Posts by Angela Wright

ruggedtinker8 said:She got it, she definitely got it 😁
Women can have muscles like stallions too 😉

Honestly, women usually have nerves of steel while men act like total snowflakes, which is why they end up having meltdowns over everything... you clearly fall somewhere in the middle of that spectrum. 😁

ruggedtinker8 said:Is it actually normal to feel this pain in my lower spine just above the tailbone and in my right knee when I'm standing? It’s a weird sensation—almost like everything is made of glass and could just shatter internally at any moment. 😢?

(Thank God I’ve got legs like an athlete, otherwise I wouldn't be able to power through my walks without feeling it... 😁 )

Then there's the constant temperature swings in my head, like waves hitting me, random facial flushing, and this pins-and-needles sensation in my hands and feet that feels like being poked by candy needles, not to mention unbearable itching. Does all of that count as "normal"?

Sure, having some reactions is expected, but as for how specific or intense these symptoms are considered "normal"—you aren't going to get a straight answer here. You need to go back to the clinic where you received the vaccine to get a real medical opinion.

If my memory serves me right, drugs like Nexavar and Sutent can mess with the blood vessels in the brain, which might complicate things. You can verify this by digging through PubMed for published studies or just checking the manufacturer's own documentation.
Make sure you ask Dr. Miller about these newer medications. Honestly, you're the first person I've heard mention them. Regardless, if there's a valid medical indication, he'll recommend them—and once you have his professional opinion in hand, use it to push back against the oncologist at the hospital.

Just checking in here to leave a record for anyone else going through this...
My pregnancy ended early again at 34 weeks due to high blood pressure. They had to rush me into an emergency C-section, primarily because my first delivery involved a vertical incision on the uterus—which means any attempt at a vaginal birth carries a massive risk of uterine rupture. Throughout my entire hospital stay while they were monitoring me, I kept telling the nurses and doctors that I wanted to get sterilized. Their response was always some vague, "When the time comes, just let us know." Well, the time finally came. I was all sedated and being moved up to the OR, and I told one nurse, then another, then the midwives: "I want the sterilization." Every single person just told me, "Just tell the doctor." So, the doctor finally shows up to wait for the anesthesiologist, and I tell him straight up: I want the tubal ligation. He looks at me like I’m crazy and says, "We can't just do that on a whim; you should have requested this earlier, it has to go through a review board." I mean, give me a break! I'm 36, this is my second complicated pregnancy, and they honestly aren't even sure what's happening with my health after all the tests I've run before and during this term. Then he actually has the nerve to imply I don't meet the criteria because I don't have at least three kids. I looked him dead in the eye and said, "Doctor, you're the expert here—would you personally recommend I go through another pregnancy like this?" He just raised an eyebrow and said, "I need to make a call." He disappears for a few minutes and comes back saying, "Alright, I checked, you're cleared." Honestly, uffffffffff. I have no idea who he called—probably the Chief of Medicine or something. Anyway, he sat down with a nurse, dictated my statement, I signed the paperwork, and we bundled the procedure with the C-section. Everything went perfectly. No side effects at all.

placiddrifter19 said:Thanks so much for the advice.

I was hoping maybe Avastin might be an option. The radiation oncologist says they can't target the lungs because the metastases are too widespread. My only remaining move might be to ask if Gamma Knife surgery is possible in the short term just to clear a path for chemo. As for seeking treatment abroad, honestly, I haven't had a chance to look into it yet. I was secretly hoping we wouldn't have to go that route, and frankly, I wouldn't even know where to start.
I don't know—did we have any options here in the States to take on chemo at our own expense and responsibility, and would any local oncologist actually sign off on that? To be honest, I didn't even know what "off-label" drugs were, let alone which ones might apply....

Thanks,

Best,

To undergo any kind of oncology treatment, a person needs to be in decent physical shape. Unfortunately, based on everything you’ve described, things aren't exactly leaning in that direction. I’m no doctor, but I think you absolutely need to seek out a second opinion. It’s purely to rule out the potential fallout an oncologist at a major hospital might face if they dare to prescribe an expensive therapy to a patient with advanced disease and a very uncertain prognosis... I hope you understand where I'm coming from. In our healthcare system, there's a lot of pragmatism involved; people tend to pinch pennies when it looks like a situation is sliding downhill.
It isn't just about taking personal responsibility; it’s about medical ethics and whether it’s clinically justifiable to give someone a treatment that, in a doctor's view, might cause more harm than good regarding their quality of life—which is always the number one priority. Don't get me wrong, I'm referring specifically to therapies like Sutent or Nexavar, which generally aren't used once brain metastases occur or if the patient suffers the kind of complications your dad is facing. Sometimes the benefit does outweigh the risks, and those cases are reviewed individually, where the patient signs off acknowledging the dangers. Still, the ultimate moral and ethical weight rests on the physician managing the case.
Regarding off-label use—that refers to using medications that are FDA-approved for one condition but have studies proving they work for other diagnoses. In those instances, a doctor can prescribe them if there is a legitimate, justified reason.
You won't get anywhere without a second opinion. Dr. Miller is solid; you can start with him, and he’ll give you his straight opinion on whether anything makes sense. Once you have that, take that perspective back to your primary oncologist and neurosurgeon to see if they agree and if that surgery can be moved up.

