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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 62 views · 2.3K replies

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Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1761 ·
This also applies to psoriasis, as it falls under the same umbrella of autoimmune diseases.

The FDA has approved the biologic drug Humira for treating Crohn's disease, and representatives from Abbott announced today that it should soon be added to the Medicare formulary.

Approval follows the drug receiving clearance for this indication back in February in the US, and more recently in June within the European Union.

Crohn's disease is a chronic inflammatory bowel disease that affects people of all ages, though it primarily impacts younger individuals, typically those under forty. While various treatment options exist, the disease still cannot be fully cured through medication or surgical means...

Humira was approved for Crohn's disease based on several studies demonstrating its effectiveness. A major benefit for patients is the ability to self-administer the treatment at home rather than requiring hospital visits, and it has shown positive immunological responses.

Up until now, Humira has been approved in the US for rheumatoid arthritis, ankylosing spondylitis, and psoriatic arthritis. The price per box is $2.50.
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1762 ·
James Myers3 said:Hey everyone! I've been dealing with psoriasis for over 30 years now. I've tried absolutely everything under the sun and nothing really sticks. It’s always just temporary relief before it all flares up again. Interestingly, the sun and ocean used to help me a ton when I was a kid, but now summer actually makes things worse. My nails are fine in the winter, but as soon as the heat hits, they get totally deformed. The redness and scaling on my skin also ramp up. One thing I know for sure—at least for me—is that alcohol, greasy foods like pork, sausages, deli meats, canned goods, and heavy spices make everything much worse. That caught my attention because those are the exact same things you're told to avoid with liver issues. Has anyone else connected liver function, or liver dysfunction, with psoriasis?

Plenty of people have linked liver dysfunction to psoriasis. 😉 In fact, one of the first tests my doctors ordered when they suspected my diagnosis was a liver panel.
Also, is anyone planning to try Humira?
hollowraven78 hollowraven78 Member
11 messages
joined Aug 2007
#1763 ·
It seems like the web link isn't working properly to provide an answer—there are probably just too many people on the forum right now! Here is my response for Michelle Parker3:
I’ve been using Humira for about a year and a half now, and you can see how things are looking in the link above. In certain parts of Europe, they have actually used these biological preparations for about five years because they collaborated on developing these specific biologics. So far, it's known that they haven't caused harm to anyone. For patients with Crohn's disease, they offer injection applications for long-term management, and for those dealing with psoriatic arthritis or Psoriasis, these injections are given over three-year periods. In my case, I was in a really bad way, and this truly helped me. I actually lost two friends at our local hospital who were struggling with psoriasis; it’s such a shame they didn't get to experience this medication.
For certain types of psoriasis on the arms and legs, it clears up within about a month of using these treatments. After that, there's usually a six-month break, and if it starts to flare up again, you simply start the injections once more.
One thing that is definitely better for hospitals and the entire healthcare system is that patients don't need to be hospitalized. It saves on the use of corticosteroids, which are quite expensive themselves, and that's one of the main advantages of these preparations.
What happens if a patient?? 👍
I don't think we even need to overanalyze this, ☕ so feel free to just go grab a coffee! ☕
You can certainly enjoy a drink or eat whatever you like.
I honestly believe this is the best kind of support a patient can receive.
In my opinion, while this medicine might not be a permanent cure for psoriasis yet, it is arguably the safest and most reliable option ever introduced into the healthcare system.
Furthermore, the production of future drugs will likely depend on these, focusing on genetics, which might eventually allow us to treat multiple diseases simultaneously alongside psoriasis.
I'm sure Enbrel, Remicade, RAPTIVA, and Humira will become standard in your local dermatology clinics soon. Of course, the price is incredibly high, so the government will have to recalculate the budget, but let's face it: it's much better to pay for these injections than to pay for hospital stays, beds, and all the associated costs. When you add it all up, the total cost of hospitalization is just as painful as the price of the medicine itself.
I was prescribed Humira by my rheumatologist for psoriatic arthritis, whereas dermatologists mostly prescribe Enbrel, RAPTIVA, or Remicade. They are all based on a similar foundation, just with slightly different monoclonal components.
And just for Maria Chavez55, I wouldn't say you shouldn't try this; it has been tested worldwide for over five years now, and so far, there haven't been any major issues.
Best wishes to everyone, and let's go grab that coffee! ☕
goldenstag213 goldenstag213 Member
32 messages
joined Jan 2007
#1764 ·
From what I can gather looking at the link > shared, it seems like Humira initially showed some truly impressive results, but then after just a few weeks, the psoriasis flared right back up—and not even in the same spots, either. It’s appearing in a completely different way now, which leaves me feeling a bit lost as to whether the treatment is actually still ongoing or if we should be expecting any specific kind of outcome at this stage.

