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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 73 views · 2.3K replies

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Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1741 ·
Olivia Ramos66 is incredibly knowledgeable, and happens to be an expert in phyto-aromatherapy as well...😍

If you look up psoriasis on Wikipedia, you'll see it's classified as an immune system disorder—not because the system is failing, but because it's overreacting.

There's a common misconception that psoriasis stems from a weak immune system; in reality, it's quite the opposite. Your immune system is simply working too hard.

That's why flare-ups often happen when you get sick; your immune response ramps up to fight off a cold, which unfortunately triggers even more intense blistering across the skin...
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1742 ·
Michelle Parker3 said:But... maybe I'm just clueless about this psoriasis thing. Why doesn't it show up when my immune system drops? Every single time I get sick, it flares up or gets way worse. It can't be a coincidence... I don't get it...
If you don't mind me asking, how do you know all this?

Say hi to Stella for me.

There isn't one universal answer for psoriasis. What's a nightmare for one person might not affect someone else at all. A therapy that works wonders for one person might do nothing for another. Someone covered from head to toe might react the exact same way as someone with just a few spots. There are some general patterns, though. Stress is usually a trigger, and sunlight or being near the ocean can help—though even then, some people won't see any change.
Just like there aren't two identical people on this planet, no two cases of this disease are the same.

That’s why I think your best bet is to focus on pinpointing your specific triggers—the things that help you and the things that hurt you. Identify them, and then deal with them accordingly.

Later.
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1743 ·
Michael Ramos3 said:I’m just asking everyone to be careful—we have to look out for one another and stay away from anything that could actually harm someone's health.

Best,

I’d say it quite politely
you reap exactly what you sow here,😁

and I won't even touch upon those certificates of yours tonight,
since a certificate 🙄🙄🙄
Laura Green96 Laura Green96 Member
10 messages
joined Sep 2005
#1744 ·
I've got a specialized formula for sale that actually targets psoriasis and is proven to neutralize it. This is a custom liquid solution made strictly according to a specific recipe. I'm even offering a guarantee that it works, because I stand by it.
There are two different types available: one you apply directly to your skin and another one designed to be taken orally.
The topical version is $15 for a 100 ml bottle.
The oral solution is $20 for 100 ml.

🙂 advertising, banner rental 😉
Austin Parker95 Austin Parker95 Newcomer
2 messages
joined Jul 2011
#1745 ·
Robert Clark2 said:That’s why I’m encouraging our newest member Carol Patel85 to get involved here. Self-pity isn't going to help anyone; if anything, it just does more harm than good.

Hey everyone, thanks for the advice about moving past the self-pity phase, but I think you might have misread me a bit. It’s not like I’m sitting around in a dark room wallowing in misery. I live a full life. I’m in school, I work, I go out... Psoriasis doesn't stop me from doing what I want to do. I always push myself to reach my goals. The issue is that I know I would be much more successful at everything I do if I wasn't constantly fighting this massive wave of insecurity. I try to ignore it as much as possible, but it’s been around for so long. It’s deeply rooted and incredibly strong, making it almost impossible to fight off. I'm certainly not happy about it, and trust me, I am trying. But this feeling has been part of me for too long to just vanish or fade away overnight. Based on everything I've experienced, I don't think anyone—whether they deal with psoriasis or not—could really fix that for me.
Still, it's nice having a space like this where we can actually talk about these things. 🙂
Even a little bit of comfort goes a long way. 🙂
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1746 ·
Those comforts feel pretty thin when you're forced to avoid certain situations. Sometimes you can't just act how you want; you have to act how your brain dictates, driven by whatever is influencing it at the moment. It might get slightly easier as the years pass, but it’s never actually easy. At least, not for me. And once summer hits...
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1747 ·
Carol Patel85 said:Hey everyone, thanks for the advice on stopping the self-pity, but I think you might have misunderstood me. It’s not like I’m hiding away from the world in my own misery. I live a totally normal life—I'm in school, I work, I go out... Psoriasis doesn't stop me from doing what I want to do. I always push myself to hit my goals, but the real issue is this massive wave of insecurity that follows everything I do. I try to ignore it, I really do, but it's been around for so long and it's so deeply rooted that I just can't fight it off. I'm not happy about it at all, and believe me, I am trying, but it's been part of me for too long to just vanish or even fade away. From everything I've experienced, nobody else—whether they have psoriasis or not—could actually help me fix that feeling.
Anyway, it's still nice to have a place like this where we can talk about all of it. 🙂
Even a little bit of comfort goes a long way. 🙂

