure if what I’ve got is actually psoriasis, but looking at the symptoms, it’s a pretty safe bet. Basically, my skin gets these patches that flake off at the surface, and once they peel, the stuff underneath is bright red—and if you try to force the flakes off, it just turns into a raw scab. It mostly hits my elbows, behind my ears, all over my scalp, and a little bit on my back, leaving these weird white spots behind once it clears up. I’ve been using some hydrocortisone cream from CVS to deal with it, and while it works if I’m aggressive with the application, the second it clears up, a new patch pops up somewhere else. It’s like a game of whack-a-mole—one spot heals, another flares up, and there’s just no end in sight.🤣 🤣 These spots are always small, perfectly round, and uniform, which is weird. To be honest, I haven’t actually seen a doctor yet because, frankly, I’m terrified. I kept telling myself it would just go away on its own, but clearly, that was wishful thinking... it’s not life-threatening or anything, and most people don't even notice it, but it’s definitely an issue for me.😠
So, if anyone has any advice, please, help a person out.😘

You absolutely have to see a doctor! Honestly, I spent about a year just ignoring my own skin issues, pretending nothing was wrong, until things got so incredibly bad that I couldn't even bear to look in the mirror, let alone deal with the discomfort...

I mean, who knows? It might turn out to be nothing at all—God willing it isn't psoriasis—but you really shouldn't sit on this; getting some tests done is the only way to actually know what you're dealing with so you can finally start figuring out a real treatment plan!

Robert Clark2 said:I was slapped with psoriasis when I was just 21—specifically, generalized plaque psoriasis—and now I’m 58, which means I’ve been stuck in this battle for exactly 37 years.
If there were actually a cure, I’d be cured by now, but unfortunately, for me and everyone else suffering through this, there isn't one.
In all this time, I’ve tried absolutely everything under the sun, from high-end pharmaceutical creams and ointments to every weird alternative remedy suggested by herbalists and "healers." None of it worked. Period. On my doctor's advice, I just stick to neutral moisturizers now just to make life slightly less miserable for myself and those around me.
Over 37 years of pure hell and misery, I’ve burned through a literal fortune—not that I regret spending it—if only I had seen even a shred of actual progress.
My skin has gotten so thin it’s basically the thickness of a sheet of cigarette paper.
I’ve handled this disease pretty damn well, if I do say so myself.
On top of the standard psoriasis, I’ve also dealt with erythrodermic psoriasis and psoriatic arthritis (who knows what else is coming for me?), but honestly, if God is listening, this is already more than enough.
As someone dealing with this, I’m a regular at the American Academy of Dermatology conferences, where the biggest names in the field show up from places like Athens, Sofia, Belgrade, Podgorica, Vienna, Ljubljana, Prague, and Munich. If these geniuses can't help me, then who on earth can???
To put it bluntly, psoriasis is a chronic, incurable disease.
I’m not giving up, though; I’m trying to make life easier, and I refuse to let this thing define my self-esteem because I always say, "Hope for the best for others, and hope for it for yourself too."
I’m asking the honest members here not to hold it against me if I get blunt in certain posts or react strongly when people start talking about "cures."
For now, I won't take it upon myself to keep posting about psoriasis unless someone specifically asks—which I doubt they will—but hey, you never know. I’ll just stick to lurking and following this forum.
If anyone is absolutely certain they can cure me, go ahead and announce it publicly, and I’ll write you into my will—I'll leave you my house on the coast of the Mediterranean Sea—but first, show me some proof that you've actually cured someone.
Warm regards.

Dear friend Nebojša,
You’re more than welcome to just follow the forum, but if you leave us without your posts and your takes, this community is going to lose its edge. Your experience is incredibly valuable to everyone fighting psoriasis, especially the poor souls who have just joined our ranks. Even if you can't find a way to help yourself, you can still help others, and you can do that better than any of us. Because of your insight and what you've lived through, this forum stays a place where people can get real advice and the kind of support they actually need.

If my previous post made you feel like you shouldn't write anymore... well, I apologize, but even so, I was just speaking my truth—what I know, what I think, and how I feel.

