Posts by mistydrifter55

And why on earth don't you just quit drinking coffee when it starts bothering you? 😕🤷

😛

I was wondering if anyone here has any firsthand experience living with neurofibromatosis.
Any kind, really.
Whether it’s you, a family member, or just someone you know.

What was childhood like?
How did the diagnosis happen?
And what are the main symptoms or manifestations like?

Morgan Thompson89, you've gotta check this out, It’s full of stories from moms dealing with similar stuff.

Adam Myers5 said:Hi everyone.

I’m posting this here, though I’m not entirely sure if this is the right forum. My apologies if I’ve misplaced it.

About a month ago, I started experiencing chest pains along with bouts of insomnia. I’ve also been dealing with tingling sensations in my legs—sometimes painful, sometimes just uncomfortable—but the worst part is this strange weakness. It isn't constant; it hits me a few times a day, or sometimes disappears entirely for days at a time. I went to see my doctor, who ordered a full battery of tests: blood work, a chest X-ray, and an echocardiogram. Everything came back normal. My cardiologist suggested it might be gastric issues since I’ve been dealing with frequent acid reflux, but that doesn't really explain the weakness or the tingling in my legs. I'm wondering if I should see a neurologist or perhaps get imaging done on my spine. If anyone has any advice or suggestions, I'd appreciate it. Thanks.

Total panic mode.
Go see a therapist.
That's pretty much the standard diagnosis these days. Nothing new there.

Everyone reacts to medication differently.
Personally, using an Immigrant spray just leaves me feeling even worse than before.
It clears up my aura symptoms and that blind spot in my vision, sure, but then the headache hits twice as hard and lingers for almost two days...
My doctor once prescribed some pills to take on a continuous basis—I can't even remember the name now—basically a type of medication used for epilepsy. I took one single dose and felt completely "drugged" for three whole days. After that, I told her: NEVER AGAIN!!!
We're all wired differently...

Charles Cox8 said:Thanks for the heads-up. 🙂
It usually starts like this: first, there’s this weird flickering in my peripheral vision—could be the left side, could be the right, doesn't really matter—and everything just starts spinning. My field of vision gets totally blurry, too. It’s like I’m half-blind, though I can’t even describe it properly. The light and noise become unbearable, and sometimes, I lose the ability to talk normally. It isn't even because of the pain, per se, but more like some kind of mental brake is being pulled that just stops me from communicating. It might sound crazy, but in those moments, I basically go mute. Then, once that settles down a bit, the headache hits me like a freight train. Since I’ve never actually been diagnosed with migraine and other headaches, I just grab a 400mg Motrin and hope for the best. If I'm lucky, the pain stays manageable or maybe just stays mild. A few years back, I had this terrifying period where my entire left side—face, throat, arm—just went numb. Honestly, it was one of the scariest things I've ever felt. Thankfully, it just stopped on its own.
This whole thing started back when I was maybe six or seven years old, and honestly, it just hasn't let up since. Like I mentioned before, I actually went to see a neurologist last year, but the doctor told me straight up that it isn't even a migraine.
Has anyone else dealt with something like this? Seriously, if you have, or if anyone out there knows, I’d really appreciate some advice on who I should even talk to. I honestly thought I could just handle this on my own and get it sorted, but I failed. I guess since it isn't something that happens all the time, I wasn't exactly being super persistent about it. Especially after they told me my CT scan came back fine. So, yeah. Help.
Thanks!

Wow, reading that felt like looking in a mirror...
Aside from having a formal diagnosis, my EEG actually showed that these "attacks" are real. My neurologist sent me for a CT scan, but they found absolutely nothing in my head—just empty space 🤣.
Later on, I read in a few places that a CT scan is pretty much useless for migraines...
All that medication and chemical stuff just makes things worse for me. It barely touches the symptoms, and honestly, it knocks me sideways so hard I'm out of commission for days.
I used to just give up on the meds entirely; I'd take some Percocet and just deal with it.
Now, I can't even do that. I'm feeling a bit like I might be pregnant, so no drugs or heavy chemicals for me!
The trigger for a migraine is so subjective, isn't it? Everyone has their own reasons.
For me, I realized it's purely psychological. It's like my brain just decides to shut down when I'm under too much stress! 😁 🤣
Once I figured that out, I changed my strategy. No more panicking and thinking, "Oh no, it's happening, I'm doomed!" 😲
Since I can't take pills, I focus on riding it out. I'll sit there, decompress for an hour or two, and dive into some work that forces me to focus on something else. After a little while, I realize I feel like a new person—without having taken a single pill or sitting in a pitch-black room...

