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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 74 views · 2.3K replies

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quietviper26 quietviper26 Newcomer
1 message
joined Jul 2014
#2081 ·
Hi everyone, I wanted to reach out and offer a little bit of hope to those of you who feel like they've hit a dead end with psoriasis. My journey started when I was 33, about nine months after giving birth, and within just two months, things flared up quite aggressively—covering my scalp, elbows, forearms, shins, soles of my feet, lower back, and even my pelvic area. Initially, doctors put me on heavy corticosteroid creams, which involved wrapping myself in plastic wrap, taking medicinal baths, and going for daily UVB light treatments. Everything actually cleared up after about three weeks, but then over the following three months, it came roaring back five different times. The itching was absolutely the worst part. It happened during the spring, and I genuinely feared I would never be able to wear short sleeves or shorts again; I lived in gloves, long sleeves, and long pants just to hide it. Eventually, they suggested I undergo PUVA therapy and take some pretty intense oral medications, but at that point, I just couldn't face it. Instead, I decided to see Dr. Aleksandar Soltysik, a physician and homeopath, who prescribed a treatment plan that cleared everything away within two to three months. By that summer, all that was left were some depigmented spots, which eventually faded away in the sun. After that, I took the treatment sporadically for about six months and remained completely clear, though once I stopped entirely, a little bit reappeared on my elbows, so I simply went back on it and it cleared up again. I really recommend looking into this. My doctor explained that everyone reacts individually—some people might need much longer for it to subside, and others might need to stay on it almost indefinitely. Of course, there is a cost involved, but it’s worth it because the psoriasis is gone. If anyone is interested, I am happy to share the address and phone number. Best wishes to you all.
hiddenviper17 hiddenviper17 Member
45 messages
joined Sep 2008
#2082 ·
I would highly recommend Gospino oil. I applied it under my breasts and the redness cleared up completely.
The same oil worked perfectly on my back without any irritation either.
Kate Williams41 Kate Williams41 Member
47 messages
joined Mar 2008
#2083 ·
quietviper26 said:I went to see Dr. Aleksandar Soltysik (he’s a doctor and uses homeopathy) and he put me on a treatment plan that cleared EVERYTHING up within 2-3 months. By that summer, all I had left were some light spots that eventually faded away in the sun. After that, I took the treatment sporadically for about six months and my skin was totally clear. When I stopped after those six months, a little bit popped up on my elbows, so I started back up again and it vanished once more. I highly recommend it to everyone. My doctor mentioned that everyone reacts differently—some people might need much longer for it to work, or even need to stay on it almost indefinitely. Of course, there's a cost involved, but it's worth it... the psoriasis is just gone! If anyone wants the address or phone number, let me know. Best to you all.


Can you give us more details on what that therapy actually involves?!

Thanks so much....
quietviper26 quietviper26 Newcomer
1 message
joined Jul 2014
#2084 ·
Kate Williams41 said:Could you go into a bit more detail about what that therapy actually involves?

Thanks so much....

I certainly can; essentially, it consists of high doses of Vitamin A, Vitamin B3, zinc, and something called PSORINO—which is a specific formulation patented by some Dutch researchers. It's based on fumaric acid, which is actually used quite commonly in the American food industry as a perfectly safe additive. Everything is taken orally in the form of capsules or tablets, usually two or three times a day. For a full two-month course, I believe I spent roughly $333. The important thing to note is that everything involved is safe, doesn't cause side effects, and can be taken alongside any other medications you might be using. One thing to keep in mind, though, is that if you've been dealing with psoriasis for many years, you shouldn't expect a total clearance within a single month; it took me two months because I started attacking the issue almost immediately after my first flare-up appeared. A friend of mine has been struggling with this for over a decade and has tried just about everything from prescription drugs to herbal remedies. The only thing that ever really worked for him was some herbalist out in Herzegovina, but that was a complicated process involving a very strict diet and soaking in nettle tea three times a day. It required intense discipline; as long as he stuck to it, his skin cleared up, but the moment he relaxed, it all came back. Once he saw my results with Dr. Soltyišik, he decided to try the therapy himself, but when he didn't see the same rapid turnaround I did after two months, he gave up. He mentioned he could see some changes, but he was simply looking for a faster recovery. In my opinion, you really just have to be persistent.
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#2085 ·
Just a quick update on where things stand... since I ditched the empty promises of things like elocom or dyprosalic and whatnot, I can finally say my psoriasis is actually under control. For about six months now—maybe a little less—I’ve just been using a basic moisturizer. It isn't gross, it's slightly visible sometimes (though honestly, some days you can't see a thing), but overall? I'm beyond happy with it. Yeah, it itches a bit, but I'm not letting it win... I'm holding my own, what else can I do?
Ethan Perez4 Ethan Perez4 Newcomer
4 messages
joined May 2008
#2086 ·
So, I figured I should probably jump in here too. I’ve been dealing with psoriasis for about a year now, and honestly, I’ve tried a few different creams and ointments, but nothing seems to have actually done the trick. It’s been quite a struggle, I guess.

quietviper26—if you wouldn't mind, could you please send over the address and phone number for Dr. Aleksandar Soltysik? I would be incredibly grateful, as I’m really hoping to try out the exact same therapy he recommended.