I am sending you so much strength and courage, but I also want to warn you: you might not get the answer you're desperately hoping for. Unfortunately, navigating life in these situations often means making those hard calls and accepting reality. You surely realize by now what this disease entails, and I'm sure you've already done your homework. Given his diagnosis and the available treatments, your dad has held up incredibly well for a long time—kudos to him for his grit, to the doctors for managing the treatment well, and to you all for being such a great support system. I hope he gets more quality time with you, whatever that looks like, even if it means pivoting to palliative care. If the curative specialists take that stance, please don't mistake it for giving up on him. It isn't.

Listen, placiddrifter19, where exactly did you get the idea that Sutent should have been on the medication list when that first metastasis showed up? 😢
I’m honestly worried the oncologist might be right here. Since we're dealing with brain metastases, none of the standard therapies currently available are actually indicated. That said, I’ve heard whispers through the grapevine that doctors might take a massive risk if the patient specifically demands it. Personally, I’m skeptical about the lung radiation. Gamma Knife scares me, but by the time they go through with it, it might already be too late—if that tumor swells past the 2 cm mark, Gamma Knife won't be able to touch it.
Get a second opinion from a specialist overseas and seriously consider continuing treatment there. There might be some off-label drugs that could actually make a difference. You need to look into it.

Honestly, it feels like they’ve leaned way too hard on sedatives here, probably because they simply don't have the staff or the bandwidth to actually manage the situation properly. I'm not entirely sure why Dad ended up in the hospital right now, but if there is any way at all to arrange for home care, that would be much better for him.

Gary Thomas13, is the brain irradiated? Usually, smaller targets react pretty well to radiation.
Besides, even small liver lesions can be treated surgically if they're positioned correctly and there aren't more than two or three of them.

EDIT: I just realized this is my ten-thousandth post 😁 God bless me 😛

feralsurfer72 said:Carl Kern66 and John Foster38, Thanks! We’ll see what the doctor says this afternoon. Last night, our neighbor brought over some adult diapers, so we used those to wrap around his shins. The water is still leaking through. We just wrapped him up in a fresh pair. We're all completely exhausted.

Maybe that lovely Dr. Smith wants to swing by for a home visit and actually authorize some home health care and field nursing—that’s literally what she’s paid to do. Given this diagnosis, there’s a right to daily care sessions lasting up to 45 minutes. It’s possible she might scale that back since he can still move around a bit, but honestly, having someone pop in for ten minutes a day just to handle dressings and coming by once a week to help with bathing is more than enough.
The doctor can also write prescriptions for all the bandages, wraps, and any other medical supplies needed for home care.

Skip the diapers and just grab some cloth ones from Target instead. DM one podmetače za previjanje Look, you can use disposable diapers for kids, and honestly, the training pants work exactly the same way. But let’s be clear: you still need to put sterile gauze against the skin. These things are just a backup to stop leaks from making a mess everywhere.

My condolences. Last year, I basically drowned in a cup of Nespresso foam. I took a big gulp, swirling it around my mouth, honestly thinking it was just some stubborn undissolved coffee granules. Luckily, I realized something felt off right before I actually bit down. I didn't have any issues afterward, even though it was mid-July and the place was crawling with disgusting flies. 🤮

Maria Howard70 said:My dear friends... my dad passed away last night. May the angels watch over him.😢

Look, honey, please accept my deepest, most sincere condolences. 😢
I know there’s no such thing as a silver lining when you lose a parent—nothing really touches that kind of void. But eventually, it might bring you some peace to think that God spared him from further suffering, and kept him right there by His side.
May they rest in peace now. I’m wishing you and the rest of your family nothing but true peace of mind and heart as you lay them to rest.

Look, you really need to reach out to the clinic where you had the procedure done and get some professional advice. Under normal circumstances, things should be elastic enough that you could gradually work on expanding the area—if you know what I mean. Maybe try to gently stretch things out with your fingers when you're using the restroom, just a few times a day. Another thing that comes to mind is having him attempt penetration before he's fully erect. Most importantly, you have to find a way to relax. I bet you're constantly tensed up and feeling totally overwhelmed every single time.
I'm really rooting for you to get this sorted out somehow.

feralridge3 said:Angela Wright have you ever actually heard of a shining example of someone who successfully cured themselves?

That depends entirely on how you define "cured."
For God's sake, your mother has survived four different carcinomas that never even came back, until this breast cancer issue... personally, when dealing with malignant diseases, I wouldn't obsess over a total "cure" as much as I would focus on survival. If by cure you mean remission, then yes, that happens during the process, but there is absolutely zero guarantee that this crap won't happen all over again.

