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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 65 views · 2.3K replies

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silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1721 ·
I’d say it hits harder when you deal with it during the day. You end up marked immediately, and dealing with that kind of visibility is just unpleasant. Honestly, once you’ve built some actual character and maturity, you tend to approach things differently; you aren't just caught up in youthful nonsense, which is a hell of a lot better than facing these issues. Even now, it still bothers me, though my perspective has shifted a bit over the years. Still, it’s never something I can just shrug off. It’s always a nagging thorn in your side—some days more than others.
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1722 ·
It’s actually pretty great seeing more people joining the conversation here—it feels like we're finally building a real community where we can swap stories and actual results. We aren't just talking about managing the physical symptoms of psoriasis, either; we're helping each other navigate the social side of this whole mess, too. Honestly, if you're looking for a hand, you'll find it here—and by participating, you're probably helping someone else out without even realizing it. We’re making progress every single day, fighting to hold onto our dignity while some scammers try to sell us overpriced snake oil... though, let's be real, those folks usually just wander into these threads while they're lost in their own dark clouds anyway.😉
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1723 ·
When I first got this thing, it would flare up on its own—I wasn't even treating it because I didn't realize what I was dealing with. But over the last year? It’s been getting more intense. To make matters worse, I feel like I’m building up a resistance to those cheap, useless creams that used to work for me. Is it normal for this stuff to just keep spreading? Honestly, it feels like things get worse every single time...

p.s. I know this question has probably been asked a million times already, but there’s way too much content here and I can't keep up with reading everything. Can anyone just give me a rough idea of how long phototherapy actually takes to clear this up?
thanks in advance 🙂
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1724 ·
Don't go thinking there are any guarantees here. That’s the whole damn problem with this stuff—there isn't one single thing that works for everyone. For some people, it clears everything up; for others, it does nothing at all, or worse, makes things a mess. I learned that the hard way back when I was living near Phoenix. It's been ten years since then, and nothing has helped me more than coal tar ever did. Personally, it started acting up on my fingers and wrecking my nails. On my feet, I've got three spots affected; one is basically a lost cause, while my two big toes are somehow still hanging on. I also developed an immunity to these ointments, though I never really stuck to a strict routine. The issue is the same if I get wet or scratch my hands—say, after a minor scrape heals, a visible mark is left behind in its place. It isn't technically psoriasis, but the scarring is obvious enough that you have to be careful not to scratch or trigger a flare-up. Dealing with this is honestly impossible.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1725 ·
Michelle Parker3 said:p.s. I know this has probably been asked a million times already, but there’s just too much content here and I can't get through it all. Could someone please tell me roughly how long it takes to clear up using phototherapy?
Thanks in advance 🙂

Using Psorcutan alongside daily therapy sessions for 2–3 weeks, you might stay "clear" for about six months to a year... at least, that was my experience.

But you have to accept that you'll always have a few spots left over and won't be permanently clear.

And phototherapy itself isn't entirely risk-free if you have significant sun damage, as it can increase the risk of skin cancer.
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1726 ·
Thanks, everyone!

It’s honestly unreal how many different medications they can find for everything else—yet when it comes to this useless junk we're stuck with, there's absolutely nothing...
I was browsing online and stumbled upon some Anthralin = dithranol = that supposedly helps clear things up for at least a year, but I doubt we can even get our hands on that here in the States yet...
Either way—it's a total disaster. But what do you expect?
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1727 ·
Michelle Parker3 said:It’s honestly hard to believe how much research goes into finding cures for everything else, while our situation remains completely ignored...

Psoriasis is an autoimmune condition, much like arthritis or multiple sclerosis...

