Psoriasis [PLEASE READ FIRST POST!]

Michael Ramos3 said:Don't assume anything and honestly, just don't listen to anyone here. Nobody can tell you what's going on based on just a description.
Go straight to a dermatologist so they can take a skin biopsy and run tests to get a real diagnosis.
I guess it might be better if you don't put anything on your skin for a bit before they take the sample, and even then, waiting for results takes maybe 10 days.
So, yeah, to cut down on the uncertainty, just hurry up and see a specialist.

I honestly hope you won't have to "hang out" on this forum much longer.

Best,

They did a biopsy on me, but it didn't show anything. I have a friend who also deals with psoriasis, and they've had samples taken a few times too—nothing. I guess a biopsy doesn't always give an answer, but you definitely need a good doctor.

Kate Williams41 said:Look, we can't say for sure if it's psoriasis or not!! Just try not to panic, okay? You don't want your little one picking up on that stress, because if it actually is psoriasis... god forbid, that could really mess with him.
The best move is just to go see a dermatologist right away. Seriously, don't wait on this one.😢😢

What I was actually trying to get at is that my uncle has psoriasis too, so I definitely inherited it from him. So yeah, it's totally possible.....😢

Psoriasis is definitely a genetic thing!!!!

Good luck with everything!!!!!!!!🙂

But in my family, nobody else has it. I have psoriasis and my daughter has vitiligo, even though none of the older relatives seem to remember anyone ever having anything. It’s just bad luck, I guess. Or maybe just our luck living here in the States. Anyway, hi to everyone on the forum and good luck with the treatment.

Sandra Gomez56 said:In my family, nobody else has dealt with this. I have psoriasis and my daughter has vitiligo, but even the older relatives don't remember anyone ever having it. It’s a stroke of luck, I guess. Or maybe just our welcome to America. Sending good vibes to everyone on the forum—good luck with your treatments.

Even before my uncle, absolutely nobody had it!!!!!!!!!!!!
There has to be a "Patient Zero" in every family line!!!!!!!!!!!!!!! And almost every single article you read about psoriasis mentions genetic inheritance... even if that isn't always the case!!

Quoting:
"What causes psoriasis?
The exact cause of psoriasis remains unknown. However, genetics seem to play a massive role in how susceptible someone is to developing the condition. Beyond heredity, other factors like infections and stress can influence both the onset and the progression of the disease."

Sandra Gomez56 said:Has anyone ever heard of those KALAWALLA capsules for psoriasis and vitiligo? What’s the deal with them? Where can I actually get my hands on some?

You can pick up Kalavalu in Ljubljana at two different spots:

1) TRIFILON Research and Development, 20 RIMSKA CESTA, 1000 LJUBLJANA
tel: 01 251 2173.

2) Dedra online pharmacy

The Sales Manager is Mr. Boris

e-mail: borisvel@gmail.com
Cell: +386(0)31 335 028
tel: +386(0)4 2028 386

Just shoot him an email and he'll send over all the details.

😉

Kate Williams41 said:Even before my uncle’s time, nobody ever had anything like this!
There has to be a catch here. Seriously. Almost every single article you read about psoriasis claims it’s tied to genetics—as if that's some absolute rule. But we all know that isn't necessarily the case, right?

Quoting:
What exactly triggers psoriasis?
We still don't have a definitive answer as to why psoriasis flares up. It seems clear that genetics play a massive role in determining who is predisposed to developing the condition. But it isn't just about what you inherit, is it? Other factors heavily influence both how the disease starts and how it progresses—things like specific infections and high levels of stress.

She seems quite unusual to me. I’ve spent so much time reading up on this that I’ve started noticing so many similarities between her case and what my son is going through.
So, we’ve noticed some skin pulling on the hands from using that cream. Right now, the center looks white while there's this red ring around the edges. As for the scalp, there haven't been many major changes, though the scaling is constant. We also spotted a new patch on the knee tonight, so we're going to leave it alone for a few days to see how it develops. What do you think?
It’s exhausting, isn't it? I feel like we're still fighting in the dark because we haven't even identified what we're actually up against yet.
Is there actually a link between high triglyceride levels and psoriasis?

