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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 60 views · 2.3K replies

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Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#1841 ·
silentheron25 said:Haven't been posting or reading much lately—always sucks seeing new stories unfold, or rather, seeing new victims of this crap. Personally, nothing’s improved. Ever since I started using some nasty Belgian ointment, I've been itching so bad my shirts are constantly bloodstained and my sheets are a mess. There's no winning; if I get even slightly stressed, it's game over. My skin gets red and thin, and it stings my eyes so much I can barely look at myself. This has been dragging on since last summer, and if this cream doesn't work, I know what kind of hell awaits me this summer. It's been hanging over my head all year. I might try starting herbal tea again to detox, since I definitely feel "dirty" on the inside. July is coming fast and this isn't going anywhere. No freedom in sight.

If a cream isn't working after 10 or 15 days, just stop using it. Don't waste your time. Summer is hitting me hard too... the heat, the sweat, having to wear long sleeves... it sucks.
My clothes and sheets are bloody too, and the itching... honestly, I don't even know where I'd start scratching first😁. I feel like I should be walking around the apartment with a vacuum cleaner every day just to pick up the flakes... there's enough debris here to export to other countries😁,but whatever. Ariel handles the laundry, I grab the vacuum, try not to scratch as much, and occasionally pop an antihistamine when I can't take it anymore. That's just life for us "artists"... 😳 which reminds me of that old joke about the Scotsman where the dad tells his son: "Just shut up and keep swimming."
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1842 ·
Guys, my psoriasis was barely even noticeable for the last 2 or 3 years... then I went and started using that useless Dyprosalic and Elocom crap, and now it’s flared up worse than ever. I have a gut feeling—and trust me, anyone who's dealt with this would know—that it "treats" it just to make it come back twice as hard. I’ve sworn off putting that stuff on my skin ever again. Usually, I stick to chamomile (about to go grab some sage)—when things were under control, that worked wonders for prevention; I managed to go a record 6-7 weeks without a breakout. My previous record was maybe 2-3 weeks. Now that it's back, I'm applying the herbal stuff too, just waiting to see if it works. It really helps dry it out! During the day, I just use a neutral base. I'll let you know how it goes.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1843 ·
Michelle Parker3 said:Guys, my psoriasis was barely even noticeable for the last couple of years... then I started using that useless Dyprosalic and Elocom stuff, and now it's flared up worse than ever. I have a gut feeling it just treats it only to bring it back twice as hard... (definitely a strong hunch, more experienced people might know)... I swore I'd never put that stuff on myself again. Usually, I just use chamomile (I need to go pick up some sage soon), which worked wonders for prevention when things were calm; I went 6-7 weeks without a single breakout. My previous record was maybe 2-3 weeks. I'm applying it again now that it's back, just waiting to see how it goes. It really does dry things out! During the day, I just use a neutral base cream. I'll let you know if it works!

How exactly do you prepare the chamomile wash?🙂
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1844 ·
Lawrence Ramirez3 said:If an ointment isn't working, you'll know after about 10 or 15 days. Don't waste your time—just stop using it. It's summer, and I'm struggling too... the heat, the sweat, having to wear long sleeves... it sucks.
My shirts and sheets are bloody too because I itch so much... honestly, I don't even know where to start scratching first😁. I feel like I should be walking around my apartment with a vacuum cleaner every single day just to suck up all the skin flakes... there's enough material there to export to other countries😁, but I don't bother. Ariel handles the laundry, I grab the vacuum, try not to scratch as much, and sometimes take an antihistamine when I really can't help it. That's just life for us artists... 😳 it’s like that old joke about the Scots where the father tells his son: "Shut up and keep swimming."

Which pill are you taking for the itching? Neither Telfast nor that other damn thing (I can't remember the name, the one for allergies) helped ease the itch at all.
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#1845 ·
Maria Chavez55 said:What tablet are you taking for the itching? Neither Telfast nor that other damn thing (can't remember the name, one for allergies) did anything to help me.

