feralcobra92
Active Member
74 messages
joined Aug 2006
A colleague of mine had surgery for colon cancer about six months ago, and after the operation at the Holy Spirit hospital, he was sent off for radiation and chemo over at the MD Anderson Cancer Center. Honestly, that’s when the real nightmare began for them! First, they promised they’d call him in for his radiation sessions, but then they didn't say a word for months, and then—get this—the machine broke down three separate times in just two months! To top it all off, Medicare actually denied coverage for his Xeloda medication, which he handles incredibly well, even though he has to deal with much more difficult IV therapy instead. On top of all that chaos, he hasn't been sent for a single blood test, any tumor markers, an ultrasound, an X-ray, a CT scan, or anything of the sort! So, they are basically sitting there in total limbo, having absolutely no idea if the tumor is coming back. When they finally asked if his doctor could write up a recommendation for the hospital board to get his medication covered, they were shocked to find out he doesn't even have a primary doctor assigned to him; apparently, that specialist was only overseeing the radiation portion. They’ve ended up paying out of pocket for every single bit of information through private doctors, starting with the surgeon who kept nudging him to come in privately and pay, and now they're seeing a private oncologist over on Kačićev who gives tons of advice regarding tests and follow-ups, but none of those tests actually get performed!
So, here is my big question. Is this kind of runaround totally normal, and what on earth is a person supposed to do? They don't have a ton of extra cash to just throw at everything.
I suggested to her that maybe they should look into transferring to a different hospital system entirely, but I'm honestly stumped on where to go. Does anyone know how they might be able to secure that medication, and what the actual process looks like? Who can they reach out to, and is there a specific hospital in New York City that actually runs things more efficiently?