I totally get how you feel. I'm certain this illness has shaped who you are to some extent. Even I'm still trying to come to terms with having psoriasis, even though I developed it much, much later once I was already a fully formed adult.
I've accepted that I won't be able to do certain things I used to love, but it still sucks knowing that my appearance triggers confused or pitying looks sometimes. Or that in certain situations, I have to give a disclaimer like, "Just so you know, I have this condition, so don't expect this from me."
But since I'm relatively new to this, I guess it'll get easier over time.
Just wanted you to know that there are more of us who haven't fully made peace with it yet. 😉
Carol Harris3 Carol Harris3 Newcomer
1 message
joined May 2008
#1748 ·
Good day to you all; I thought I should check in after quite some time away. I haven't really had the heart to post lately, because whenever I find my way back to this sub-forum, I feel somewhat discouraged from sharing my own little updates when they sit sandwiched between two posts from "Michael Ramos3" that seem to take up half the screen each time...

To catch you all up, I first reached out last year regarding that Psorex cream I picked up from the Kajtezović herbal apothecary over in Bihać. I applied it to my elbows and certain patches of my scalp for about a month and a half. Currently, I have two small spots remaining on my right elbow, and a slightly larger area on my left forearm; however, a patch roughly 6x4 cm has actually split into two distinct sections, each about 1.5 cm wide, and after leaving it untreated for two months, there is now a one-centimeter strip of completely healthy skin between them. On my scalp, I can still feel one hard lump upon touch, though it isn't itching or spreading at the moment...
I decided to start applying it again just a week ago, and the results were visible almost immediately.
The cream has a bit of a scent, I must admit, but then again, we humans aren't exactly odorless ourselves, so we manage to get by... 😁

In the beginning, I was—to put it mildly—rather skeptical that a single woman like Suada could possibly be any wiser than a whole legion of highly educated pharmacists scattered across the globe. I eventually realized that she isn't trying to be smarter than them, as she doesn't even claim to know the exact chemical composition of the cream. Her primary ingredient is simply medicinal mud (which is very similar to the kind found near the Čižić family estate on Krk, and carries a similar scent)...

I don't feel much like writing more today, so my best regards to everyone.

Oh, I believe I've located the link to my previous post where the first part of this story begins...
Carol Harris3 Carol Harris3 Newcomer
1 message
joined May 2008
#1749 ·
Listen, I don't care if I'm just posting about some cream here and trying to convince you all... I know you're skeptical and probably think someone is just out to squeeze every last cent out of you, but truly, someone ought to give this a shot. It would be best if one of you—someone who posts frequently on this subforum and whom everyone actually trusts—could try it and then share their honest experience. For instance, I suppose I could serve as a willing guinea pig 😁.

I won't be popping up on this subforum much longer, so if anyone has questions, please just send me a private message. I'm active every single day over on the stock market forums, and frankly, I want to spend as little time as possible thinking about psoriasis or stressing over it...

Warm wishes to everyone; I know exactly what you're going through from my own experience. Just find a bus headed toward Bihać and ask the driver to pick up the cream for you. Believe me, it isn't worth a single penny of regret...