As of now, there isn't a definitive cure for any autoimmune disease...
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1728 ·
Look, I’m no medical expert—not by a long shot—but things are finally starting to click for me. I've been dealing with constant joint pain my entire life, and for years, doctors just looked at me blanked, unable to pin down what was actually happening. Then, along with these empty psoriasis sores, I realize psoriatic arthritis might be the culprit. Still, I need an official diagnosis to confirm it all.
Anyway, I'm currently trying out this fasting diet, so we'll see if it actually makes a difference or if it's just more wasted effort.
Mark Fox44 Mark Fox44 Member
17 messages
joined Jan 2008
#1729 ·
Hello everyone! I'm currently undergoing therapy with Garra rufa fish. It’s been one week since my first session, which means I’m about a third of the way through (day 21). Each daily treatment lasts two hours; I just lie there in a 180-gallon tub surrounded by about 150 to 200 little fish. Since they don't have teeth, the sensation on my skin is quite peculiar. For the first two days, I was practically dying of laughter every time they started cleaning around my waist, though the sensation isn't quite that intense anymore. During those first three days, the itching was pretty severe, and both yesterday and today the redness has actually flared up a bit. That said, I've heard that things should start looking up and the redness should begin to subside around day eight. I'll be sure to check back in with the results once the therapy is wrapped up!
Welcome to all our new members! Carol Patel85, self-pity doesn't get us anywhere—it honestly just makes everything worse. Personally, I was born with a bit of a head start on life's challenges; I went through six major surgeries before I was even 17, and then psoriasis hit me hard at 22. Despite all that, I still manage to stay positive and optimistic. The fundamental thing to realize is that everyone carries their own heavy burden, and you're the only one who truly knows how much yours weighs. So, let's keep moving forward with a smile! Tomorrow is a brand new day!
Michael Ramos3, considering our average salary here is three times higher than what you're used to, our local herbalists ought to be charging at least $200 for similar preparations! It seems nobody here has quite connected those dots yet, which is why I keep bringing it up! My math is based on the idea that you're paying the herbalist for their expertise and their time, while the herbs themselves are essentially free! Well, unless you're mixing in something non-natural, of course. And frankly, if you look at the statistics for user recovery on this forum, the success rate is abysmal, and about 20% (that's 1 out of 5!) ended up in the hospital! He-he-he!
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1730 ·
Hey everyone. No matter how old you are when psoriasis hits, it’s a massive blow to your self-esteem with lasting effects. It’s even tougher if you get it young, like during childhood. Older folks seem to adapt to living with it faster, while kids really struggle with those marks—it's like watching life pass them by. That’s why I’m encouraging our new member Carol Patel85 to jump into the discussions here. Self-pity won't help anyone; honestly, it just does more harm than good.
Michelle Parker3, since you're dealing with psoriatic arthritis alongside rheumatoid arthritis, it all feels like the same battle anyway. Your best bet is getting both a dermatologist and a rheumatologist to team up on your diagnosis.
I already ordered my 6th bottle of Kalawallai. One bottle has 120 capsules, which lasts a month, and it's about $40 in the USA.
I'd love to hear what you guys think, but first, check out this link: WWW.organichope.com. It has about twenty before-and-after photos from people using Kalawallai.

Best!
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1731 ·
I just scrolled through the page—honestly, those photos don't even look like they're from the same person...
I mean, it’s probably worth a shot regardless. You might as well believe in the results if it can't hurt, especially if we're talking about boosting the immune system and all that stuff...
But after seeing those pictures? I'm feeling pretty lucky that my symptoms are showing up on such a tiny scale.
Anyway, good luck. Let me know if you see any progress.😉
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1732 ·
Robert Clark2 said:Hi everyone. No matter how old you are when psoriasis hits, it’s a massive blow to your self-esteem with lasting consequences. It's even worse if it happens early in childhood. Older folks tend to adapt faster, but kids really struggle with those marks while watching life pass them by. That's why I'm encouraging our new member Carol Patel85 to get active here on the forum. Self-pity won't help anyone; it actually does more harm than good.
Michelle Parker3 On top of psoriatic arthritis, you're dealing with rheumatoid arthritis too. It's all hitting you at once. You really need a dermatologist and a rheumatologist to coordinate your diagnosis.
I already ordered my 6th bottle of Kalawallai. One bottle has 120 capsules and lasts a month, costing about $40 USD.
I'm asking for your thoughts again, but please check this link first: WWW.organichope.com. It has about twenty before-and-after photos from the Kalawallai treatment.

Srdacan pozdrav!

Robert Clark2, I personally wouldn't comment on those photos. Mostly because I've learned the hard way that "before and after" ads often use different people entirely. Now, I don't trust anything until I see it with my own eyes or feel it on my own skin. But, I truly wish you the best of luck with this treatment. 🙂

Mark Fox44, wishing you lots of luck and success with the fishies too! 🙂
Timothy Jackson6 Timothy Jackson6 Member
16 messages
joined Feb 2008
#1733 ·
Mark Fox44 said:Hey everyone! I’m currently doing the fish therapy with those Garar little guys, and it’s been a week since my first session, so I’m about a third of the way through (day 21).

Are you hanging out in Santa Barbara or San Francisco?
My wife went to Santa Barbara once and was actually pretty happy with it for a bit, but then we headed out for a ski trip that year and I guess the cold weather just triggered a flare-up or something, making everything come back faster.
Anyway, I'm hoping to head back out there sometime this September.
So, keep me posted on how things are going for you...
Catch you all later 👍
Zachary Castillo7 Zachary Castillo7 Member
16 messages
joined Jun 2008
#1734 ·
Michelle Parker3 said:Thanks everyone!

