Psoriasis [PLEASE READ FIRST POST!]

Michelle Parker3 said:Guys, my psoriasis was barely even noticeable for the last 2 or 3 years... and then I started using that useless Dyprosalic and Elocom crap, and now it's flared up worse than ever. I have a gut feeling—and a pretty strong one at that, if anyone more experienced would agree—that these things just "treat" it only to have it come back twice as bad. I swore I’d never put that stuff on myself again. Instead, I’ve been using chamomile (still need to track down some sage)—when it first went into remission, that worked wonders; I went a record 6–7 weeks without a single spot. My previous record was maybe 2 or 3 weeks. Now that it's back, I'm applying that too, just waiting to see what happens. Honestly, it really dries things out! During the day, I just use a neutral base. I'll let you know how it goes!

So, it actually started clearing up on its own after 10 days. I was using the chamomile, then just switched to a plain base, and now it’s just vanishing... 😍 Which is totally weird to me, but I'm not going to overanalyze it while the results are this good. 🙂

silverscout91 said:I need a little help here—does anyone know which agency you actually go through to get treatment at a Dead Sea facility for psoriasis?

Honestly, I have no clue—just try a quick Google search. You're guaranteed to find something that hits the mark. 🙂

silverscout91 said:I need a little help—does anyone know which agency handles trips to the Dead Sea for psoriasis treatment?

It’s not really an agency thing—you should probably just reach out to Doctor Andrew Stanimirović at 01/3820-077. He has a practice over in Badalicev in Brooklyn (NYC), though I can't recall his exact office number offhand. 😢
He'll likely handle all the arrangements and reservations for you, and he can walk you through everything you'll need. I think the only thing you'd really need to do yourself is book a flight to Los Angeles. As far as I know, that's the way to get to those specialized clinics in Israel—at least, that's how I handled it. If you need anything else, feel free to ask. Best of luck! 😍

Let me join in as well... 🙂
Greetings from another person dealing with flaky skin 😁

Robin Robinson8 said:It isn't actually an agency; you should probably just reach out to Doctor Andrew Stanimirović directly at 01/3820-077. He has his practice over in Badalicev in Brooklyn (NYC), though I can't recall the exact suite number 😢
. He'll likely handle all the arrangements and reservations for you, and he can walk you through everything you need to know. As far as I understand, your main task is just securing a flight to Los Angeles. From what I recall, that's the only way to access those specific treatment centers in Israel—at least, that was my experience. If you find yourself needing anything else, feel free to ask. Best regards. 😍

Thanks, Mario

So, it’s been 7 days on the Elocom. At first, things were looking up—actually felt pretty good about it. Everything seemed to be clearing up, but then yesterday? Total setback. It’s like I haven't even done anything at all. 😢
I’ve been watching what I eat and trying my best to stay chill... 🤷

Jerry Grant2 said:Alright, so it’s been 7 days since I started using Elocom. At first, things were actually looking up—even my mood improved. Everything seemed to be clearing out, but then yesterday? Boom. It all flared back up like I hadn't done a single thing. 😢
I watched what I ate, tried to stay chill... 🤷

Diprosalic and Elocom absolutely wrecked me... I barely had anything going on until I used them. Every time it seems to clear, it just comes back twice as bad. 😢

Mark Fox44 said:Give that "Psorex" ointment from Bihać a shot. If you have darker hair, it’s basically invisible—it has this sort of olive-brown tint to it! If you're blonde😉, maybe try dyeing it a bit darker; you’ll definitely get your scalp back in shape within a few weeks. You apply it once a day—it smells pretty rough, honestly—but it was the only thing that actually cleared up my dandruff for any significant amount of time without needing corticosteroids.
You can find it in Chicago; the price is $57 (back in Bihać, it's about $40/ 19 miles). Since you aren't supposed to expose it to sunlight, now is actually the perfect time to start using it.
By the way, I went through two whole containers of Lush, and didn't see much of a result. It helped soothe the itching a little, but I found that St. John's Wort oil works much better for me—plus, it's way easier to apply. As for those little patches, I've noticed spots of clear skin (on my torso and legs) appearing here and there amidst the affected areas👍

Sunce ćaćino, where can I pick up some Psorex ointment in Chicago?

Chris Morgan67 said:don't you dare put hydrocortisone on your face!!!!

look, you could maybe try a super thin layer of hydrocortisone on your body. if you're heading out for UVB treatment, just wash up at home first and don't put anything on your skin. skin needs to be clean and dry for tanning.

you could also try using Vaseline on the affected spots. you can grab some at CVS. the big tub isn't too bad for the price...$2.75🙂

you'll know for sure once the biopsy results come back.👍

thanks for the advice.

also, quick update! the biopsy came back with guttate psoriasis vulgaris. apparently, it was triggered by stress a while back and then recently by strep throat, which caused this rash all over my body. turns out it's not hereditary!
getting my tonsils out in 4 months, but I'm on antibiotics for the strep until then.

so now I'm wondering: -once the tonsils are gone, can I get strep again?
-will the psoriasis clear up?
-will it lessen?
-or am I stuck with this thing hiding inside me, just waiting for its next chance to flare up?

thanks in advance!