P.S.
>, did you happen to dig up any information regarding how much this medication is going to cost us here in the States? And more importantly, do you think our "beloved" local dermatologists will even bother prescribing it via insurance, considering the drug is technically only FDA-approved for treating Crohn's disease?

Best regards to everyone,
☕
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1765 ·
goldenstag213 said:P.S...
Chris Morgan67, were you able to find any information on what this drug will cost here in the States? I also wonder if our local dermatologists will even be willing to prescribe it, given that it's only FDA-approved for Crohn's disease...

Hello everyone...
☕

The price per box for this medication is... $2.50.

Knowing the "ethics" of our doctors and pharmaceutical companies—barring a few rare exceptions—they’d probably prescribe you poison if your bank account was full enough...😁 Based on that, I suspect there won't be any real obstacle to using this for things other than Crohn's disease... I imagine you might even be able to pick it up without a prescription...
Gary Gonzalez93 Gary Gonzalez93 Newcomer
2 messages
joined Jan 2008
#1766 ·
Hi there.
Since 1993, I’ve been battling psoriasis that once covered 90% of my body. I cycled through every conceivable cream, lotion, gel, and shampoo on the market—most of them high-end, expensive brands that promised the world but delivered nothing. That struggle dragged on until '97, when I met an older woman who insisted that bathing with sage tea was a highly effective way to suppress and clear psoriasis.
With my options running dry, I decided to give it a shot. Six months later, I could hardly believe it: my skin was completely clear, without a single spot or scale left. I wanted to document the preparation and application process here so you can try it yourselves.

1-Boil 1 liter (or less, if needed) of water, then remove it from the heat. Add one or two tablespoons of edible SALVIA tea (use 1-2 tablespoons per liter of water). Once combined, cover the pot and stir occasionally while letting the liquid cool to a comfortable temperature for soaking the affected areas.
2-Shower first to ensure your skin isn't oily, then dry yourself thoroughly.
3-Apply the brewed tea by rubbing it in or pouring it over the psoriasis, and let it air dry without wiping it off. Ideally, this treatment should be done right before bed, every single day until the psoriasis has fully receded. After that, you can scale back to once a week.

It worked for me, so I hope it does the same for you.
hollowraven78 hollowraven78 Member
11 messages
joined Aug 2007
#1767 ·
goldenstag213 said:From what I can see in the link provided by hollowraven78, it looks like Humira showed fantastic results at first, but then after a few weeks, the psoriasis came back—and even popped up in different spots and seemed to look a bit different too. I'm not entirely sure if the treatment is still ongoing or what kind of results we should be expecting.