Thanks so much!
granitefalcon13 granitefalcon13 Newcomer
4 messages
joined May 2008
#2087 ·
Gerald Davis2 said:hmmm.. I actually heard about this today.. so you might as well give it a shot
this new psoriasis gel developed by Johnson & Johnson
more info here:

Look, Rebra, I've been using Tazarotene for a year now and it hasn't done a damn thing for me.
granitefalcon13 granitefalcon13 Newcomer
4 messages
joined May 2008
#2088 ·
I'm curious if anyone else here deals with psoriasis on their feet. Honestly, it’s such a nightmare that I’m forced to wear closed-toe shoes even in the middle of a sweltering summer.
If anyone has found something that actually works better than the standard stuff, please let me know.
granitefalcon13 granitefalcon13 Newcomer
4 messages
joined May 2008
#2089 ·
steelseal13 said:I definitely wouldn't touch my 🙂.... besides, just trying to visualize what that would even look like 😱
Just dive right in (like Little Mermaid) and let the little fish find their way to your pelvic area 😍

No, absolutely not shaving your head. It isn't that easy to deal with. Just apply some
DermaSmoothe/ExxonMobil
as a scalp oil, then throw on a shower cap before heading to
bed. Wash your hair in the morning.
I believe that oil has even made its way into Walgreens pharmacies.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#2090 ·
granitefalcon13 said:I'm wondering if anyone else deals with psoriasis on the soles of their feet. It gets so unbearable that I'm forced to wear closed shoes even in the middle of summer.
If anyone has better insights, please let me know.

Greetings to you and all our new members—hopefully, this thread finds some life again...👍

Unfortunately, I can't offer much help—all I know is that those with hand psoriasis often use creams paired with plastic gloves.
Regardless, you should definitely stick to footwear made from natural materials.

Sending my best to all my fellow sufferers here...👍

As for my own situation—I recently visited a well-known specialist who is frequently mentioned in various threads. I received quite a bit of solid advice; my current regimen involves salicylic acid in Vaseline occasionally, Psorcutan, and UVB light therapy.

Finding quality creams here in the States is difficult... It's a sad truth. Psorcutan is incredibly expensive (30g is $57), and many of the other effective creams I want to try simply aren't available on the American market.

To my fellow sufferers, the most important thing is having the budget—if you have the funds, the options for managing this are endless...😳

On a side note, a warm recommendation for Balmandol bath soak, which my doctor suggested. You can find it at any Walgreens. Just add it to the tub and soak for 20 minutes daily.
It’s perfection. I truly recommend it...🙏 $23 One container is enough for about 20 baths.
quietviper26 quietviper26 Newcomer
1 message
joined Jul 2014
#2091 ·
Ethan Perez4 said:I thought I’d jump in here and share my experience too; I was diagnosed with psoriasis about a year ago, and since then, I’ve cycled through several different creams and ointments, but nothing seems to have made a dent.

quietviper26—if you wouldn't mind sharing Dr. Aleksandar Soltyšik’s office address and phone number, I’d really appreciate it because I'm interested in trying the same treatment plan he recommended.

Thanks,

Dr. Aleksandar Soltyšik
Baruna Trenka 4 (Central Park)
Chicago
01 4923 500
He’s usually available during morning and afternoon hours, though I’d suggest calling ahead to schedule an appointment first; honestly, your best bet is to try reaching him on the phone in the afternoon, as things tend to get quite busy there, and you might actually need to call back over a few days to finally get through, so just be persistent. Good luck.
quietviper26 quietviper26 Newcomer
1 message
joined Jul 2014
#2092 ·
granitefalcon13 said:I'm really wondering if anyone else here deals with psoriasis on the soles of their feet. It gets so unbearable for me that I find myself having to wear closed-toe shoes even in the middle of a hot summer.
If anyone has found something that actually works better, please let me know.

I used to deal with an absolutely awful case where I had to take my shoes off three times a day just to scratch for fifteen minutes at a time. Fortunately, everything cleared up once I started the therapy prescribed by Dr. Soltyšik. On a day-to-day basis, mixing salicylic acid into some Vaseline helps lift those scales so things look a bit more presentable, and I’ve also tried the Balmandol bath which was quite effective, though I view all of that as mere maintenance rather than a total cure.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#2093 ·
quietviper26 said:I used to deal with a nightmare scenario where I’d have to take my shoes off three times a day just to scratch for fifteen minutes at a time. Everything cleared up once I started therapy with Dr. Soltyšik. Mixing salicylic acid into Vaseline helps lift the scales so things look a bit better, and I’ve tried the Balmandol bath too—it works well. But honestly, all of that is just maintenance...