Jerry Grant2 said:So, it’s been seven days since I started using Elocom. Things actually looked promising at first—even gave me a little mood boost. Everything seemed to be clearing up, but then yesterday it all just flared right back up like I hadn't even done anything. 😢
I’ve been watching what I eat and trying my best to stay chill... 🤷

That’s just how psoriasis works. Typical.
Get some Vaseline or an emollient on right after you shower—do it ASAP. Just let it soak in, and if it feels dry, hit it again. Regarding Elocom, there’s this liquid or emulsion you can get made at a pharmacy that isn't too harsh; you can even use it on your scalp. Since it's a prescription, insurance usually covers it. It works pretty well for me—it won't make the psoriasis disappear, but at least the itching stops and the patches settle down.
Prescription for Elocom lotion and Excipial.

I apply this Excipial from Spirig once a day. It’s an emollient with 4% urea, so honestly, it actually does a pretty decent job on my skin.
Hey everyone. 👍

brightjackal15 said:thanks for the advice

And here’s my latest update! The biopsy confirmed guttate psoriasis vulgaris—apparently triggered by some old stress and more recently by strep throat, which caused this full-body rash. It turns out I don't have hereditary psoriasis after all!
I'm scheduled to have my tonsils out in four months, but until then, I'm on antibiotics for the strep.

So, I've been wondering: —once my tonsils are gone, can I still catch strep?
—will the psoriasis clear up?
—or just lessen?
—or am I stuck monitoring this thing forever, waiting for it to flare up again whenever it feels like it?

Thanks in advance!

I actually had my tonsils removed too, and honestly, my psoriasis didn't calm down at all. Every single time I catch even a minor cold, the lymph nodes in my neck swell up, and whenever my immune system takes a hit, the psoriasis flares right back up. I suspect psoriasis just stays dormant somewhere inside us, just waiting for a trigger—like stress or a cold—to blow up again. 😁
I really hope things settle down for you, though.

By the way, ever since I switched to using just Vaseline and taking Sandimmune, it has almost completely cleared up. There's still about 15% of my body affected, but it's very minimal now—it doesn't even flake, it's just slightly red. 🙏 👍 Honestly, I'm so happy! 😍
Best to everyone!!

Robin Robinson8 said:I had my tonsils out too—didn't do a damn thing for my psoriasis. Every time I catch even a minor cold, the lymph nodes in my neck flare up, and whenever my immune system takes a hit, the psoriasis flares right along with it. Honestly? I think psoriasis just hides somewhere inside us, waiting for the perfect moment—stress or a cold—to blow up again. 😁
I really hope yours settles down for you.

By the way, ever since I switched to just using Vaseline and taking Sandimmune, it’s almost completely cleared up. There’s still about 15% left on my body, but it’s minimal—it doesn't even flake anymore, just stays red. 🙏 👍 Man, I am so relieved! 😍
Hey everyone!!

What is that? 😕

Robin Robinson8 said:I also had my tonsils removed, and it didn't help my psoriasis at all. Every time I catch even a minor cold, the lymph nodes in my neck swell up, and any dip in my immune system causes my psoriasis to flare and swell. I believe psoriasis stays dormant inside us, just waiting for a trigger like stress or a cold to act up. 😁

Hello everyone!!

Exactly the same here!
The only difference is that for me, the itching becomes unbearable, and it feels like the skin on my torso won't ever fully heal.

Hey there.

Quick shoutout to all the new folks joining us.
I spend time on these boards every single day, and I’ve noticed a pattern: people keep asking questions that were already answered extensively on previous pages long ago.

Do yourself a favor and actually scroll back. Take the time to read through the entire thread from the beginning. This is serious stuff, and spending an hour reading is a small price to pay to get it right.

You'll also find valuable insights from members who aren't posting much anymore—just because they're quiet doesn't mean their experience isn't useful.

Regards,

God bless,

brightjackal15 said:It’s not hereditary for me...

There’s no such thing as non-hereditary psoriasis. You either have it or you don't...😉

You were born with this gene... that strep infection just triggered it, but it's a chronic, incurable condition...

@Robin Robinson8/">@@Robin Robinson8, I’m truly happy for you...🙏🙏😍👍

@hiddenviper17/">@@hiddenviper17, glad to see you finally joined us... would you mind sharing how you're managing your scalp? I recall you mentioning some oils once... any specific details... 😍

My mom is making a custom ointment for my scalp (I'll check the ingredients), though it's mostly for my hair health rather than the psoriasis itself.
When I apply the oil my doctor mixes up for me, things feel fine, but like anything else, you can't leave it on too long.
There is this lotion—I can't believe I forgot the name—that works perfectly and clears everything right up, but even that shouldn't be used for more than a month.

Everyone keeps telling me to just shave it all off so my scalp can breathe, but I honestly don't think that will make much of a difference.