Good evening!
Hey there! So, that first photo shows how things looked leading up to this date; I've been dealing with this for many years, and if you read back through my previous posts, you might get a better sense of the journey. I actually have photos documenting the effects of every single injection, though I can't upload them all here because of the server space limits.
The second image shows the progress after three injections, and things were moving in the right direction. However, my HLA B27 antigen flared up, which caused the psoriasis to act up again, so they had to add some Medrol and an additional ointment to the mix. My case of psoriasis is pretty complicated, and I honestly feel so blessed that it’s working this way for me; otherwise, I don't think I would have made it this far without these injections. I suppose this means that for people with less severe cases, these biologics might work even more effectively than they do for me. I was being open by sharing those photos where the psoriasis reappeared, but I am pushing forward with these injections. As long as Medicare keeps covering them, that's what matters. I don't know what the future holds, but I'm trying to get my affairs in order at home just so everything is settled if anything ever happens. You just have to take life as it comes, I guess. 🙂
One thing is 100% certain: these preparations really do help, even for those who have it all over their bodies. Tomorrow, I'll take a photo after my 40th injection and post a web link for you all. Just hang tight for a bit—why don't we go grab a coffee? ☕
hollowraven78 hollowraven78 Member
11 messages
joined Aug 2007
#1768 ·
Gary Gonzalez93 said:Hi there!

1-Boil 1 liter or less of water (adjust as needed), take it off the stove, and add one or two tablespoons of Sage tea (about 1-2 tablespoons per liter). Once you've done that, cover the pot and stir it occasionally while letting the liquid cool down to a comfortable temperature for showering (Soaking) psoriasis.
2-Take a shower first so the skin isn't oily, then make sure to dry yourself off thoroughly.
3)-Rub the brewed tea well (or pour it) over the psoriasis and let it air dry without wiping it off. I guess this treatment should be done (if possible) right before bed, every single day until the psoriasis fully clears up, after which you can just do it once a week.

It really helped me, so I truly hope it helps you too!

Hi Tom, if I may ask, could you please provide the Latin name for Sage? If some people don't recognize it by its common American name, I'd love to post this recipe here on the American psoriasis forum using the scientific term.
If we want to tackle psoriasis on a global scale, we have to fight it together internationally!

Also, a quick question for all my fellow psoriasis forum members: what would you think about having a dedicated psoriasis forum available in multiple languages?? Like Spanish, French, German, and others? A friend and I are actually working on a brand-new forum and portal specifically for psoriasis here in the States. For now, we have versions ready for a few different languages, but we're looking to expand further.
http://www.psoriazis.info
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1769 ·
hollowraven78 said:Could you include the Latin name for Sage? [/URL]

Sage, or specifically, Salvia officinalis!
Mark Fox44 Mark Fox44 Member
17 messages
joined Jan 2008
#1770 ·
God! I’m finally back after those three weeks of fish therapy treatments. I don't want to get ahead of myself and claim too much just yet; I really need to wait out the next few weeks to see how quickly the scaling returns, how much those affected patches fade, and just how long the clear skin actually stays clear.🤷
Regarding all this talk about these newer drugs (those monoclonal antibodies), I decided to put in a little legwork and do some digging on Google:
-So far, five drugs of this type have been developed: "Raptiva" (efalizumab), "Enbrel" (etanercept), "Remicade" (infliximab), "Aleve" (alefacept), and "Humira" (adalimumab).
-Patients have shown impressive, safe, and consistent responses to etanercept therapy. Having set records in treating psoriatic arthritis, etanercept was actually the first of these new biologics to address the full spectrum of psoriasis.👍
-While biologists noted several side effects during short-term studies, we still don't fully know what the long-term safety profile looks like for patients.🤔
-Since these products first hit the market, there have been reports of serious infections, thrombocytopenia, anemia, new or worsening psoriasis or psoriatic arthritis, severe neurological issues (like multiple sclerosis and/or optic neuritis), and significant blood disorders...👎 It's still anyone's guess whether any specific one of these medications is the culprit behind those problems.😕
-Because these drugs are immunosuppressants, they do carry a potential risk of increasing susceptibility to infections or tumors.😲 That said, the most frequent side effects are "just" things like headaches,😵 nausea,🤮 common colds, fever, and muscle aches.
I found this data in published research covering over 400,000 users worldwide, but since the percentages are presented quite vaguely, I can't really form a definitive opinion. In any case, we really have to wait and see what the long-term effects turn out to be.
P.S. Thank God the handball championships are over; it’ll be nice to have a little less stress!
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1771 ·
Hey everyone, especially @phyto, could you do me a huge favor and check out this page? Seriously, take a look at those before and after photos KALAWALLE .
I’m sitting here wondering if ordering this was actually worth it. I already pulled the trigger and placed my order, so now it's a waiting game—fingers crossed it actually arrives and isn't just more money down the drain! Just please, look at those pictures. Sending good vibes to everyone!