Grace Hughes42 said:the spot looks white in the middle now with a red ring around it,
is there a link between high triglycerides and psoriasis?

👍That’s exactly what a treated spot looks like when the psoriasis is finally backing off! You just have to stay the course and be persistent.

As for triglycerides, mine have always stayed within the normal range, unlike my psoriasis.👎

Grace Hughes42 said:It’s honestly so strange. From everything I’ve read, there are so many similarities to what my son is dealing with right now.
For instance, his hands are reacting poorly to the cream he uses; the skin is pulling, and the patches look white in the center with a red ring around them. On his head, there aren't many changes, just constant scaling. We noticed a spot on his knee tonight, so we're going to leave it alone for a few days to see how it develops.
It’s exhausting because we still don't even know what we're fighting against.
Is there any link between high triglycerides and psoriasis?

High triglycerides—if I'm following correctly—means higher fat levels... but... don't take that as a given!! I don't think there's a direct link to the cause of psoriasis either...
Personally, my skin looks exactly like that when flares pass while using certain creams, but even that isn't a rule. Psoriasis looks different on everyone, and every body reacts differently... to absolutely anything!!!

One thing I'll say again: please don't try to be a backyard doctor or just blindly believe everything people tell you. Honestly, even I can't say anything for sure if nothing has been officially diagnosed!!! There are so many conditions with similar symptoms. You can't just pinpoint a specific illness based on that; an average person who isn't a specialist simply can't make that call!!!

GO TO A DOCTOR AND FIND OUT WHAT IS HAPPENING WITH YOUR SON!!!! DO THE RIGHT THING FOR YOUR CHILD!

Best,

Robert Clark2 said:👍The spot where psoriasis is actually clearing up looks exactly like that. You just have to be persistent.

As for my triglycerides, they’ve always stayed within a normal range, unlike my psoriasis.👎

That’s exactly what worries me. Unfortunately, more and more connections seem to be surfacing.
Do you happen to know if liver enzyme levels have any link to psoriasis? My son's GGT level came back lower than the standard range.

Kate Williams41 said:High triglyceride levels—which I assume means higher fat content in the blood—but honestly, don't take that as gospel. I don't think there’s any direct link to what triggers psoriasis either...
Personally, my skin looks exactly the same when flares subside regardless of what I apply, but even that isn't a rule. Psoriasis presents differently for everyone, and every single body reacts uniquely to just about anything.

One thing I will say again: please don't try to be your own doctor or blindly follow what people tell you online. Even I can't offer much advice if we don't have an actual, confirmed diagnosis. There are so many conditions with similar symptoms. A regular person without specialized medical training simply shouldn't be trying to pinpoint a specific disease based on a few visible signs.

PLEASE GO TO THE DOCTOR AND FIND OUT WHAT IS ACTUALLY HAPPENING WITH YOUR SON! DO THE RIGHT THING FOR YOUR CHILD!

Best regards,

OF COURSE, THANK YOU FOR ALL THE ADVICE.
It helps a little bit to read through these suggestions, but I'm not looking to try any home remedies right now. We have a follow-up appointment this Wednesday, so we'll see what the doctor says then. I'm going to ask for more advanced testing so we can get a definitive diagnosis. Once we know for sure, then we can fight whatever it is.

Grace Hughes42 said:That’s exactly what scares me—how everything seems to be connected lately, unfortunately.
Tell me, do you know if liver enzyme levels have anything to do with psoriasis? My son's GGT levels came back lower than normal.

