Psoriasis [PLEASE READ FIRST POST!]

Michael Ramos3 said:Using those kinds of medications doesn't get you anywhere.

With faith in the Lord,

Our expert Doctor of medical and pharmaceutical sciences suggests😬


🙂I've been watching you closely,

Well, haha... 😬

Robin Robinson8, I am truly glad to hear you're feeling better. Dropping from 90% down to 15% is an incredibly significant improvement...

Robin Robinson8 said:I think this part applies to me, so I just wanted to clarify things a bit... 😁

I’ve already posted about everything I’ve tried, how many times I’ve dealt with erythroderma, and just how brutal my psoriasis and arthritis can be. Honestly, if any of the meds I tried before actually worked, I definitely wouldn't be looking at something like this—especially since I'm still not totally sure if it's doing better work than Sandimmune or Vaseline or something else entirely. But for the first time, I'm seeing improvement, so it feels like my only real option right now.
Now, I am absolutely NOT recommending that anyone uses this without talking to their Doctor first! Of course, everyone is different, and just because it helps me doesn't mean it'll work for someone else. All these drugs have side effects, and something like this can be pretty intense. I totally agree with you on that point, but if this is what's finally showing results for me, I'm going to stick with it regardless of the long-term stuff. My psoriasis went from covering 90% of my body down to just 15%, which is honestly such a huge relief!
In the States, using Sandimmune for psoriasis isn't quite as common as it has been elsewhere for decades, but it's definitely an established option, even with all those side effects people talk about.
The way it works is, if you see improvement, you gradually taper off the dose until you stop completely. That’s a massive plus for me—it's not something I have to take forever. And if there’s no visible result within the first six weeks? You stop the therapy entirely, which is also a great safety net in my book.

I'm with you—fewer drugs and fewer toxins is always better, but not when you're stuck in a situation like mine.
Thanks so much for the heads-up! I really hope your psoriasis is staying calm. Best, 😍

Hey! I completely agree with you. I think you gave everyone the perfect answer, and honestly, it's exactly how I would have phrased it based on everything we've all been through... The only reason I was digging for more details was because I'd been chatting with some folks who used Sandimmune in liquid form, so I was curious about your specific experience... BEST WISHES!👍

Chris Morgan67 said:haha! 😬

Robin Robinson8, I am seriously so happy to hear you're feeling better. Going from 90% coverage down to 15%—that is such a massive, life-changing difference.

thank you! 😁
I’m just genuinely thrilled—and honestly, it means a lot to be able to share this joy with all of you, along with whatever little advice I can offer regarding psoriasis. I really hope things stay this way. How are you holding up lately?
best to you and everyone here 😍

Sophia Martinez3 said:Hey, I totally agree with you—honestly, I think you gave everyone the perfect answer. It’s pretty much how I would have phrased it myself, given everything we've all been through... I was just digging for more details because I've been chatting with some folks who use Sandimmune in drop form, so I was curious about your specific experience with that... BEST,👍

I've heard about a Sandimmune oral solution, but there seems to be some distinction between standard Sandimmune and Sandimmune Neoral—I'm not entirely sure what the deal is. Could you please let me know how long your acquaintances have been using Sandimmune and what their experiences have been? I'm really curious. I don't actually know anyone else besides myself who uses it for psoriasis.
best, 😍

jadesailor14 said:our Doctor of medical and pharmaceutical sciences advises😬


🙂 I see you watching me

Meanwhile, we’re all being watched by our great moderator who apparently knows "a little bit about everything" and only steps up to protect our health when I happen to post something.
You actually scared me this early in the morning, thinking you were hovering over my shoulder.
Try stepping in once in a while when other people are out here promoting random poisons from sketchy websites all over the planet, instead of only showing up whenever I write something.

You're becoming transparent.

Regards

Robin Robinson8 said:thanks 😁
I am genuinely happy and truly glad to be able to share this joy with all of you, along with a bit of advice regarding psoriasis. I just hope things stay this way... How are you doing?
best to you and everyone here 😍

I'm doing okay, thanks for asking.😍
I have a few spots on my body... I just stick to neutral creams and oils.

