Psoriasis [PLEASE READ FIRST POST!]

mistybear4 · 2005-03-23T18:16:08+00:00

Hannah Davis18 said: Yeah. Great, now why don't you give me the full breakdown—calcium, iron, phosphorus, magnesium, zinc, iodine, potassium, copper, selenium,…

Carol Harris3 Newcomer

1 message
joined May 2008

#1821 · Mar 8, 2008

Greetings to everyone.
Mark Fox44, where can I find some Psorex in Washington, D.C.? I am running quite low on my current supply.
As for my usual routine, I tend to load the cream into a medical syringe, apply it directly to the scalp, and then apply pressure... I haven't actually been treating my scalp for about four months now, and the area I previously treated seems to be holding up quite well. However, I have noticed two small spots emerging elsewhere, which are difficult to manage because they cover such tiny areas that after just two applications, they become almost impossible to locate by touch 😬. Furthermore, I haven't been applying it daily, but rather only following my hair washing sessions.

Sophia Martinez3 Newcomer

7 messages
joined Mar 2008

#1822 · Mar 8, 2008

Hey, Happy Holidays! Honestly, that sounds like classic Pavlovic ointment. Thanks so much for the tip! I feel a bit bad that you're dealing with a different situation than us guys—I know things get way more complicated for women when Neotigason is involved—but if you aren't planning on getting pregnant anytime soon, I highly recommend it. Don't listen to those doctors too much; they talk about three years of waiting, but you'll start seeing real improvements in just about 10 days. To be honest, I don't even bother going to them anymore. Sometimes I think we actually know more about psoriasis than they do! About five years ago, I was actually staying at the Military Hospital in New York City, and there were times I'd even help out some of the residents by helping them write up discharge papers for patients with psoriasis. Take care!

Robin Robinson8 said:Hey, hi there! So glad you joined the group.
I just wanted to suggest using plain white Vaseline—whenever your skin feels super dry, just slather that on. It works wonders for me! Of course, everyone is different, but it’s cheap and totally neutral. If it worked for my similar issues, I bet it’ll work for yours too. Also, is that "pavlogal" the Pavlovic ointment? If it is, that's fine too, but I find Vaseline just spreads easier and feels better.
As for the Neotigason, my doctor told me it takes like three whole years for your body to fully clear it out. She was pretty firm about it because it's a teratogen, especially regarding pregnancy. 👎
Anyway, I'm just happy to hear it's working for you. Best wishes!!

brightjackal15 Newcomer

7 messages
joined Mar 2008

#1823 · Mar 9, 2008

Hey everyone!
Thought I’d jump in here and join the conversation. Here’s my story.
Last September, out of nowhere, this red patch popped up on my skin. It just sat there and started peeling. My doctor put me on some Elcom cream, I used it, and it cleared up. Everything seemed fine until a couple of weeks later when these little spots reappeared. I kept applying the cream, they'd vanish, then new ones would show up... nothing crazy, so I wasn't sweating it too much, just kept treating it as I went.
But about three weeks ago, I caught strep throat and ended up with a full-body rash along with these sheep-like patches on my torso. Saw a dermatologist who reckoned it might be an allergy. He gave me two types of antihistamines and some Belobaza-Belodermi ointment to rub on. It isn't working, though. Every single day it just gets worse. So, I started digging around online and stumbled upon guttate psoriasis, which looks exactly like what I'm dealing with. Found this forum and saw a ton of helpful stuff, which inspired me to finally post something.
For now, that's just my take on it. I'm heading back to the dermatologist soon, so I'll update you guys on the official diagnosis and whatever treatment plan they throw at me.
Catch ya later.