Robin Robinson8 said:I had my tonsils out too, and honestly, my psoriasis didn't calm down one bit. Every single time I catch even a tiny little cold, the lymph nodes in my neck swell up, and whenever my immune system takes a dip, the psoriasis flares right up and gets all puffy. I really feel like psoriasis is always lurking somewhere inside us, just waiting for a trigger—like stress or a sniffle—to blow up. 😁
I'm really hoping things settle down for you!

By the way, ever since I started using nothing but Vaseline and taking Sandimmune, it’s almost completely cleared up! There's still about 15% left on my body, but it's super minimal now. It doesn't even flake anymore, it's just slightly red. 🙏 👍 Oh man, I am so incredibly happy! 😍
Hey everyone!!

Hey there! Could you share a few more details? Are we talking about the Rinestone Sandimmune? How do you take it, and do you need a prescription? I'm asking because I've seen a couple of people for whom it actually made a huge difference. And of course, I'm so glad to hear you're doing better now...👍

Sophia Martinez3 said:Hey there—could you share a few more details? I'm wondering if you're talking about Sandimmune—how exactly do you take it, and do you need a prescription from a Doctor to get it? I'm asking because I've seen a couple of people who swear by it and say it really helped them. Anyway, I'm just glad to hear you're doing okay now...👍

So, we’re talking about Sandimmune in capsule form—it contains cyclosporine. It falls under the category of immunosuppressants, which is basically just a fancy way of saying these drugs work to dial down the body's immune responses. Usually, you see them being used during organ transplants or bone marrow transplants to stop the body from attacking foreign tissue—you know, to prevent rejection. They’re also used for things like rheumatoid arthritis, severe psoriasis, or intense atopic dermatitis, since those conditions can be triggered by the immune system acting up. I guess you could say it helps improve the situation simply by suppressing the immune response.
Before you even think about starting this therapy—you really need to get some extensive blood work done first. And please, I can't stress this enough—don't go taking any medication without consulting your Doctor and getting their green light first. It’s just better that way, I guess. It’s mostly because of the sheer number of side effects—plus, the potency and dosage requirements really vary from person to person, I guess.
If you're currently on Sandimmune—no matter how great you might be feeling lately—please don't go stopping that therapy without checking in with your Doctor first. It’s probably best to stay the course unless they give you the green light.
It’s really important—you absolutely have to keep an eye on your blood pressure and stay on top of your kidney and liver function tests. Just a good idea, I guess.
You can get it with a prescription.
Hey there! 😍

Good day

Everyone, slow down with this kind of stuff.
It seems like most of you are pretty young and aren't thinking about getting older. None of us knows what we'll be facing in our senior years or how many different medications we'll be forced to take for whatever new condition pops up. What if, down the road, you can't use a specific therapy because you overdid it on these HEAVY drugs now? At that point, a seemingly harmless condition turns into a total nightmare.

Keep in mind I'm speaking from experience (I'm 35)

The terms you used sound at least 50 times worse than psoriasis.

Using drugs like that leads nowhere.

God bless,

Michael Ramos3 said:Good afternoon, everyone.

Everyone, please—slow down with this kind of talk.
It feels like a lot of you are quite young and perhaps aren't thinking much about old age. None of us really knows what we might face as we get older—or what kind of medications we might be forced to rely on for newly developed conditions. What if, down the road, you find yourselves unable to use a specific therapy because you overused such HEAVY drugs now? At that point, a seemingly harmless condition could turn into a total nightmare.

Just keep in mind I'm speaking from my own experience (I'm 35)

The symptoms you described sound, frankly, at least fifty times worse than psoriasis.

Relying on drugs like these doesn't lead anywhere good.

With faith in the Lord,

I think some of what was said applies to me, so I just want to clarify... 😁

I’ve already shared everything I’ve tried before—how many times I've dealt with erythroderma, how aggressive my psoriasis is, and the arthritis on top of it all. If any of the meds I tried previously actually worked, I certainly wouldn't be using something like this—not that they did, and honestly, even now I'm not sure if this is better than Sandimmune or Vaseline or something else entirely—but for the first time, things feel better. Right now, it's my only viable solution.
Of course, I would never recommend anyone use this without consulting their Doctor; everything is highly individual, and just because it helps me doesn't mean it will work for someone else. All these drugs have side effects, especially something this potent, so I completely agree with you there—but if this is what's showing improvement for me, then I'm going to take it regardless of what happens later. My psoriasis went from covering 90% of my body down to 15%, which is a massive difference.
In the US, Sandimmune hasn't been used for psoriasis for very long, but it's been around globally for 20 years, so I suppose it's relatively well-studied, despite the many side effects.
If improvement is visible, the dosage is gradually tapered down and eventually stopped—meaning I won't be on it forever, which is a huge plus in my book. And if there’s no result within six weeks of starting, the treatment is discontinued and further use isn't recommended, which I also think is a good thing.

I agree that fewer medications and toxins is always better, but not in a situation like mine.
Thanks for the warning, though. I hope your psoriasis is under control. Best regards.😍