I found this information on

Last Name | First Name | Phone Number | Address
Kajtezović | Suada | (037) 312-602 | 22 BRANILAC 22 Bihać

Edit: When I mentioned that Suada doesn't know the exact composition of the cream, I was referring specifically to the makeup of the medicinal mud she uses...
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1750 ·
I’ve used this cream myself; I still have almost a full container left. I was taking that honey supplement alongside it, too. Personally, I don't mind the smell—it just has a herbal scent to it. You really need to apply it in a very thin layer because it’s potent. When I first started using it, combined with the honey, it actually worked for me. It cleared up almost everything. Later on, once things flared back up, I tried the cream and the honey again, but since my immune system had become resistant, it didn't work like it did the first time. I guess it’s one of those things that works for some people and doesn't work for others. Anyway, if anyone wants to give it a shot, shoot me a message and I'll send you my container. For free. I won't be using it anymore myself.
Henry Vaughn57 Henry Vaughn57 Member
10 messages
joined Jan 2007
#1751 ·
Dear forum members, regarding my fight against psoriasis🙂,
Checking in after a long hiatus—just to let you know, it hasn't come back, and frankly, I won't let it. What brought me back to the screen was a documentary I saw yesterday about the Ganges; it wasn't actually about the river, but the people living along it. Believe it or not, they've developed such resistance to snake bites that they don't even need antivenom—they claim even the children possess this "power of self-healing." Whether you buy that or not is entirely up to you.🙂
I was hanging around here last year—around April, I think—trying to explain what I did to myself and what treatments I used. Some people actually accused me of trying to sell them something for a profit. Honestly? It’s better this way—staying away from the negativity and the discomfort. I just didn't have the energy to explain that I lived with psoriasis for nearly 15 years, that I had to leave my job because of it, and that I fought for nothing. Over those years, I was like a guinea pig; there wasn't a cream in existence I hadn't tried, but it was all just temporary fixes.
Now, nearly a year later, it still hasn't reappeared. I'm incredibly happy with where I am—especially with my career and how much my outlook on life has shifted.
Since my last post, I happened to stumble upon two films—pure luck, really—and 🙏 I'm truly grateful to those who shared them! I still watch them today; they became my inspiration to change and work on myself. I'll go as far as to say the issue lies "within us" rather than "on us." You have to address the internal stuff—because once you solve the problem inside, trust me, there's nothing left to show up on the outside.
Self-control, diet, meditation, yoga, crystal therapy, homeopathy—anything alternative helps. Of course, in moderation, just like everything else in life; too much of a good thing will give you a headache.🙂 Oh, and I should mention that drink I supposedly wanted to "profit" from—I won't name the specific juice to avoid looking like an advertisement (again!), but I still use it daily and always will.
The only advice I have for you is to work on yourselves and your inner energy. It works. It actually works. Self-discipline is vital, especially when starting with your diet, but it carries over into everything. I wish you all the best of luck in getting rid of this for good.

Here are the links to those films. Unfortunately, they're just trailers, but they'll give you an idea of the message if you happen to find them.🙂))

The Secret ---------- http://de.youtube.com/watch?v=_b1GKG...feature=relate

What the Bleep Do We Know?---------- http://de.youtube.com/watch?v=Hi_UFS...eature=related

Best regards, 🙂
hollowraven78 hollowraven78 Member
11 messages
joined Aug 2007
#1752 ·
Good day to everyone else who finds themselves in the same boat regarding psoriasis. I haven't posted much over the years—for those who don't know, my American isn't quite perfect—but I really hope you can all make sense of what I'm trying to say here.
I actually live in the Czech Republic, where we have our own psoriasis forums, and reading through everything you guys post here feels just like reading the boards in the Czech Republic or even the ones in Poland.
It seems like everyone is dealing with psoriasis, and everyone is searching for anything at all that might provide relief; honestly, if a certain doctor had a magic cure, we’d all be lining up at their door! 🙂
I am a 56-year-old man, and I’ve been fighting this since I was a young guy in my early twenties. I spent more than ten years dealing with hospital stays, and I’ve tried everything from topical creams to old folk remedies and various doctors, but nothing seemed to work—if anything, things often felt worse after trying them.
Nowadays, I truly believe in modern medicine and pharmacology. I know it's incredibly expensive, and here in the Czech Republic, they don't just hand out these advanced medications to everyone.
In my opinion, the only real modern medical breakthroughs right now are biologics, like Enbrel, RAPTIVA, Remicade, and Humira. Everything else seems to just offer temporary relief from the immediate pain, whereas these modern drugs actually go a step further.
If you want to see how Humira works, you can check out this link: http://www.freewebs.com/psoriasis-humira. This first site shows how things were before starting Humira injections, and the subsequent sites show the progress after the injections and following the third dose.