For me, Belodin, Claritin, and Rinestone worked best—they're basically the same stuff. Doctors still prescribe Dimetindene too, even though it's old school. My GP recently put me on this newer one called Allegra. Reading your post, it looks like you've done your homework 😁, so if you haven't been to the Spas, I'd highly recommend it. They have solid dermatologists there who actually specialize in psoriasis. One more thing—since we all know there's no magic cure—besides the actual treatment, just being there helps. It’s a massive mental relief to be around people dealing with the same crap. If you can swing it, go once a year. Keep your head up. 👍
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1846 ·
I signed up for a three-week therapy session using Vaseline back in May. My goal is to get my legs in shape before then—getting rid of the scaling so it's just red skin, ideally through natural means, to make their treatments actually work. This is my first time going, and I have really high hopes. 😉
In the meantime, I'm battling this itching, which is honestly way more infuriating than how everything looks. Oh well. I just keep telling myself I'm lucky I didn't deal with this annoying condition until after I turned 35. 😉
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1847 ·
Chris Morgan67 said:How do you guys deal with chamomile?🙂

So, I picked up that homemade stuff... You boil about two or three cups of water and toss in one teaspoon of chamomile. Cover it, let it cool down, then strain it. I take a cotton ball, soak it in the cold chamomile, "apply" it first, and then just dab at the worst spots—letting it air dry. I've been doing this right before bed. It actually dried out my psoriasis, but who knows if it’ll actually clear up for good? I'll keep you guys posted.
Robin Robinson8 Robin Robinson8 Newcomer
7 messages
joined Jul 2008
#1848 ·
Maria Chavez55 said:I scheduled my trip to the Spas for May—it's a three-week treatment plan. My goal before then is to get the skin on my legs down from scaly to just red (ideally through more natural means), so their treatments can actually work effectively. This is my first time going, and I'm putting a lot of hope into it. 😉
In the meantime, I’m battling this itching—honestly, it’s way more frustrating than how everything looks, but oh well. I can't help but feel a bit bummed that I only started dealing with this annoying condition after turning 35... though I suppose I should just be grateful. 😉

I actually managed to move my psoriasis from being scaly to just red within a month using nothing but Vaseline—so, highly recommend that. For me, the itching hits hardest right when my skin starts drying out, so I just keep applying Vaseline constantly to stay ahead of it. That usually does the trick for the itch.
Good luck!
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1849 ·
Robin Robinson8 said:In just one month, I managed to take my psoriasis from scaly mess to just redness by using nothing but Vaseline—so I highly recommend it. For me, the itching really kicks in once my skin dries out, so I’m constantly slathering on the Vaseline, and that's how I deal with the itch.
Good luck!

Checking in after a bit of a hiatus. I've been experimenting with some new ingredients and teas for the first time, and honestly, my psoriasis seems to be improving slightly. I’ve been drinking Tahebbo tea, and if you follow the instructions for prepping and using it properly, you shouldn't expect much—the first signs of progress didn't show up until about the 30-day mark. I also tried Vaseline, though it hasn't really done much more for me than other ointments have—not that I stuck with it long enough to be sure, mostly because I don't struggle with intense itching or major redness. So, I'm sticking with the Tahebbo tea and this salicylic acid ointment—I'm not entirely sure what the exact formula is, but my dermatologist at the Oakland hospital gave me a prescription for it, and the pharmacy prepares it specifically for me. It seems to be working quite well so far. I'll let you guys know if things keep looking up or if it hits a plateau.☕
analogmarlin83 analogmarlin83 Member
13 messages
joined Mar 2008
#1850 ·
swiftskipper712 said:Are there actually people like this in the world or even here in Chicago? And if so, how???