http://www.organichope.com/english/psoriasis.php
hollowraven78 hollowraven78 Member
11 messages
joined Aug 2007
#1772 ·
jadesailor14 said:Sage, or Salvia officinalis, scientifically speaking.

THANK YOU for the tip about Salvia! 🙂 I actually know someone heading out to the garden today, so I’ll try to get some to test out.

I just uploaded a fresh photo to http://www.freewebs.com/psoriasis-humira.
I am currently at day 544 since starting my course of 40 Humira injections, and honestly, I haven't encountered any issues so far. As for that sensation of warmth in the muscles—I think that's perfectly normal for me, especially since I spent three years feeling constantly chilled. Now, I feel so much better that I can practically walk around barefoot in the cold without feeling the freeze! It's such a relief.
You might notice a tiny bit of a flare-up in the photo, but compared to what I was dealing with before, it’s absolutely nothing. For me, this feels like true freedom and a whole new lease on life.

Best wishes to everyone!
Gary Gonzalez93 Gary Gonzalez93 Newcomer
2 messages
joined Jan 2008
#1773 ·
Has anyone here actually tried the sage tea therapy I outlined?
If you have, please let me know how it worked for you!
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1774 ·
Robert Clark2 said:Hey everyone, I’m asking all you folks here—and specifically calling out phyto—to please take a look at this page. Seriously, check out those before and after photos they've posted; they're pretty eye-opening. KALAWALLE .
I honestly have no clue if ordering this stuff is actually worth it—but hey, I already pulled the trigger, so now we wait. I’m sitting here wondering if it’ll even show up or if I just flushed my hard-earned cash down the toilet... again. Seriously, take a look at the photos I attached so you can see what I'm talking about. Fingers crossed. Best to everyone.

If you’re looking for some insight into dealing with psoriasis, check out this page over at Organic Hope—it's worth a look if you're tired of the usual runaround. Dealing with psoriasis isn't just about a skin condition; it’s one of those things that really messes with your whole sense of well-being—your confidence, your comfort, all of it. It can feel like a constant battle against your own body, which, let's be honest, isn't exactly a fun fight to be in. You end up scrolling through endless forums and reading conflicting advice—one person swears by a specific cream, another says stay away from certain foods—and it just gets overwhelming. The thing is, there's no magic wand. I wish there were—I really do—but most of what we see in mainstream medicine feels like a temporary patch rather than a real solution. You get prescribed stuff like Anthralin or maybe some heavy-duty steroids, and while they might knock back the redness for a minute, the underlying issue stays right where it was. It’s a bit of a cycle—treat, flare up, repeat. What I find interesting about the approach here is the focus on a more holistic perspective. It's not just "slap some ointment on it and move on." It’s about understanding how everything connects—what you're eating, your stress levels, and how your internal systems are actually functioning. It's easy to forget that the skin is basically just a mirror for what's happening inside us. If things are a mess on the inside, the outside is going to reflect that—plain and simple. It’s definitely not a quick fix, though. Anyone telling you otherwise is probably trying to sell you something. But if you're willing to dig a little deeper and look at things beyond just the surface level, there might be some actual paths forward. Just take it slow, do your own research, and don't feel like you have to follow any single piece of advice blindly. We're all just trying to figure this stuff out as we go.