I truly feel like my life has changed—100%. Now, I can actually socialize with people, I can go to the grocery store to buy bread, and I can shower without fear.
I don't know about you, but I feel there is a real need to push doctors and the Department of Health to make sure these medications are available in America so that patients suffering from psoriasis can finally get a fair shot.
Someone might ask, "Why is this guy writing to us?" Well, my dear friends, it's because we all face these same struggles. It's vital that the people in charge of running this world realize that psoriasis is a serious issue, and if they have the treatments available, they ought to provide them to the people.
Your PAT and MAT🙂👍☕
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1753 ·
hollowraven78 said:I’m not sure, but I think there’s a real need to pressure doctors and the Department of Health to import these medications to the US, giving those suffering from psoriasis a fighting chance.
Someone might ask why we’re even writing about this, but my dear friends, we share the same struggles. It is necessary for those at the helm, those directing this world, to realize that psoriasis is a serious issue—and if they have the treatments, they ought to provide them to the people...

👍👍

I completely agree with you. Our healthcare system seems designed to fail those of us dealing with psoriasis... they haven't even added Psorcutan to the Medicare formulary, let alone these newer treatments...🙄🙄
Mark Fox44 Mark Fox44 Member
17 messages
joined Jan 2008
#1754 ·
God! Here I am, spending a day back home in Umag. Tomorrow morning, I’m driving my lovely wife to her OB-GYN appointment—we’re actually waiting on our third little one 🙂! So far, I’ve completed 15 two-hour sessions, and while things are looking okay, there’s still a huge question mark over what happens once the therapy ends. To be honest, even though the skin peeling has dropped off drastically, the redness is still pretty intense, and I’m seeing little patches of clear skin popping up here and there. During the treatments, I stick strictly to a plain white base cream because the little fish are quite sensitive to scents. I’ve even shaved my head just so I can apply it there too, letting the little beasts do their work. According to the owners, the effects persist long after the sessions end; they claim they've seen cases where psoriasis cleared up entirely three months after stopping. They also suggest it might stay away for anywhere from one to five years. That would be incredible—I’ve honestly forgotten what it feels like to have clear skin, even for a moment. If my skin truly clears up, maybe I’ll even get some fish of my own and set up a little tub at home. Still, like every other treatment I've tried, I’m approaching this one with a healthy dose of caution! I’ll definitely check back in to report on the progress.
By the way, a few thoughts on those other treatment options being discussed. Last year, I stayed at the Trakošćan resort where some students of Zdenko Domančić were running healing treatments. My mom went there for her thyroid issues, and since I was the one driving her, I ended up trying the treatments myself. While I’m pretty skeptical about the actual efficacy of that kind of thing, you can't deny that it gives people hope for recovery. Personally, I didn't feel much difference in my skin. Regarding Psorex from Bihać, as I mentioned before, it worked for a while, especially on my scalp, but the big downside is the ban on sun exposure while using it. When I tried to go out in the sun anyway, the burns were absolutely brutal—I suspect it contains sulfur. Apparently, it’s registered in Canada and sold in pharmacies. As for Humira and those other monoclonal antibody injections, I don't have much solid info yet; I’ve done some digging online, but it feels like everything is still in the early stages and the side effects aren't fully understood. Eric Thomas75, regarding that medication: what exactly is it, who manufactures it, how do you get it, and who guarantees a cure? Maybe the uncle of Michael Ramos? Oh, speaking of which, our dear gold says: "Don't forget that online stores are the easiest targets for scams. What kind of certification do they actually hold?..." He’s just worried we’ll all get ripped off. To paraphrase a certain song lyric: "Nobody gets to beat you! Except me!" If it weren't so sad, it would be funny. A total self-goal! Regardless, happy birthday to you, and I truly hope you find your cure, heal, and see the light at the end of the tunnel! May you gently descend from your cloud of illusion (and from our forum, too!)
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1755 ·
Thanks for the kind wishes and congratulations.