I heard about some woman in Chicago who does treatments using honey-based products, but honestly, I can't remember her name. Maybe try looking up who specializes in honey remedies in Chicago.
I also heard those Spas near Oakland are pretty good. 🙂
placidfox7 placidfox7 Newcomer
7 messages
joined Oct 2007
#1851 ·
I have a quick question for Chris Morgan67. I recently picked up some Psorcutan from the pharmacy, but the packaging was completely different from what I usually get. To make matters worse, the cream isn't clear like the gel used to be—it's white now. Worst of all, it doesn't seem to be doing anything at all, no matter how much I apply. My previous batch of Psorcutan (the clear gel version) worked wonders for me, so I'm a bit confused by this change.

Best regards,
Sophia Martinez3 Sophia Martinez3 Newcomer
7 messages
joined Mar 2008
#1852 ·
Michelle Parker3 said:I made this homemade stuff... you basically boil about 2-3 cups of water and toss in a teaspoon of chamomile. Then you cover it up, let it cool down, and strain it. I take a cotton ball, soak it in the cold chamomile, "apply" it first, and then just dab at the worst spots and let it air dry. I’ve been doing this right before bed, and honestly, it actually dried out my psoriasis! I'm not sure if it'll stay away long-term though... I'll keep you guys posted!

Hey everyone! So, a buddy of mine from an abbey in Ostrog gave me this lotion called Stefalaz yesterday. I'm thinking about giving it a shot and seeing if it works for me. Has anyone here ever used it? Let me know what you think!
Jerry Grant2 Jerry Grant2 Newcomer
3 messages
joined Mar 2008
#1853 ·
Hey 👋

Read through a ton of pages here and honestly, this is a solid group of people.
Never dealt with this before, and I definitely didn't think it was such a big deal. It’s always like that until it hits you personally.
A few months back, I started getting this rash that turned into patches in my groin area and behind my right knee. Since I've got allergies, I figured it was just another one of those, though I usually deal with inhalation stuff rather than skin issues. The rash and itching get worse when I sweat. I figured it might be because I spend all night glued to my computer and sweat like crazy in the groin area, but the part behind the knee didn't make any sense. Finally saw a dermatologist, and after a quick check, they ruled out fungus or bacteria. Initial diagnosis: Psoriasis inversa. They prescribed Elocom, once a day in the evening, with a follow-up in three weeks. If that doesn't work, we're looking at a biopsy. I immediately went down a rabbit hole online, and stumbling onto this forum actually hit the spot for info and finding people who can give some advice.
It seems pretty obvious to me that the liver is the real issue here. I'm living proof—I've been wrecking my liver with Lentostamin for 20 years. It's the only antihistamine that keeps my allergy attacks in check, but man, it's brutal on the liver. Stress is the main trigger, and I've had plenty of that for years. I'm 44 now, and since I was 4, I've gone through enough crap to make anyone's head spin. So, most likely, I've officially joined the psoriasis club. Like any other problem, I'm more interested in the cause than the symptoms. As you can see, the cause is clear to me, and I want to change it. A Doctor, who's also a good friend, told me stress and this frantic pace of life are the big triggers—which basically describes how I live. I sleep maybe two hours a day, sometimes less, always rushing to catch up with everything I started. Even right now, I'm rushing out because I have another obligation, and it's only midnight. I'll be going until morning, and it's been a cycle like that for years. Bottom line: I have to change my lifestyle first. That's a problem I have to fix myself. The symptom part is what I'm hoping you guys can help with. I noticed a lot of you have bad takes on pharmaceutical stuff, but I start the Elocom tonight. I gotta stick to the initial treatment plan, then we'll see. Part of me is still secretly hoping it's something else, but I'm starting to realize it really is psoriasis. The patches in my groin are brownish; no white flakes or scales, and this has been going on for months. Sometimes it itches like crazy, sometimes not so much. Creams help for a bit, then it comes right back. Honestly, it burns more than it itches.
We'll see what Elocom does.
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1854 ·
Welcome to the group.