I honestly can't believe how much money they find for certain drugs, yet there's absolutely nothing for this garbage we have to deal with...
While browsing online, I came across Anthralin = dithranol = which supposedly helps clear things up for at least a year, but I doubt we can even get it here in the States yet...
Either way—it’s a disaster! But what can you do?

Anthralin = dithranol = is actually available here in the US. A doctor just writes you a prescription, and then the pharmacy compounds it for you.
Here is some info on how to use it:http://www.farmakologija.com/materia/d_ap.htm

http://en.wikipedia.org/wiki/Dithranol
Zachary Castillo7 Zachary Castillo7 Member
16 messages
joined Jun 2008
#1735 ·
Michelle Parker3 said:I just checked the page, but those photos don't even look like the same person...
Regardless, it’s worth trying and believing in results. It can't hurt, especially if it's for boosting immunity and so on...
But seeing those pictures, I’m honestly relieved my symptoms aren't nearly that bad.
Good luck to you. Let me know if you see any progress.😉

Psoriasis is an autoimmune disease. Any attempt to boost the immune system is counterproductive—it will actually worsen the inflammation.
The plants and supplements used for psoriasis treatment (including the mentioned Polypodium leucotomos) act as immunomodulators. This means they regulate the weak inflammatory response that is part of the immune system. They are absolutely not immunostimulators.
Immunostimulators (like echinacea, astragalus, or ashwagandha) are strictly contraindicated.
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1736 ·
Hey.

The moderator, who supposedly knows their way around the web, really needs to vet these links and the addresses listed on them.

It’s pretty obvious they’re hiding the truth here.

I ran some checks with some tech experts, and none of these addresses or phone numbers are actually registered in the US.

They should also look into that list of local distributors they posted on the site.

Don't forget, online shopping is the easiest way to get scammed.

What kind of certification do they even have? Where is the proof that the packaging actually contains exactly what they claim?

How can you even verify that if the package shows some random certificate number from some unknown institution?

And I’m not even going to touch those "before and after" photos. They're an insult to anyone's intelligence.

Just asking for some common sense here—scams like this can be dangerous for people's health.

Later.
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1737 ·
Michael Ramos3 said:Hey there.

Look, I've checked with some top-tier experts and scoured the web—none of those addresses or phone numbers actually exist in the US.

Just remember: online shopping is basically a playground for scammers.


😉You shouldn't even be weighing in on this since you aren't actually using any of it.
At the end of the day, you're stuck 311 milesaway from us, messing things up for certain members... so why shouldn't both the guy right here and the guy 50,000 miles away mess things up too?

Those "experts" of yours are the same ones who claimed there were 700 different species of prosciutto back in the day.

Don't talk to me about scams.👎
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1738 ·
Forgot,We don't even know your name or your phone number.We’re all still breathing, aren't we? It's not like you went out and blasted your info online yourself.
Remember when I used to bug you about posting your stats over at JMG?
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1739 ·
Robert Clark2 said:If he’s messing with some of our members, then let him mess with me too—even if I'm way out here. It’s just $50,000.

.👎


Not sure why you're getting so worked up, sir.
Could you clarify what you actually meant in that last post? Was it a typo, slang, or just a nasty word?

And why are you commenting on stuff you aren't even going to use? What's the issue there? Or do you honestly think you have the authority to tell people what they can or can't do?

I can't post my phone number. Those are the forum rules. My name is Bane, born Jan 25, 1973. Honestly, even if I wanted to drop my Social Security number right now, our dear moderator wouldn't allow it because he'd call it "propaganda."

So why don't you post your SSN and phone number? You've been handing out advice and all sorts of recipes to people. You carry the moral responsibility for that. What happens if someone gets sick using one of your formulas?

Later.
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1740 ·
Olivia Ramos66 said:Psoriasis is an autoimmune disease—so any attempt at "boosting" the immune system is counterproductive and just fuels the inflammation.
The plants and supplements used to treat psoriasis (including the mentioned Polypodium leucotomos) act as immunomodulators—meaning they regulate—rather than stimulate—that weak inflammatory response that’s baked into the immune system.
Actual immunostimulators (think echinacea, astragalus, ashwagandha...) are strictly contraindicated.


Oh, please... if that were true, then I'm clearly illiterate when it comes to understanding psoriasis. Why doesn't it show up when my immunity drops? I mean, every single time I get sick, it flares up or gets worse—surely that isn't just some coincidence... I don't get it...
And how exactly do you know all this, if you don't mind me asking?

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