Best,

With faith in God, carrying your own cross becomes a little easier.
hollowraven78 hollowraven78 Member
11 messages
joined Aug 2007
#1756 ·
Mark Fox44, you're absolutely right—that's all anyone really needs to go through. Here in the States, there are so many people constantly offering advice, but when it comes to those monoclonal treatments, we’re talking about years spent in hospitals. In my case, they actually held off on giving them to me because they were hesitant. But once other options failed, they finally started me on Humira. Honestly, I can say from experience that these biologics haven't had any negative side effects for me; if anything, all the topical creams they used to rub on me throughout my life did way more damage than Humira ever could. It's hard for me to fully express how bad things got—my English isn't perfect, so please bear with me—but I think these photos serve as proof. Now, I finally feel like a human being again, and without any side effects! And I have to say, Michael Ramos is onto something in one of his posts. If I hadn't believed it, even this Humira wouldn't have worked. For instance, back in the 1970s here in the US, they used to apply Psoriazin, which was a cream from Russia that actually contained Yperite—and yes, read that correctly, Yperite is the stuff from World War I. Even today, you still see people using Cignolin and Anthralin; those are just harsh chemicals that burn the skin and damage everything deep inside a person. Hospitals never really had high-quality options before, but now we've reached a point where modern medicines are being imported and made available. For me, Humira was a lifesaver. I dealt with erythrodermia for two months—which is basically the absolute worst kind of psoriasis with fever and inflamed skin—where you can't eat, you can't do anything, and you're just praying to survive. I truly believe God heard my prayers and helped me. I don't know exactly how it happened, really. And please, don't take this as propaganda; I know these specific medications aren't even widely accessible in certain places yet. Please don't view this as an advertisement, but rather as a bit of information for anyone going through the worst period of their lives with psoriasis: there is help out there. Have a wonderful day, everyone!
James Myers3 James Myers3 Newcomer
1 message
joined Jan 2008
#1757 ·
Hi everyone! I’ve been dealing with psoriasis for over 30 years now, and honestly, I’ve tried just about everything without seeing any real, lasting results. It’s always the same cycle—short bursts of improvement followed by a setback. What I find fascinating, though, is how much the sun and ocean helped me when I was a kid, yet now my skin flares up even worse during the summer. In the winter, my nails look fine, but as soon as the heat hits, they become totally deformed, and the redness and scaling on my skin intensify. One thing I know for sure (at least in my experience) is that alcohol, greasy foods like pork, sausages, and deli meats, canned goods, and heavy spices significantly trigger my flare-ups. This caught my attention because those are exactly the things you're told to avoid with liver issues. Has anyone else here connected liver function—or dysfunction—with psoriasis? I also find this interpretation of psoriasis quite compelling: it's described as a type of "armor" that exceptionally sensitive people put on out of fear
of emotional injury. Nothing gets in, nothing gets out; the boundary is perfectly secured. It represents the conflict between a longing for closeness and a simultaneous fear of it. Cracks and open wounds suggest we need to open ourselves up again, even if it means being vulnerable. Open yourselves up to life as it comes. Be ready to accept emotional pain and wounds rather than closing off from them out of fear. Just observe them, and the pain will subside. Let your feelings flow freely again. I’d love to hear your thoughts on this. Regarding the hyperactive immune system... why does it work overtime and produce skin cells in 3-4 days instead of the usual 30? To me, it feels like there's some kind of "false information" regarding an attack being constantly sent out—we feel perpetually under threat, so our system goes into overdrive to defend itself. It all makes sense. In various holistic teachings, the liver is also mentioned as the place where all emotions are "processed"—it’s why people say someone "was so stressed they nearly burst a gallbladder." It’s all very interesting, and it's possible it's true. Perhaps the reason it keeps coming back is that creams and topical treatments simply can't reach the mental or emotional root of the problem. Doctors tend to view psoriasis like any other illness, focusing on treating the symptoms. If the symptoms clear up, they consider the disease managed or even cured, and move on. But in my opinion, a cream can't fix the CAUSE; it can only perhaps ease the consequence. I believe aggressive therapies involving various ointments and chemicals can show results that last for years, but why does it always return? Because the cause hasn't been addressed. So many people say they developed psoriasis after a period of intense stress—doesn't that align perfectly with the interpretation I mentioned above? Personally, I’ve noticed my condition worsens during stressful times and improves during calmer, more harmonious periods of my life. That’s all from me. Feel free to share your thoughts if this interests you; if not, no worries... let's just keep moving forward. Cheers!