Don't go jumping to conclusions or stressing yourself out. Just wait for the test results. Only once they actually confirm psoriasis should you start worrying about it. Until then—and honestly, even after—take care of your liver like it's your life.

With faith in the Lord,
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1855 ·
placidfox7 said:Quick question for Chris Morgan67. I recently picked up some Psorcutan at the pharmacy, but the packaging was totally different from what I usually get. Instead of that clear gel consistency, the cream is white. To make matters worse, it doesn't seem to be doing anything at all, no matter how much I apply. My last batch of Psorcutan—the clear gel—worked perfectly, so I'm a bit confused...

Best regards,

I suspect there was a mix-up at the pharmacy. They offer both Psorcutan ointment and Psorcutan cream.
The ointment is clear, spreads easier, and is generally more affordable. The cream is white, and personally, I haven't found it nearly as effective.

You might solve the mystery just by checking if the label says Psorcutan ointment or Psorcutan cream...
placidfox7 placidfox7 Newcomer
7 messages
joined Oct 2007
#1856 ·
Thanks, Chris Morgan67.
wearycrane11 wearycrane11 Member
12 messages
joined Oct 2007
#1857 ·
Hey fellow sufferers. I haven’t checked in for a bit because life decided to throw some curveballs my way. I mentioned before that I started using Dovonex cream, and while things initially looked up, I eventually realized that even with improvement, I might not be able to clear this stuff completely like I used to. I went to see a dermatologist—he’s actually a top-tier specialist, really knows his stuff—and he prescribed this scalp lotion since most of my issues are on hairy areas. Honestly? The lotion was total garbage. Not because the product itself is bad, but because my skin just refuses to react to it. Eventually, I decided to take matters into my own hands. I started hitting the books and talking to people to figure out this damn disease. I ended up meeting this girl who worked for a specialist doctor over in the States who deals specifically with our situation. I asked her what she thought about Dovonex and if there was any actual cure for this psoprijaza nonsense. After a long talk, she mentioned there's also a Dovonex ointment that I hadn't even heard of. Just like the cream, I couldn't find it anywhere in Chicago or even around here. So, I decided to track someone down in Greece who could ship it to me, and I actually managed to snag both the cream and the ointment. I’m telling you, the ointment is absolute magic for the skin. I’ve been using the cream on my scalp and groin area, and I'm seriously happy because after less than two weeks, I'm already seeing results, especially on my head. My skin doesn't feel nearly as tight as it did before, which means I'm way less on edge. I apply the cream once a day to my hair and rub the ointment into my elbows and everywhere else a few times a day. Yeah, the routine eats up an hour or two of my day, but I’d gladly give up half a day just to stop feeling so restless. It's hard for me to stay calm through this, so there's no room for laziness. BE PERSISTENT. That is everything. I'm going full throttle now, and I'll write back when things improve even more. By the way, both the ointment and the cream cost about 15 bucks each. Cheers.
wearycrane11 wearycrane11 Member
12 messages
joined Oct 2007
#1858 ·
I’ve been wondering about something. Does alcohol actually mess with psoriasis or make things worse? Same question for smoking, too. My gut feeling is that the liver plays a huge role here, since it basically acts as the body's filter for all the junk we put into our system.
silverscout91 silverscout91 Newcomer
6 messages
joined Nov 2009
#1859 ·
I could use a bit of assistance here. Does anyone happen to know of a specific agency or organization one should go through to access dead sea therapy for psoriasis treatment?
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#1860 ·
wearycrane11 said:I’ve got a question—does alcohol actually affect psoriasis, or does it make things worse? Same goes for smoking?! I’m assuming since the liver acts as the body's filter for all kinds of junk, there's gotta be a connection somewhere.

From what I know, alcohol and red meat are pretty bad news for psoriasis—definitely things you want to avoid... as for anything else, who knows?

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