The only thing giving me trouble lately is my scalp...🙄

Chris Morgan67 said:Alright, thanks for asking.😍
I have a few spots on my body. I am only using neutral creams and oils.

The only thing giving me trouble lately is my skin.🙄

Do neutral creams and oils actually help? Which specific ones work best?

hiddenviper17 said:Do neutral creams and oils actually help? Which ones specifically?

Honestly, just scroll back through the previous pages; I’ve already covered that in quite a bit of detail...😉😉

Understood. I will simply state that nothing works for me anymore. 😢

Chris Morgan67 said:Alright, thanks for asking.😍
I've got a few spots popping up on my skin... right now, I'm just sticking to neutral creams and oils.

The only thing that’s been giving me trouble lately is my scalp—it's just being a bit difficult.🙄

Hmm, I’ve been using a 5% salicylic acid mixture—mixed into either lard or olive oil—applying it and then wearing a plastic cap overnight. In the morning, my mom helps me clean it off and brushes away the flakes with a fine-toothed comb. It seems to have calmed things down quite a bit—both on my body and my scalp—though now I just have this tiny bit of dandruff left. For that, I just apply a little olive oil so it absorbs, and then use the comb again to brush everything out. I’ve also been washing with baby shampoo. I'm not sure what you've been trying so far!? Cheers! 😍

Robin Robinson8 said:hmm, I’ve been using 5% salicylic acid mixed into lard or olive oil. I slather it on, throw on a plastic shower cap, and leave it overnight. In the morning, my mom helps me clear off the flakes with a fine-tooth comb. It’s calmed down quite a bit now—my scalp just has this tiny crust left, so I just dab some olive oil on it to help it soak in, then comb it out again. I’ve been using baby shampoo. Not sure what you've been trying until now? Cheers 😍

If you wash your hair constantly, stop. Try to limit shampooing to once if you can; it keeps your scalp from drying out so much. Even baby shampoo isn't a magic fix for everyone, personally. You might need to rotate two different shampoos—like, three washes with one, then three with the other, and just keep cycling them. Also, ditch the blow dryer if possible; that heat just kills your scalp. After washing, if you've got psoriasis right at the hairline, try applying something neutral like a basic moisturizer, Vaseline, or even some plain petroleum jelly.

Lawrence Ramirez3 said:If you're washing your hair frequently, just be careful—if you can manage to shampoo only once, do it, because it keeps your scalp from drying out so much. Personally, even the baby shampoos don't really work for me. I think it might be better to alternate between two different shampoos—maybe three washes with one, then three with the other, and keep rotating them like that. It would also be a good idea to skip the blow dryer, since that just dries out the scalp even further. Also, if you have psoriasis right at the hairline, you should probably apply a neutral cream after washing—something like a plain base cream, Vaseline, or maybe some ointment from a local pharmacy.

Thanks for the advice! Do you happen to have any solutions for these tiny little flakes I'm dealing with right now? I can't get them off at all—unless I apply olive oil and very gently brush them out with a comb. They look like slightly larger dandruff, honestly. I wouldn't even touch them if they weren't right along my hairline where people can see. I just put some regular Nivea on those edges, which seems to help. Otherwise, I don't really blow-dry my hair unless I'm in a huge rush to get somewhere, since it usually air-dries pretty quickly anyway. As for shampoo, I've been using that yellow one from CVS; I heard it's actually better than the Johnson's stuff.
Best, 😍

I have some questions regarding the packaging: My mother (who is an aromatherapist) uses:
- base oil: sometimes sunflower, sometimes olive
- essential oils: rosemary, lavender, and geranium

She used to include sage, but the scent was too strong, so she stopped using it. 😁
We will prepare the mixture tomorrow.🙂
They say applying it to wet hair is better because the oil washes out more easily later (especially for those of us with long hair).