Chris Morgan67 Member

49 messages
joined Jul 2007

#1824 · Mar 9, 2008

brightjackal15 said:Greetings, everyone...
I suppose I should join the conversation as well... it all started like this...
Last September, a single red patch appeared out of nowhere on my body. It just sat there and eventually started peeling. My doctor prescribed Elcom, which I applied, and it cleared up. Everything seemed fine until about a month or two later when a few spots popped up... I've been treating them as they appear, and while they vanish, new ones seem to take their place. It hasn't been anything major, so I haven't let it bother me too much... just applying the cream and moving on...
Three weeks ago, I contracted strep throat, which triggered a widespread rash across my body, including those distinct, scaly patches. My dermatologist suggested it might be an allergic reaction and prescribed two types of antihistamines along with some topical creams... It hasn't helped at all. After searching online, everything seems to point toward guttate psoriasis, which matches my symptoms perfectly. Seeing how much helpful advice people share on this forum inspired me to finally join the conversation...
For now, this is just my personal take... I have another appointment with the dermatologist coming up soon, so I'll update everyone on the diagnosis and the treatment plan they prescribe...
do sljedeceg pisanja.

Hello...🙂

It’s honestly quite tragic that your doctor didn't refer you to a dermatologist...👎👎
Make sure to get a referral for a dermatologist first; Beloderm is a potent medication and really should only be used under medical supervision...

Andrew Ward9 Newcomer

1 message
joined Mar 2016

#1825 · Mar 10, 2008

Hi there. I've recently started hitting the gym—so, I was wondering... would there be any negative side effects if I decided to start taking protein powder and creatine? 🤷

Michelle Parker3 Newcomer

1 message
joined Jul 2008

#1826 · Mar 10, 2008

hm... Sophia Martinez3 actually got me thinking about something I recently read... regarding us women—I came across some info suggesting that autoimmune diseases can trigger an earlier onset of menopause. Is there any truth to that? What have you all gathered on this?

brightjackal15 Newcomer

7 messages
joined Mar 2008

#1827 · Mar 10, 2008

Quick update for you guys. Hit up the allergy clinic today, and since my antihistamines aren't doing squat, they sent me over to the psoriasis department. They gave me a more thorough look and think it might be guttate psoriasis, but they aren't 100% sure yet. I have to get a biopsy done, so I won't have a solid diagnosis for another two weeks. In the meantime, they told me to stick with the usual suspect—everyone knows the one—Belosalic... and if I need something for my face, just grab some Bepanthen ointment. Also, they said I can head over to the University tanning beds if I want, so I actually went for my first session today. They prescribed it three times a week. I'll let you know when the results come in, but the only thing I'm stuck on is whether I should start using the Belosalic right away?

Honestly, I feel like just another guinea pig in their little experiment!!!

brightjackal15 Newcomer

7 messages
joined Mar 2008

#1828 · Mar 10, 2008

brightjackal15 said:Just wanted to give you guys an update. Hit up the allergy clinic today, and once they realized the antihistamines weren't doing squat, they sent me over to the psoriasis department. They gave me a more thorough look and think it might be guttate psoriasis, but they aren't 100% sure yet. I have to get a biopsy done, so I'll have a solid diagnosis in two weeks. In the meantime, they told me to stick with the usual BELOSALIC we all know about, and if I need something for my face, just grab some Bepanthen ointment. Also, they said if I want to try that UV light therapy at the University, go for it—so I started today. They prescribed it three times a week. I'll let you know how it goes. Only thing is, I'm on the fence about starting the BELOSALIC right now...

Honestly, I feel like just another lab rat to them!!!

Oh, and I also need to get blood work done and a referral for an ENT, just so they can decide if my tonsils need to come out if they're the underlying cause.

Chris Morgan67 Member

49 messages
joined Jul 2007

#1829 · Mar 10, 2008

brightjackal15 said:Just wanted to give you all an update. I visited the allergy clinic today, and once they realized the antihistamines weren't doing much, they sent me over to the psoriasis department. They gave me a more thorough exam and suggested it might be guttate psoriasis, though they aren't certain yet. They want me to get a biopsy, so I should have a definitive diagnosis in about two weeks. In the meantime, they told me to stick with the usual Betamethasone ointment we all know, and if I need something for my face, I should just pick up some Bepanthen. They also cleared me for UV therapy at the University center, so I went for my first session today; they prescribed three times a week. I'll let you know the results, but I am wondering if I should start using the Betamethasone now...

Honestly, I feel like just another guinea pig in their experiments...

Don't you dare put Betamethasone on your face!!!!