Because, listen, if over these last 15 years instead of slathering on every cream imaginable, jumping from doctor to doctor, scouring libraries and the internet for any scrap of news on a cure, or running from herbalist to herbalist hoping for a miracle... instead of all that, I had just humbly and sincerely prayed to God for my neighbors, for the sick, for the hungry, for the suffering, for the downtrodden, for all of humanity, and even for my own healing... I am certain that today I wouldn't have even a single spot. If I had spent that time praying instead of chasing cures, I'm sure I wouldn't have psoriasis at all.

Nebojša, I wish you nothing but the best from the Lord, and I pray God grants you healing
just like He does for everyone else...

Here, take my hand!

jadesailor14 said:since you brought up omega oils
you can actually find that Doppel Herz Fish Oil 1000mg + Folic Acid + B6 + B12 + Omega 3 at basically any CVS or Walgreens around here now
I’ve been taking it for some other reasons, but honestly, it feels amazing on me... I'm usually super sensitive to all those different supplements because my stomach is just so finicky and everything makes me feel nauseous, but this stuff? Totally fine, no issues at all
Plus, those B vitamins are great for your skin too, so maybe it might help some of you out

I think the bottle with 123 softgels is a little under $27, and I usually take two every morning

just wanted to jump in here! I haven't been on the forum for a few days so I'm just catching up on everything... and yeah, I also use that Doppel Herz Fish Oil 1000mg + Folic Acid + B6 + B12 + Omega 3. Like I mentioned before, I pair the fish oil with beta carotene, and I drink two or three cups of pokeweed tea every single day, sipping it slowly, but then I also go out and pick fresh pokeweed every day and rub it on with calendula ointment, St. John's Wort, or even Vaseline—honestly, I have a whole house full of these greasy ointments, so whenever I walk past them, I just grab whatever and smear it on🙂 and if I get a chance, I'll hit the tanning salon once a week, though I haven't gone in about two weeks... I basically invented this entire therapy routine myself🙂 and I can tell you, I've been doing this for about seven weeks now and things have seriously cleared up, like, really cleared up... right now I just have some white patches and a bit of pink in a few spots. Oh, and a couple of times I actually applied the raw pokeweed juice directly, but when you put that on, the area turns black where it works on the scales, so I definitely recommend wearing long sleeves🙂 I didn't take any photos of how it looked before because, let's be real, I didn't think it would actually work, but I can show you what it looks like now. My skin is still a little rough in those areas, but I'm gonna keep at it and see what happens... I'll check back in later to let you guys know how it's going🙂 but I didn't really see any real progress until about the third week... for anyone who doesn't know, pokeweed is this plant that leaks this orange juice when you snap it, and people use it to get rid of warts and stuff, and since it grows like crazy near my house, I figured I'd give using it a shot... 😁 and yeah, that's just how it goes... 🙂
Kisses🙂

Look, I’ve been thinking about this whole emergence thing lately and honestly, it just feels like everyone is missing the point entirely. You see people buzzing about it like it’s some groundbreaking revelation, but if you actually sit down and look at the patterns, it’s pretty obvious that we’re just witnessing the inevitable result of chaos finally finding its rhythm. It’s not some magical spark out of nowhere; it’s just what happens when enough small, messy pieces start bumping into each other until they suddenly form something that looks like it has a brain. It’s like watching a massive storm roll in over the Atlantic—you don't see the individual molecules of water deciding to become a hurricane, they just collide and suddenly everything is different. People love to get all philosophical and high-minded about it, but let’s be real: it’s just complexity hitting a breaking point. It’s blunt, it’s messy, and frankly, most people aren't ready for how much control they actually *don't* have once these systems start moving on their own. kaže:
Look, it’s just not like that, okay? I totally get that you’re a believer and that’s how you see the world, but seriously, give some respect to atheists and agnostics once in a while.🙄

Look, since you all clearly can't handle my perspective or how I see things, I'm done—I promise I won't write about this ever again.

Look, I totally get it and I actually respect that this forum is strictly for people dealing with psoriasis—which, let’s be real, is exactly what I'm going through too—so we should keep the focus right where it belongs on the main topic.

I honestly can’t just sit here and stay quiet when I’ve seen people get healed from things that doctors call "incurable" right before the eyes of a saint—and don't even get me started on psoriasis, because I haven't heard of a single case being cured that way!