Robin Robinson8 said:Thanks for the tip. Do you have anything for these tiny flakes I'm getting right now? They’re impossible to get rid of unless I slather on olive oil and try to comb them out gently. It looks like heavy dandruff. I try not to touch them unless they're right at the hairline where they show. I just put some regular Nivea on the edges, which works okay. Otherwise, I don't even bother drying my hair unless I'm in a rush since it dries pretty fast on its own. For shampoo, I just use some yellow stuff from CVS; I heard it's better than Johnson's.
peace 😍

☕ 5% salicylic acid is a heavy hitter. The catch with salicylic is that it just peels off the scales, leaving the redness behind as a perfect breeding ground for new ones. Try applying the treatment to your scalp only half a day before you wash it. Once you rinse, just use a neutral cream on the hairline. Between washes, don't put anything on—except maybe the salicylic or the Diprosalic lotion (which also has salicylic), but only about half a day or a full day before washing. Some yellow shampoo? 😁 Shampoo is actually a huge part of this whole process. Give the L'Oréal shampoo for frequent use a shot: "Sensitive Scalp shampoo for normal to dry hair." It's the white and blue bottle with a little pink square on the front. It's pricey, like $15-$20 a bottle, but you can't compare it to that cheap drugstore stuff from CVS or Walgreens. It soothes the scalp like nothing else you'll find in a local shop. If you can, just shampoo once and rotate through different types every three times.
Later.

Given how bad my scalp condition has gotten, I'm planning on shaving it all off to a buzz cut.
Do you think this would actually help me heal? And how long could I realistically keep my scalp "clear"?

Lawrence Ramirez3 said:☕ 5% salicylic acid—that’s a pretty high concentration. The tricky thing about salicylic is that it just peels off the scales, but the redness stays behind, basically acting as a foundation for new flakes to form. Maybe try applying the treatment to your scalp only half a day before you wash your hair. Once you rinse, just use a neutral cream along the hairline. Between washes, don't apply anything else—meaning, maybe use the salicylic or the Diprosalic lotion (which also contains salicylic) just a half-day or a full day before washing. What about a yellow shampoo? 😁 Shampoo is actually one of the most critical parts of this whole routine. I’d suggest trying the L'Oréal shampoo for frequent use: "Sensitive Scalp shampoo for normal to dry hair." It’s the white and blue line with a little pink square on the front. It’s pricey—about $15 a bottle—but honestly, you can't compare it to whatever you grab at a drugstore. It soothes the scalp like nothing else you'll find in a shop. If you can, just shampoo once, and maybe rotate between two different ones.
Best,

Well, I don't really have any flakes on my head right now, so I guess it doesn't matter much what I use since it isn't bothering me anymore. I just want to clear up that "dandruff" along the edges.
And isn't Diprosalic lotion essentially the same as Elocom or Belisalic? It's all the same chemistry, right—all corticosteroids?👎 That stuff absolutely dried out my scalp and it burned like crazy. I used it twice and never again.
Thanks for the advice! Best,😍

Robin Robinson8 said:Honestly, I don't even have flakes on my scalp right now, so I don't really care what I use since it's not bothering me. I just want to get rid of that "dandruff" along the edges.T
Isn't Diprosalic lotion basically the same thing as Elocom or Belisalic? It's all the same chemicals, all corticosteroids, right?👎 It totally dried out my scalp and felt like it was burning. I used it twice and never again.
Thanks for the advice! cheers 😍

Well, if there aren't any flakes, then great—you should probably focus on your shampoo instead. I was just speaking from my own experience, because I couldn't get mine under control without corticosteroids. I wasn't suggesting you use them every single day, but hey, if you don't want to, that's fine. Unfortunately, when psoriasis gets a bit more aggressive, it's hard to fix with just some neutral creams. Maybe try some calendula ointment? People say it works for psoriasis; I tried it myself with zero luck, but who knows, maybe it'll work for you.
Cheers 🙂

For me, Elocom was the only thing that actually worked—it felt amazing. But just like everyone else says, you really should only use it for a limited time.

hiddenviper17 said:Elocom was my only saving grace—it worked wonders, but like everyone else warns, you can't just use it forever...

Elocom works for me too, though I only use it for half a day right before I wash my hair, following that liquid method mentioned in the other post. Before switching to Elocom, I was using Diprosalic because my scalp psoriasis was absolutely brutal. It's fine now. A little flaking here and there, but nothing I can't handle.