Psoriasis [PLEASE READ FIRST POST!]
Started by mistybear4 · · 👁 30 views · 2.3K replies
#202 ·
Cortizone-120g$60 finally arrived here in the States.
Got my meds today; I guess Diprosalic just isn't cutting it anymore.😬
Got my meds today; I guess Diprosalic just isn't cutting it anymore.😬
#203 ·
Sophia Edwards said:Peter Vincenzo
Branka Krsmanovic 11
11000 Chicago
Tel/fax +1/312/241 65 32; 402- 283
Mob. +1 312 834 9 670
e-mail: visnjicp@eunet.yu
I got this address from Dr. Vincenzo—hopefully it's actually right! Might as well give it a shot, right? Nothing to lose!
Thanks for the heads up! I've already sent over two emails and even a physical letter, but... total silence so far. No word back at all.
#204 ·
I was wondering if any of you deal with nail psoriasis? To give you some background, my nails started developing these tiny little pits about ten years ago, and the diagnosis back then was psoriasis. 😢 I didn't really bother treating it at the time because there weren't any other symptoms besides those small indentations, and interestingly enough, they seem to clear up on their own around March every year, only to resurface again by September.
My nails are actually looking quite clear right now, buuuut I’ve noticed that my big toe nail is starting to turn a bit bluish. 😲 It’s growing in with this bluish tint specifically along the edges of the nail, and I have to admit, it’s making me feel pretty anxious. I can't tell if this is somehow linked to the psoriasis or if it's something else entirely. Does anyone here happen to know anything about this?
My nails are actually looking quite clear right now, buuuut I’ve noticed that my big toe nail is starting to turn a bit bluish. 😲 It’s growing in with this bluish tint specifically along the edges of the nail, and I have to admit, it’s making me feel pretty anxious. I can't tell if this is somehow linked to the psoriasis or if it's something else entirely. Does anyone here happen to know anything about this?
#205 ·
So, I’ve been dealing with psoriasis since I was only nine years old. I had these constant issues with tonsillitis growing up, and later on, it turned into strep throat—which my doctor told me was actually the trigger for the psoriasis in the first place. Back then, it was brutal... I mean, it covered me from head to toe. I tried using those UV light therapy lamps during the winter, but honestly? They didn't do a thing for me. I just waited out the cold months until summer hit, headed out to some sunny island to soak up the sun and the ocean, and by the time autumn rolled around, my skin had cleared up completely. People told me it would flare up every three years or so, and I actually had a nice, peaceful stretch all through middle school, but then it popped up again on my scalp. Now it's flared up on my scalp, behind my ears, and even inside my ears. There's also this tiny patch on my elbow, but I barely even notice that one. Does anyone know a decent shampoo specifically for the scalp?
Oronazol doesn't do anything for me, and every once in a while I'll put on some Belosalic lotion which helps a little bit, but I just can't seem to kick this stuff for good. I heard someone mention that Vichy dandruff shampoo is supposed to be good—does anyone think that might actually help with psoriasis? What are your thoughts?
Oronazol doesn't do anything for me, and every once in a while I'll put on some Belosalic lotion which helps a little bit, but I just can't seem to kick this stuff for good. I heard someone mention that Vichy dandruff shampoo is supposed to be good—does anyone think that might actually help with psoriasis? What are your thoughts?
#206 ·
Kelual DS by Ducray
It helps, I guess. You gotta wash your hair with it for 6 weeks, then switch to something mild for another 6 weeks.
It helps, I guess. You gotta wash your hair with it for 6 weeks, then switch to something mild for another 6 weeks.
#207 ·
A physical therapist I used to see over at ExxonMobil once told me that people dealing with psoriasis don't have to worry about cancer
I mean, who knows if there's actually any truth to that, but honestly, when you're living with psoriasis, it’s still pretty nice to hear that you might be spared from something like that
I mean, who knows if there's actually any truth to that, but honestly, when you're living with psoriasis, it’s still pretty nice to hear that you might be spared from something like that
#208 ·
electrictinker18 said:A physical therapist over at ExxonMobil once mentioned to me that people dealing with psoriasis don't have to worry about cancer.
I mean, who knows if there's actual scientific truth to that—it's hard to say!—but man, it sure feels good to hear that you might be spared from something like that when you're struggling with skin issues.
But then again, in the really severe cases, they end up using chemotherapy anyway. 😢 So, yeah... that's not exactly the comforting news we were looking for...
#209 ·
Back in the day, one of Dr. Vincenzo's funny little theories was that people dealing with psoriasis are actually basically healthy—since they supposedly run a much lower risk of catching other stuff compared to everyone else.
#211 ·
Here is my brief account regarding psoriasis.
It first appeared while I was at the coast during a summer break when I was fifteen, and it spread across my body with terrifying speed. Once back in Chicago, I went to the Mayo Clinic, where they finally diagnosed me after an endless battery of tests. Neither I nor my parents knew how to handle it, and after just a few months, I ended up hospitalized because ninety-five percent of my body was covered in green crusting that was literally bleeding... it was a complete nightmare.