That's it. I'm done. From here on out, I am officially refusing to write about anything other than psoriasis on this entire section of the forum. Period.

wearywalker9 said:just jumping back in here because I haven't been on the forum for a few days and I'm just now catching up on all this drama.... look, I'm also on that Doppel Herz Fish Oil 1000mg + Folic Acid + B6 + B12 + Omega 3 regimen. Like I’ve mentioned before, I take fish oil along with beta carotene, and I'm sipping on two or three cups of celandine tea every single day, just taking small sips, plus I pick fresh celandine every day and smear it on with calendula ointment, St. John's Wort, or Vaseline—honestly, my house is practically overflowing with different ointments and salves, so I just grab whatever is closest and slather it on🙂 and if I can squeeze in a tanning salon session once a week, I do, though I haven't made it in two weeks lately. This whole routine is basically something I cooked up myself🙂 and I've been sticking to it for about seven weeks now and let me tell you, it actually worked, my skin is clearing up big time; right now I just have some white patches and a little pinkness in a few spots. I did try dabbing some raw celandine juice directly on the spots a couple of times, but fair warning: it turns the area black where it hits the scales, so you definitely want to wear long sleeves🙂 I didn't snap any photos of how bad it looked before because I honestly didn't believe it would actually get better, but I can show you how it looks now. My skin still feels a bit rough in those areas, but I'm gonna keep at it and see what happens... I'll check back in later to let you guys know how things are going🙂 but I didn't really see any real progress until about the third week... for anyone who doesn't know—celandine is this plant that leaks this bright orange juice when you snap it, people even use it to get rid of warts and stuff, anyway, it grows like crazy near my place, just a wild weed, so I figured I'd give it a shot.... 😁 and that's just how it is.... 🙂
kisses🙂

I know celandine can help, it helped my mom, but you seriously need to be careful with that stuff. Especially with the tea, because celandine is a naturally POWERFUL CYTOSTATIC! It acts cytostatically on the skin when applied topically, so you shouldn't be rubbing it on for too long, let alone drinking it!

Please, watch yourself, you could end up damaging your bone marrow and a whole bunch of other things.

Seriously, please go talk to a professional.

Oh, by the way... I tried rubbing some St. John's Wort oil on my scalp a few times before bed and then just washing it out in the morning, because honestly, that T-Gel stuff wasn't doing a single thing for me... I actually found that Vichy dandruff shampoo worked way better, but lately, I’ve switched over to this Acebon stuff from CVS—it was only like a couple of bucks, which is wild—and it's actually pretty decent... I'm not even applying anything to my scalp anymore and those flakes are slowly starting to disappear... I might even head to the salon soon😉 I've been avoiding getting my hair done for two whole years because of this mess... so, how are you guys all dealing with scalp psoriasis?

thanks Emergence...
I was digging through some books and apparently, this stuff is even touted as being helpful against cancer, though they don't really go into any side effects—other than the fact that if you overdo it on the tea, you might end up having some breathing issues, which sounds a bit scary... anyway, I’ve just been rubbing it on my skin a few times, maybe three or four passes, and starting today I decided to start mixing it into a herbal blend with chamomile, willow bark, oak bark, angelica, and a few other herbs meant for cleansing the blood, so I'll be sipping it diluted from now on. if you happen to have any more info on rosopas, let me know🙂

Robert Clark2 said:I caught psoriasis when I was 21—diagnosed with generalized plaque psoriasis—and I'm 58 now, so I've been dealing with this crap for exactly 37 years.
If there were actually a cure, I probably would’ve found it by now, but unfortunately, for me and everyone else stuck with this, there isn't one.
Over all this time, I’ve tried pretty much everything—from standard pharmaceutical creams and ointments to every weird alternative herbal remedy and "healer" you can imagine. Nothing worked. On my doctor's advice, I just stick to neutral moisturizers now just to make life slightly less miserable for myself and those around me.
In these 37 years of pure hell, I've spent a small fortune—not that I regret the money—but man, if only I had seen some actual progress.
My skin has gotten so thin it’s basically the thickness of a sheet of cigarette paper.
I’ve pretty much mastered dealing with this disease, though "mastered" might be an understatement.
On top of the plaque psoriasis, I developed erythrodermic psoriasis and psoriatic arthritis (who knows what else is coming next), but honestly, even if God exists, this feels like too much.
As someone living with this, I’m a regular at the American Academy of Dermatology conferences, where the biggest names in dermatology show up from places like Athens, Sofia, Belgrade, Podgorica, Vienna, Ljubljana, Prague, and Munich. If these people can't help me, then I don't know who can.
To put it simply psoriasis is a chronic, incurable disease.
I'm not giving up, though—I'm trying to make life easier, and I'm not letting it get in my head. I always say hope for the same things you see happening for others.
I'm asking the honest members of this forum not to hold it against me if I get reactive in certain posts or how I react regarding "cures."
For now, I won't take it upon myself to write much about psoriasis unless someone specifically asks—which I doubt they will—but hey, you never know. I'll just stick to lurking and following this forum.
If anyone is 100% certain they can cure me, go ahead and announce it publicly; I'll pay you back by signing over my house on the coast of the Mediterranean Sea, but first, show me proof that you've actually cured someone.
Kind regards.