Well, you could try applying a very thin layer of Betamethasone to your body. If you're heading in for UVB sessions, make sure you shower at home beforehand and don't apply anything to your skin. Your skin needs to be completely clean and dry for the light treatment.

You could also try using Vaseline on the affected areas. You can pick it up at CVS. A large tub is only about $2.75🙂

You'll see everything clearly once those biopsy results come back...👍

Robin Robinson8 Newcomer

7 messages
joined Jul 2008

#1830 · Mar 10, 2008

Sophia Martinez3 said:Hey, Happy Holidays! Yeah, that’s definitely the Pavlovic ointment. Thanks for the tip—honestly, I feel a bit bad that you’re in a different boat than us guys. I know things get a bit more complicated for women when dealing with Neotigason, but if pregnancy isn't on your radar right now, I’d really recommend it. Don't listen to doctors too much about those long timelines—like, three years? Please. You'll probably notice things looking better after just ten days or so. To be blunt, I don't even bother going to them anymore; I honestly think we know more about psoriasis than they do at this point. About five years ago, I was actually staying at the Military Hospital in New York City, and there were times I’d even help out some of the residents while they were drafting discharge papers for psoriasis patients. Best...

Hehe, thanks!!
Well, I’m still pretty young—almost 20—so I won't even be thinking about pregnancy for a few years yet 😁
As for the meds, I used Neotigason for two years and didn't see any real results; in fact, once I stopped, I actually felt better because all those side effects finally cleared up.
I totally agree that sometimes we know more than the professionals—after all, none of them actually live with psoriasis, they just study it.
Best, 😍

Maria Chavez55 Active Member

56 messages
joined Feb 2008

#1831 · Mar 11, 2008

Quick question for the Vaseline fans here 😁: how long and how often should I be applying Vaseline to these flaky patches if I want to get rid of the scales and just leave the redness?
Also, should I be mixing it with a nourishing or neutral moisturizer, or just stick to plain old Vaseline?

Robin Robinson8 Newcomer

7 messages
joined Jul 2008

#1832 · Mar 11, 2008

Maria Chavez55 said:Quick question for the Vaseline users here😁—how long and how often should I be applying Vaseline to those scaly patches if the goal is just to get rid of the flakes while leaving the redness?
Also, should I be mixing it with some kind of nourishing or neutral cream, or just stick to the Vaseline alone?

In my case, I’ve been using nothing but Vaseline for about two months now. During the first month, I still had some redness, but as long as you stay on top of hygiene, the flaking stays away. Over the last month, even the redness has calmed down, and some of the areas where I had thinning skin look totally normal again. Nothing new has flared up in these two months. I use only that—nothing else—and after showering, I rub in some local olive oil. I haven't started using castor oil yet, but I probably will.
I apply the Vaseline once a day, at night—if I do it in the morning, it just sticks to my clothes. I think that cabbage cream > uses might be good too, since it's all-natural. Best, 😍

Sophia Martinez3 Newcomer

7 messages
joined Mar 2008

#1833 · Mar 11, 2008

Robin Robinson8 said:Hehe, thanks!!
Well, I'm still pretty young (turning 20 soon!), so I've got plenty of years before I even need to think about pregnancy 😁
By the way, I used Neotigason for two whole years and honestly? Nothing. Zero effect. Once I finally quit, I actually felt better because all those annoying side effects finally cleared up.
I totally agree that sometimes we know way more than the experts, since none of them actually live with psoriasis—they just study it from a distance.
Best, 😍

I'm so sorry it didn't work for you! It really feels like we just have to keep searching and swapping stories to find what works...

Michael Ramos3 Active Member

196 messages
joined Apr 2007

#1834 · Mar 12, 2008

Hey everyone, welcome to the forum if you just joined us.

Andrew Ward9 Newcomer

1 message
joined Mar 2016

#1835 · Mar 12, 2008

Andrew Ward9 said:Hey there. I just started hitting the gym—so, I was wondering... would there be any real downsides if I started taking protein powder and creatine? 🤷

??