Hey Robert Clark2, I see you're out there hunting for a cure—honestly, it’s great to see you haven't lost hope yet. Looking at those photos, the progress looks massive, but you have to wonder if it actually translates to real life... I mean, you really ought to double-check that from a few different angles. Since the manufacturer is the one doing all the heavy lifting with the advertising, it makes you question if the results are truly that dramatic in practice. Anyway, since you went ahead and ordered it for yourself, I really hope it does the trick—but hey, if it doesn't work, we just keep moving forward.🙂
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1775 ·
rapidpanther41 said:if not, we just keep moving forward.🙂

Best wishes to you all!👍

I had a friend look into it for me, but now I’m sitting here wondering if they’ll actually pull the trigger and buy it. It's nowhere to be found in the pharmacies—at least not in the ones they checked.
Honestly? The thing that gave me the most hope was seeing a photo of a woman who had undergone a mastectomy using this stuff. If she could make it work, I can too.

I told them right away: even if it doesn't work, so what? It's not like it's my first time throwing money at something that doesn't pan out.😉

But hey, I’m not giving up. And I don't let psoriasis get under my skin too much because, like the saying goes, hope dies last.☕

Stay healthy!
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1776 ·
Robert Clark2 said:Best regards to you all!👍

I actually had a friend look into this for me—now I’m just sitting here wondering if they’ll actually pull the trigger and buy it, since it's nowhere to be found in local pharmacies, at least not in any of the ones they checked.
To be totally honest, what gave me the most hope was seeing a photo of a woman who had a mastectomy—if she could find relief using this, then hey, maybe there's a chance for me too.

I told them right away: even if it doesn't work, whatever, it's not like I'm going to be the first person to throw money down the drain.😉

But I'm not throwing in the towel—and honestly, I try not to let the psoriasis get under my skin too much, because like someone once said, hope is the last thing to die.☕

Wishing everyone health and wellness,

I did a little digging on Google and managed to track down where you can actually get KALAWALLE, but man, the price tag is steep----- I'll let you guys be the judge of that.
http://www.americanlifestyle.com/the...cat=1989&cat=1
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1777 ·
rapidpanther41 said:I did a little digging on Google and finally tracked down where you can grab some Kalawall, but man, that price tag is brutal—take a look for yourself!
http://www.americanlifestyle.com/the...cat=1989&cat=1

Hey there!

Thanks for the help! I'm seeing that prices in Canada are seriously steep—almost double what they are in Austria. Over there, a bottle of 120 capsules meant for psoriasis (since you take four a day) only runs about $26. So yeah, huge difference!

Those ones from Canada come in 90-capsule bottles. They're actually specifically formulated for treating arthritis because the ratio of Polypodium extract to rhizome is different.

Thanks so much for listening! Much appreciated!👍
Carol Wright4 Carol Wright4 Newcomer
8 messages
joined Aug 2008
#1778 ·
Hey everyone,

So, I started using Tianshi supplements about two weeks ago. Their routine for psoriasis is broken down into three stages—basically three different sets of products. Right now, I’m just working through the first group. Honestly? I can already feel things improving. That unbearable peeling is finally backing off and my skin is looking better, but I’m nowhere near finished yet. I'm sticking with it...

Check it out here: www.tianshi.savjeti.com
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#1779 ·
Carol Wright4 said:Hey everyone,

Two weeks ago, I started on some Tianshi supplements. For psoriasis, you go through three stages—basically three different sets of stuff. I'm on the first stage right now. It’s helping, honestly. That unbearable peeling has finally calmed down and things look better, but I'm far from finished. Moving on to the next phase...

Check it out here: www.tianshi.savjeti.com

So, what’s the kickback? How much are they paying you to run ads like this?
Robin Robinson8 Robin Robinson8 Newcomer
7 messages
joined Jul 2008
#1780 ·
Michelle Parker3 said:How long does Humira actually clear up psoriasis when it shows up in a "mild" form?
From what I've gathered—and it might be available here or coming soon—it doesn't seem to mention anything about treating psoriasis when used for Crohn's disease?
Best,

None of those medications are really intended for "mild" cases of psoriasis.
They’re mostly used when you're dealing with a combination of psoriasis and psoriatic arthritis.

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