There's nothing to blame you for, Robert Clark2. Honestly, your posts have always been solid and helpful, and the support you give everyone is great. So, I really don't support your decision to stop participating here—please, just keep writing. Much love.

Man, you really gave me a bit of a scare there...🙂
So, I think I'm gonna give it a shot and try having a cup of that blend once a day...🙂

...or maybe I'll just switch over to that ivy stuff😉...honestly, I’m just done with modern medicine at this point, because none of those prescription stuff they push has actually done a single thing to help me feel any better...

Here’s a situation that feels brand new to me, even though I know I’ve been here before regarding psoriasis. My psoriasis vulgaris initially showed up on my temples and in my ears, but after giving birth, it started flaring up in all the usual spots. Following some advice, I’ve started using honey, Psorex cream, and a lotion. Now, I’m wondering if anyone else has experience with these products, or if you might have some tips on how to get the best possible results... Since I really need to avoid direct sunlight right now, would it be wiser to just hold off on the treatment until autumn? It's a bit of a struggle because I have to go out in the sun to keep my little 15-month-old from losing his mind being cooped up indoors. Thanks!

Chris Morgan67 said:Robert Clark2, don't leave this forum!😕
I love reading your posts. It's clear you have a really healthy mindset about dealing with this.

Because accepting what you're going through isn't giving up! It's actually where the real fight begins.👍

🙂 thanks Emergence!
I'm not going anywhere. I'm not quitting the fight to fix this damn condition, either. I'll just keep doing my best to keep it under control.
The main thing is staying strong mentally. If you let your spirit break, then you've really lost.🙂
Kind regards!

Nancy White57 said:Here’s a new story that feels old when it comes to psoriasis. Basically, my psoriasis vulgaris started on my temples and in my ears, but after giving birth, it slowly started flaring up in all the usual spots. Following some advice, I started using this life honey, a Psorex cream (from a local brand), and a lotion. Now I’m wondering if anyone else here has tried this stuff and what you’d suggest for getting the best results... Also, since I can't be out in the sun, would it be smarter to just push the treatment off until fall? I have to get outside because my 15-month-old goes absolutely nuts being stuck indoors... thanks

So that might be it... how lovely😠—but honestly, it’s been the same exact thing for two years now, nothing's actually improving. Everywhere I manage to apply the stuff clears up, but the places I can't reach—like my scalp, since the cream ruins my hair—stay problematic. If you ask me, this whole psoriasis thing is psychosomatic... it's all tied to stress and that kind of stuff.😢

brightangler8 said:So, that could potentially be it... which sounds wonderful😠 but honestly, it’s been the exact same story for two years now, and I just can't seem to see any upward progress. It clears up where I can apply treatment, but then there are those spots I simply can't reach—like on my scalp, since getting cream through my hair is such a mess. I’ve started to suspect that this psoriasis might actually be psychosomatic; it feels like it's deeply tied to stress and all that.😢

And you aren't wrong about the stress part;
having my first baby has been anything but relaxing. When it was just limited to my scalp, I tried to reassure myself that at least it was in the best possible spot, even if things were feeling chaotic, but now I’m starting to panic because of the thought of having to undress. I really ought to start using those creams we mentioned earlier, but they have such an awful odor that I’m honestly not sure how I’ll manage to deal with it. Plus, $217 is quite a lot to handle......