hollowraven78 hollowraven78 Member
11 messages
joined Aug 2007
#1758 ·
Hi James Myers3, I’m in pretty much the same boat. I’ve been dealing with psoriasis for about 50 years now, and even though some things helped when I was younger, nowadays I just can't handle much. I can't really go out in the sun, I can't enjoy the ocean, I can't stand the heat, and I can't deal with the cold either. Even working too hard can trigger a flare-up; it feels like everything just makes my psoriasis worse.
Regarding what people generally think about psoriasis, I suppose I agree that it’s all somewhat similar—if you start treating it with any medication, the psoriasis tends to find ways to defend itself and push forward.
It all comes down to the HLA B27 antigen. If you look this up online and read up on it, I guess you'll see exactly where this is headed.
This HLA B27 antigen is actually the starting point for several different conditions: 1. psoriasis, 2. Multiple Sclerosis, 3. Crohn's disease, and 4. a certain form of diabetes.
This antigen exists within us, and when it's functioning correctly, it acts as part of the body's information system. But if it’s faulty, this HLA B27 sends the wrong signals, causing the immune system to essentially attack everything around it. This means that if an infection enters the body, the HLA might signal that everything is fine, leaving the immune system unable to fight back properly. Or, conversely, if something beneficial enters the body, the HLA might flag it as an enemy, causing the immune system to launch an inappropriate defense.
That’s why I don't think there's much point in trying to boost the immune system; if you strengthen a broken system, it might actually make things worse.
Because of that, I suspect the only true way to find a cure for psoriasis, Crohn's, MS, diabetes, or even cancer, is through genetics—finding a way to actually fix this malfunctioning HLA B27.
Everything we have in terms of medication right now is really just assistance. It's just helping that faulty HLA B27 do what it wants, and eventually, it might manage to produce a response.
For us, the ocean and the sun used to help once, along with various creams, but after 20 or 30 years, that doesn't seem to work anymore.
As for these newer biological drugs like Enbrel, Humira, or Remicade—well, they are also just forms of assistance. They essentially clear away necrosis, which I guess means they help the body shed those damaged, necrotic elements from the inside.
So, for now, this is the only help available; it isn't quite a definitive cure for psoriasis yet.
Anyway, James Myers3, have you looked at these images showing how Humira works? You should take a closer look; there's a link right there.
I know a lot of people might not like what I'm saying, and here in the States, there are plenty of people who either don't understand the underlying mechanism or have different views. Personally, I've been battling this for 50 years, including over 10 years spent in hospitals—one stretch I was hospitalized for 14 months straight, and things were even tougher then.
But I always hold onto the belief that a real cure will be found one day. Until we are certain we have the actual cure, I suppose we just have to take whatever helps and keep the faith.

Best regards, your hollowraven78
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1759 ·
James Myers3 said:So many people claim they developed psoriasis right after a massive bout of stress—doesn't that line up perfectly with the theory mentioned above? Personally, I’ve noticed my skin flares up when life gets chaotic and clears up when things finally settle down into a more peaceful rhythm. Anyway, that's just my two cents. Feel free to weigh in if you find it interesting; if not, whatever... moving on. Cheers!

Well, I definitely got mine from stress. I'm actually the first one in my entire extended family to deal with it...
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1760 ·
hollowraven78 said:And let's be real—these new biologics, Enbrel Humira, Remicade... they're all just band-aids. They clear out the necrosis. Basically, they help the body kick out that rotten, necrotic junk from the inside.
For now, this is just assistance; we aren't talking about an actual cure for psoriasis yet.
Hey, >, have you seen these images showing how Humira actually works? Check the link for more.


How long does Humira actually keep psoriasis at bay when it shows up in "mild" cases?
From what I've gathered—and I'm still trying to figure out if it's widely available here in the States or coming soon—it seems like it's used for Crohn's disease, but I don't see anything about psoriasis mentioned anywhere.
Best,

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