First off, hello👍 and I'm glad you finally got your psoriasis under control.🙏

Still, fumaric acid isn't exactly something I'd take without giving it some serious thought... here's a link to a site about it: http://www.psorsite.com/fumaric.html
quietviper26 quietviper26 Newcomer
1 message
joined Jul 2014
#2094 ·
Hmm, there’s certainly a lot of information packed into that link, and while much of it is true, I have to say that I personally didn't experience any side effects at all, and my psoriasis actually cleared up. In any case, it feels like a much better option than relying on corticosteroids. I think I'll check in with my doctor to see if they have any specific insights regarding potential side effects. Thanks for sharing all this info.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#2095 ·
quietviper26 said:Hmm, that link covers quite a bit of ground, true, but I have to say I didn't experience any side effects, and my psoriasis cleared up. Regardless, it beats using corticosteroids. I'll ask my doctor if he knows anything about potential side effects. Thanks for the info.

No worries, I tend to spend my free time digging through things online...🤣

By the way, here is a link to an EU Commission study regarding the safety of fumaric acid http://ec.europa.eu/food/fs/sc/scan/out112_en.pdf

From what I can gather, these preparations have been sold in Germany for fifteen years under the names
Fumaderm and Fumaderm Initial, but whether due to legitimate reasons or certain lobbies, they aren't necessarily the most natural or safest things out there. Just thought you should know. I think the most important thing is to stay informed about everything you ingest 🙂

Best, 🙂
Ethan Perez4 Ethan Perez4 Newcomer
4 messages
joined May 2008
#2096 ·
quietviper26—thanks so much for sharing that address!
granitefalcon13—so, I actually dealt with psoriasis on my heels myself, and I guess I should probably mention that the Psorilys lotion (the one with 10% urea) really worked wonders for me... like, it helped quite a bit in just about 10 days, if that's even possible! I think a 500 ml bottle costs around $83 at a local Walgreens.
granitefalcon13 granitefalcon13 Newcomer
4 messages
joined May 2008
#2097 ·
Ethan Perez4 said:Virdiana—thanks for the info.
granitefalcon13—I dealt with psoriasis on my soles myself, and I’d highly recommend using Neutrogena lotion (the 10% urea version). It worked wonders for me in just about 10 days. You can grab a 500 ml bottle at the pharmacy for about $83.

You know, zdesu, I’ve tried just about everything under the sun, but nothing seems to stick when it comes to my feet. It's honestly a nightmare. The skin gets these thick, heavy patches all over my toes and the entire sole. Now that summer is rolling in, I'm at a total loss for what to do next. I have some 50% urea cream right now, so I’m going to give that another shot. Currently, I've been using rose oil, which helps a bit with the cracking, but the thickening is still just as bad.
Aaron Anderson5 Aaron Anderson5 Newcomer
2 messages
joined Apr 2009
#2098 ·
I was diagnosed with psoriasis three years ago, and honestly, I’ve been fighting a losing battle ever since. I’ve tried all those heavy-duty ointments the doctors swear by, but it feels like a total scam—as soon as I stop applying them, everything flares up even worse than before. Now, my arms and legs are completely covered in these spots that just keep spreading further every single day. I’m at a total loss and feel completely stuck, so I am desperately asking for any advice on an actual, effective way to treat this.

I'm only 21, and I know some of you here truly understand the struggle... 😢 Summer is right around the corner, and while everyone else is thinking about sunshine, skirts, and hitting the pool, the mere thought of missing out on all of that makes me want to spiral. Just knowing I'll be stuck hiding under long sleeves and pants while everyone else enjoys the weather sends me straight into a depressive funk
.

Thanks in advance!
hiddenviper17 hiddenviper17 Member
45 messages
joined Sep 2008
#2099 ·
Why does it need to be covered by pants?
There is no reason to feel ashamed of an illness.
The more sunlight you get, the better. It helps manage psoriasis.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#2100 ·
Aaron Anderson5 said:I was diagnosed with psoriasis three years ago and I've been fighting a losing battle ever since. I tried all the creams my doctors suggested, but even when they worked, the flare-ups would come back even worse the moment I stopped applying them. Now my arms and legs are covered in spots that are slowly spreading everywhere. I'm at a total loss and would appreciate any advice on an effective way to get healed.

I'm 21, and I think you know how this goes... Summer is coming, the weather is getting nice, sun, skirts, pools—just thinking about missing out on all of that and being stuck in long sleeves and pants puts me in a depression... 😢.

thanks in advance!

Morning, dear🙂.

My suggestion is to find a solid private specialist. Definitely look into whether UVB or UVA light therapy is an option available to you locally...
.
If you aren't near the coast and can't access medical phototherapy, maybe try a tanning salon. It helps quite a bit...
.
best,🙂🙂

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