Anyway, something was rattling around in my head today... and it wasn't a headache...

How do you fellow migraine sufferers deal with blood sugar levels?

Mine is right on the lower limit. My partner and I were talking, and we think these attacks probably hit when my blood sugar drops too low and my brain isn't getting enough fuel. It sounds logical to me, so I wanted to check in with you all to see if that theory holds any water...

Thanks in advance!

Sure, but they're asking the wrong people. Thank goodness they stumbled onto the right thread on Reddit... Seriously, kudos to everyone here—both those asking and those jumping in to help. That’s exactly why this place exists, right? To swap stories, opinions, and everything in between. 😬
Let's be real, though. We're just Redditors, not OB-GYNs... 😉

driftingseal3 said:The issue is that I live pretty far from Washington, D.C. - 174 miles so making frequent trips out there isn't practical for me... and as for the doctors, everyone just stays silent, and that is driving me absolutely insane. 😈

Look, you're close enough to a major city. In a place like that, there’s bound to be a hospital nearby, and they'll definitely have a maternity or OB-GYN ward. 😉 Just go there and ask! 😬

😁 I’m just messing with you, but honestly? If I were in your shoes, I’d be out there hunting down whoever actually has the answers.
I wouldn't waste my time stressing over what’s coming. Whatever happens, happens. 👍

I honestly think a gynecologist SHOULD be telling you whether or not certain meds are safe during pregnancy. If they aren't giving you those answers, they probably don't have a clue.
Do yourself a favor and go ask someone who actually knows their stuff. Get a referral to see a specialist at Vanguard or maybe Mayo Clinic, just so you can get a straight answer.
I don't see why you should feel miserable if there's even a chance to find a compromise.
Your health comes first—for you, and then for the baby.
Look, you have to carry this pregnancy through to the end, right? So there's really no debating how bad you feel; you just have to feel fine, period!
😘

Matthew Cruz41 said:1. if they sit reasonably well on my hips
2. if I can actually get them buttoned up
3. if they look good on my hips and waist
4. if my butt looks decent in them
5. if they fit right from my waist to my knees
6. if I can actually squat in them without an issue

that’s pretty much it 🥳

And honestly? Most people find those exact issues are easy enough to fix... 😉

I honestly can’t wrap my head around how many women are just completely reckless when it comes to their own health.

If my period was even ten days late, there would be two very specific ways this plays out.

1. I’d have already burned through eight different pregnancy tests...
2. Or I’d have already been breathing down my boyfriend's neck to figure out what's going wrong.

So listen, ladies, if you're running late, it is time to get on your man's case IMMEDIATELY!!!

And if you haven't realized that yet, I am being DEAD SERIOUS!!!

Once you've had that talk with him, go ahead and hash it out over on Reddit!!!

Honestly, I think you’re just feeling the seasonal shift. It happens to the best of us. As for the breast enlargement? Your hormones might just be acting up. If you’ve started seeing someone more serious lately—not that I’m fishing for details—your subconscious can actually trigger hormonal shifts that result in things like fuller breasts or even a better complexion.
If you were actually pregnant, you’d probably be dealing with a whole host of other symptoms by now.
Anyway, once you figure out if you are or aren't, let us know. We need to know whether to factor your "symptoms" into the equation next time! Bye!

Hey ladies!

One of you posted a link a while back to a site that tracks fertile and non-fertile days. Well, my computer got wiped a few days ago, so I lost the link.
If anyone happens to have it, could you please drop it here again?
I’d be super grateful!

🙏 🙏 🙏

crimsongull20 said:I know a guy who, while ranting about this exact same thing once, actually cried out:
"Wherever I go, I go!" 😎

Ugh. That sounds heavy...

We don't need to compare someone's crappy work to something even worse just to make it look acceptable.

Go find someone to pinch you!!!😁