Back in the summer of 2005, my psoriasis vulgaris decided to level up by adding psoriatic arthritis and erythrodermic psoriasis to the mix. Talk about lucky, right?
At that point, I had to go on Neotigason therapy.
Before I could even touch the Neotigason, I had to get a full blood panel done.
Here’s how my initial results looked—the ones you're asking about: ASAT was 14 out of 25, ALAT was 10 out of 25, alkaline phosphatase was 172 out of 230, and Gamma GT was 12 out of 38, with a minimum value of 5.

Hey everyone!

I was reading an article in The Washington Post yesterday about Indianapolis—apparently, they're planning to expand their capacity and launch a new company called Ivanal. Their whole focus is going to be on manufacturing and selling specialized psoriasis creams used in medical treatments.

Greetings from a sweltering Belgrade.

-It looks like Kate Williams41 and Robin Robinson8 are pretty worked up lately. In all that agitation, you’re making a lot of mistakes and getting your logic backward. Regarding the posts about our new member—you’re both just repeating exactly what I said, which isn't exactly groundbreaking insight since it applies to almost any early stage of this condition. So, don't act like experts; if you don't have anything useful to add, just stay quiet.

-If you feel like you need me, then I certainly need you too. It gives you a target to lash out at so you can vent your frustration and discontent. It’s a perfectly natural impulse—to get rid of nervous energy—and it's fine if you two choose to take it out on me. What isn't fine is thinking that venting somehow solves your problems or makes you some kind of warriors who've conquered life's struggles (like dealing with one shady local vendor, as our dear moderator puts it) just because you can't handle other actual issues.

-This forum is public; it doesn't belong to Kate Williams41, so anyone can read it. If you're dealing with mild paranoia, see a doctor. That’s a topic for a different forum entirely, so maybe go find one of those, or go see a specialist (just like how you tried to send me to one a few months back). You aren't the moderator. As for him, he is who he is—we didn't pick him and we can't fire him—so just let him manage the boards.

-With that much aggression and rage bottled up, you're going to have a hard time managing even the milder forms of psoriasis.

-I heard that eating a piece of chocolate helps calm the nerves. I used to do that before every big exam.

-The ancient saints used to say, "Don't try to change the world; change yourself."

Best, and I'll talk to you later.

Michael Ramos3 said:Good afternoon from a sweltering Belgrade.

-If you feel like you need me, then I'm just as much in need of you. You guys are clearly just using me as a way to vent all that frustration and dissatisfaction. It's a totally normal, natural instinct—to get rid of that nervous energy. And honestly? It's perfectly fine if you two decide to take it out on me.

Love ya too!!😂😂😂

P.S. For the record, I'm actually a super cheerful girl!!!😁
So, your assessment is zero!

It probably feels like we're all losing our minds here. Honestly, nobody in my family ever dealt with this before me, so I’m basically the guinea pig for this whole mess. It’s not exactly a lottery win. Right now, I'm using Psorcutan, and the last bit of redness I have is just along my hairline. That's it—for the first time in maybe 15 years, everything else is gone. I finally got some relief after cutting my hair super short and switching to a specific medicated shampoo. My skin hasn't changed much overall; my hands look way better than my feet, and I haven't even bothered treating my feet because I just don't have the energy. Since summer is finally here—and you really have to experience it in person—I'm planning to take at least two weeks off for vacation. I'll be hitting the beach every single day, so I'm betting the ocean air and salt will clear up what's left on my hands, back, and stomach. At least my head is finally clear, and that constant irritation in my ears—which was a daily nightmare—is finally gone.
Just ignore this annoying, exhausting guy. Don't even bother arguing with him. Not a single word.

silentheron25 said:Just ignore this tedious, exhausting individual. Don't engage in an argument with him at all... not even a single word...

You always speak with such wisdom. Best regards...👍

Robert Clark2 said:Back in the summer of 2005, my psoriasis vulgaris decided to get real fancy and added psoriatic arthritis and erythrodermic psoriasis to the mix. What a lucky guy I was, right? lol.
That meant I had to start on Neotigason therapy immediately.
Before they’d even let me touch the Neotigason, I had to go through the whole ringer with full blood work.
Here’s a peek at what those first results looked like—since I know you guys are curious about the numbers: ASAT was 14 out of 25, ALAT was 10 out of 25, alkaline phosphatase was 172 out of 230, and Gamma GT was 12 out of 38, with a minimum value of 5.