Lawrence Ramirez3 Newcomer

1 message
joined Oct 2009

#1836 · Mar 12, 2008

Andrew Ward9 said:??

It’s not even about supplements for me, unless we're talking vitamins or Omega-3. My Doctor told me that messing with your body's natural balance is a quick way to flare up psoriasis. It's common knowledge that certain meds can trigger a bad reaction too.

silentheron25 Newcomer

5 messages
joined May 2007

#1837 · Mar 12, 2008

I don't usually spend much time posting or reading; it’s always depressing seeing new accounts pop up—basically just more victims of this mess. Personally, things haven't improved at all. Ever since I started using some nasty Belgian ointment, my skin has been itching so badly that my shirts are covered in blood and I'm ruining my sheets. There’s no fighting it; if I get even slightly agitated, it becomes an absolute nightmare. My skin is bright red—thin, but red—and it stings my eyes just looking at it. This has been dragging on since last summer, and if this cream doesn't start working soon, I already know what kind of hell awaits me this summer. Honestly, it's been hanging over my head all year. I might try starting some herbal tea again to cleanse my system, since I feel like I'm definitely toxic on the inside. The 26th is coming fast, but this misery refuses to leave. No relief in sight.

Kimberly Lewis74 Newcomer

3 messages
joined Mar 2008

#1838 · Mar 12, 2008

Gary Gonzalez93 said:1-Boil up 1 liter or less of water (adjust as needed), take it off the stove, and stir in one or two tablespoons of sage tea (about 1-2 tablespoons per liter). Once you've done that, cover the pot and give it an occasional stir until the liquid cools down enough to comfortably soak the psoriasis.
2-Take a shower first so your skin isn't greasy, then make sure you dry off completely.
3-Rub the brewed tea thoroughly (or pour it) over the psoriasis patches and just let it air dry—don't wipe it off. You should ideally do this treatment right before bed, every single day until the psoriasis clears up entirely, and then switch to once a week after that.

It worked for me, so I really hope it does for you too.

Hey there... quick question, can this be used on the scalp as well??

Also, one more thing—I haven't read through everything from the very beginning, so my apologies if someone already covered this... what are the actual side effects of using Betamethasone lotion? I've been using it on my scalp for a really, really long time (like ten years or so) on and off in short bursts (a month here, two months there)... it helps, but I'm still worried because I've heard it isn't exactly healthy...

Kimberly Lewis74 Newcomer

3 messages
joined Mar 2008

#1839 · Mar 12, 2008

silentheron25 said:It’s been a while since I bothered to write or even read anything; it’s always depressing seeing new posts about this... or rather, new victims of this absolute garbage. Personally, nothing has improved. Ever since I started using some nasty Belgian ointment, my skin has been itching so badly that my shirts are constantly stained with blood, and I'm ruining my sheets at night too. There is just no way to resist it. If I get even slightly frustrated, it turns into a total nightmare. My skin is bright red—thin, raw, and stinging so much it makes my eyes water... I can't even bear to look at myself. This has been dragging on forever, since last summer, and if this cream doesn't start working soon, I already know what kind of hell awaits me this summer. It’s been hanging over my head all these years. I think I'll try starting those herbal cleanses again to detox, because I definitely feel like things are getting toxic on the inside. July is coming fast, but this misery won't leave. No freedom in sight...

That’s just how it is... you have to accept it and figure out how to live like this... honestly, I don't see any long-term solution in sight 😢 ... maybe I’m being a pessimist, but 🤷

Chris Morgan67 Member

49 messages
joined Jul 2007

#1840 · Mar 12, 2008

Kimberly Lewis74 said:That's just how it is... you have to accept it and learn to live with it. Realistically, I don't see any long-term solution 😢... maybe I'm being a pessimist, but 🤷

Well, you're right about that. There isn't much we can do at this stage 🤷

I've stopped trying to argue my way out of it. Honestly, I think I actually lead a more fulfilling life than most people who have perfectly clear skin🤣.

I have great friends, wonderful parents, an amazing boyfriend, I'm in college, and I make sure to enjoy life while it lasts 😍😉

Psoriasis [PLEASE READ FIRST POST!]

🔗 Similar threads