I've heard just about everything since I've been in this fight back in 2005. What matters is living a quality life and seeing things improve... as for what comes next, God only knows.

😁 These kinds of dilemmas take me right back to high school, dealing with those classmates who were always getting pushed around by everyone else.
Just get out into the wild. Maybe these guys are just looking for a ride toward some actual freedom.

feralsurfer72 said:Hey everyone 😘 , I was reading through everything you all posted last night, but I just didn't have the energy to jump in. I am absolutely wiped out and buried under work right now, so I'm basically just scavenging for seconds of peace.
My dad went in for a biopsy yesterday, and today my mom found out he’s being discharged from the hospital tomorrow. Since his primary specialist is on vacation, the on-call doctor gave us the bare bones:
a) He's getting out
b) His condition is actually declining
c) We’ll need to take him to a major medical center to see an oncologist once the biopsy results come back (his previous doctor gave his opinion before the procedure, so we can't go back to him).

Mom found out earlier this morning, and we both went down there this afternoon, but I didn't get any new info. He’s currently on an IV drip and receiving a transfusion; his legs have been incredibly swollen for days.
It only just hit me that tomorrow is Friday.
To make matters worse, his primary care physician is also on vacation. They don't discharge patients until the afternoon, so I'm stuck in limbo until I actually get the discharge papers in hand. I'm wondering if the hospital is required to ensure he has enough medication to cover the weekend.

I don't think they're legally obligated to, but they can definitely be flexible if you ask nicely. In my experience, they gave me enough meds to take home when I was discharged on a Friday. Beyond that, once you have those discharge papers, any local pharmacy can fill the prescription based on them. You pay upfront, then you get reimbursed once you present the official script from the doctor's office (either his regular doctor or whoever is covering for him—usually just the doctor on the opposite shift).

Maria Howard70 said:I guess I’m checking in too... honestly, I don't even know where to start. For the last month, my dad has been constantly vomiting, dealing with diarrhea, pain... he's dropped about 45 pounds in just those few weeks. After my sister pushed for it, his doctor finally wrote him an admission order for the hospital. Right around then, the CT scan results came back... it's a nightmare. His thyroid, lungs, liver, adrenal glands—everything is riddled with metastases. There's a cyst on his kidney, too. Now they're repeating abdominal scans at the hospital. It's pancreatic and colon cancer. He had a colonoscopy, which, obviously, I insisted on while he was under anesthesia. They've put in a nasogastric tube, and he's on constant IV fluids. Today, they gave him a morphine patch. We're all still in total shock. The doctors are being incredibly tight-lipped with information, too... I don't even know what to ask. Does anyone here have experience dealing with such an aggressive form of cancer, especially when it hits two different places at once?

Ugh, hang in there, honey. 😢
I am sending you so much strength and courage. Sadly, there isn't much I can say to make this better. Based on everything you described, it looks like things moved into an advanced stage incredibly fast—like a wildfire.
Just stay strong and try to be the pillar for your dad and the rest of your family.

bluejackal44 said:So, I went to use the bathroom, and right before I finished, I noticed some buildup in the toilet bowl. I leaned in closer to get a better look, and then I saw them—tiny little worms just wiggling around. I’m honestly freaking out right now. I’ve heard about worms in stool, but seeing them in urine is something else entirely.

About nine months ago, my urine had this really strange color and smell. I ended up heading to the ER because I don't have a primary care physician in the area where I live. They basically told me not to worry about it and suggested I drink more fluids, assuming I was just dehydrated. To be fair, I wasn't drinking much water back then. The smell eventually cleared up after a few months, but the color didn't change. It stayed dark and cloudy. I finally followed up with my doctor to mention what happened, and he just brushed it off, telling me it would clear up on its own. He didn't even order any tests.

And now, today, I spot those tiny little worms. Does anyone actually know what this could be? I've scheduled another appointment and I'm driving back home tomorrow, so I'll see what the doctor says then. I figured I'd ask here first.

I really hope it isn't this: http://www.cdc.gov/parasites/schisto...info/faqs.html Have you traveled recently, or has anyone you've been around traveled to tropical or exotic locations?
It is absolutely mind-blowing to me that with all the symptoms you described, your doctor didn't even suggest a simple urinalysis.
If I were in your shoes, I wouldn't wait for a scheduled appointment; I'd head straight to an urgent care clinic or a specialized infectious disease center where they can run a full panel and start treatment immediately. Stop putting this off for even one more day!

Henry Richardson91 said:Hey there,
I was wondering if anyone could clarify something for me. When it comes to minor procedures, like getting a lipoma removed, who is actually responsible for administering the local anesthesia? Is it the anesthesiologist or the surgeon?

Thanks

The surgeon.

ruggedtinker8 said:I had to get the rabies shot the other day because I got bitten by a cat.
Is there any chance of getting some nasty side effects from it?

Sure. It’s just like any other vaccine you’ll ever take.

silenttrucker58, feel free to hit me up in my DMs