Hey there! How did Neotigason end up working for you? Personally, I had such great experiences with it!

Sophia Martinez3 said:Hey there! How has Neotigason been working for you? Personally, I’ve had some amazing results with it...

Right back at ya!

So, for me, I started at 30mg a day. Within just 20 days, I felt like a whole new person—everything cleared up like it was never even there.
No side effects at all, seriously, none. I was getting my bloodwork checked every 10 to 15 days to stay safe. The only thing was, the erythrodermia had left my skin feeling pretty thin.
Over the course of a year, things stayed pretty much the same, maybe just a tiny bit worse than when I first started.

The following year, I tried the same dose again. But man, I ended up in the hospital because of some heart issues and blood pressure problems, so I had to stop the Neotigason therapy right then and there.

Bottom line? It actually agreed with me pretty well.

The only real headache was having to stick to a super strict "diet," plus the realization that I couldn't be a blood donor—not exactly the best news to swallow.

Best,

Andrew Ward9 said:Hey everyone!

I was scrolling through The Washington Post yesterday and saw this piece about Indianapolis. Apparently, they’re expanding everything and launching a new outfit called Ivanal that’s going to focus strictly on making and selling those psoriasis creams used in treatments.

Interesting... though most likely we psoriasis sufferers will just end up footing the bill. 😁 For instance, if you don't have Medicare coverage for it, you're looking at dropping a serious amount of cash just for a 20-day treatment cycle.

Michael Ramos3 said:When I say you shouldn't use this for vitiligo, it’s because that was our only outlier involving a woman. My friend—it’s always a friend, isn't it?—had been misdiagnosed and was using a different ointment. Within five days of starting that stuff, she ended up with much more intense redness around the edges of her white patches and significantly worse itching. Even my father thought it looked strange and went against everything we knew, so we told her to stop immediately. The very next day, her diagnosis was corrected from psoriasis to vitiligo.

Personally, I don't think there are such things as "failed cases." WHY?
Just the other day, a woman called us after ten days, wanting to return the ointment because she felt it wasn't doing anything for her. Her father handled it perfectly, telling her, "Ma'am, ten days have passed, and everything regarding how this works was explained clearly when you picked it up." We're just waiting for her to drop it off. It happens quite often where someone goes through one full dose (150g), breaks the seal, sees visible improvement (the patches get smaller, less itchy, and stop scaling), and then decides not to finish the treatment. They end up staying in that improved state for a very long time (even 2 or 3 years) without the psoriasis returning to its previous state. When they eventually decide to start again, they begin from scratch, and by day 20, the itching and patch reduction begin once more.

It’s also interesting to note a case where a young guy intentionally left one tiny spot untreated on his leg. His entire body cleared up, yet that single spot remains to this day—that was back in 2001 or 2002.

Another curious thing: sometimes, after the large, red external patches clear up, small little psoriasis spots pop up in places where they weren't before. These should be treated with the ointment just like the others, and they disappear very quickly. I think a famous local dermatologist gave the best explanation for this: it's subcutaneous psoriasis (the hidden potential of the disease) preparing to surface in the near future. This is definitely the final surge of the condition, and once you treat it with the ointment, it's OVER. (There are theories that psoriasis manifests internally, much like chickenpox or various other types of eczema).

If you want my contact number, please send me a P.M.; all my other info is public.

Sorry for being so long-winded, but other forum members requested this level of detail.

Have faith.
Pray,
hope,
endure,
forgive,
and LOVE,
and success will surely follow.

With humble faith,

Greetings, Greeting Ban

Is it possible to order this ointment, and if so, how?

hahahahhah, looks like Michael Ramos3 is finally gonna see some real cash—bet his first paycheck hits soon! 😂