Mentally, I completely broke down, and it took a long time to recover. I found myself trapped in a vicious cycle of white rooms, Belupo ointments, and phototherapy, only to eventually end up with steroid dermatitis. Honestly, what a mess...
With the support of my boyfriend, my parents, and my friends over the years, I finally stabilized and decided to give up corticosteroids entirely.
Today, my psoriasis covers only about 5-10% of my body, which I consider a massive improvement.
I recommend to all my fellow sufferers that you try not to let things get to you, maintain a healthy diet, and use oils, which have been incredibly helpful for me.
Olive, St. John's Wort, and flaxseed oils applied to the skin can encourage the healing process.
Stay strong...
It first appeared while I was at the coast during a summer break when I was fifteen, and it spread across my body with terrifying speed. Once back in Chicago, I went to the Mayo Clinic, where they finally diagnosed me after an endless battery of tests. Neither I nor my parents knew how to handle it, and after just a few months, I ended up hospitalized because ninety-five percent of my body was covered in green crusting that was literally bleeding... it was a complete nightmare.
Mentally, I completely broke down, and it took a long time to recover. I found myself trapped in a vicious cycle of white rooms, Belupo ointments, and phototherapy, only to eventually end up with steroid dermatitis. Honestly, what a mess...
With the support of my boyfriend, my parents, and my friends over the years, I finally stabilized and decided to give up corticosteroids entirely.
Today, my psoriasis covers only about 5-10% of my body, which I consider a massive improvement.
I recommend to all my fellow sufferers that you try not to let things get to you, maintain a healthy diet, and use oils, which have been incredibly helpful for me.
Olive, St. John's Wort, and flaxseed oils applied to the skin can encourage the healing process.
Stay strong...
#212 ·
Since psoriasis is an autoimmune condition—much like multiple sclerosis—it stems from an overactive immune system, which might explain why those dealing with it often face fewer issues with other illnesses...
#213 ·
Look, I don’t have psoriasis, but I’m right in the neighborhood—dyshidrosis. It’s been an absolute nightmare for me for a year now. Doctors can't pinpoint why it's happening, and they certainly haven't found a cure. Honestly, I'm just glad I stumbled onto this forum so I can actually read about people dealing with the same crap. We might be struggling, but at least we aren't doing it alone...
#215 ·
The details? 🙂 Alright, here’s the deal... this whole mess started about a year ago. It began as these tiny little blisters on my palms and the soles of my feet. They look like minuscule sores, maybe 1 mm at most. But there are millions of them. And they itch like crazy—like, actually maddening. Then they burst, leaving raw, open wounds behind, and the cracked skin starts peeling away. Once that wave passes, you get maybe five days of peace where you can actually look at your new skin, and then—boom—the first blister pops up, then the second... it just goes on forever. Basically, it’s a miserable cycle of intense itching, burning, and open sores. Even dermatologists are clueless about the root cause, which means they don't have a real cure either. I've tried corticosteroids, but you can only use those for such a short window. They work for a minute, but the second you stop, everything comes right back. That's dyshidrosis for you. If you look online, whether you're in America or anywhere else in the world, people describe this exact same nightmare, but nobody seems to have an actual solution.
#216 ·
Good day to everyone🙂
I am new here, and I suppose this marks my very first post. Please don't wonder why I’ve landed in this specific corner of the internet; it's simply because I happen to be yet another person dealing with psoriasis.
I have been struggling with it for about five years now on the inner part of my left leg—it's roughly a 5 cm patch.
I have tried various creams over the years (though, if I'm being honest, I haven't been particularly consistent with them), but I haven't seen much in the way of actual results.
Reading through all of your shared experiences makes me feel a little less isolated in this, knowing I'm not alone, and perhaps I might try some of the specific creams you all have found helpful.
At the moment, I am using Cutrid, but the itching just won't subside. I try my absolute best not to scratch, but I'm afraid I end up ruining everything in my sleep during the night.
To everyone else facing this same struggle, I truly hope you find some relief, or at least learn how to navigate living with it.
I am new here, and I suppose this marks my very first post. Please don't wonder why I’ve landed in this specific corner of the internet; it's simply because I happen to be yet another person dealing with psoriasis.
I have been struggling with it for about five years now on the inner part of my left leg—it's roughly a 5 cm patch.
I have tried various creams over the years (though, if I'm being honest, I haven't been particularly consistent with them), but I haven't seen much in the way of actual results.
Reading through all of your shared experiences makes me feel a little less isolated in this, knowing I'm not alone, and perhaps I might try some of the specific creams you all have found helpful.
At the moment, I am using Cutrid, but the itching just won't subside. I try my absolute best not to scratch, but I'm afraid I end up ruining everything in my sleep during the night.
To everyone else facing this same struggle, I truly hope you find some relief, or at least learn how to navigate living with it.
#217 ·
Larry Newman76 said:Good afternoon, everyone🙂
I’m new here, and this is my first post. Don't wonder why I chose this specific spot—I'm just another person dealing with psoriasis...
I've had it for five years now on the inner part of my left leg, about a 2-inch patch.
I've tried various creams (though not consistently), but nothing seems to work...
Reading through your experiences makes me feel a little less alone, and maybe I'll try some of the products you all have used.
Right now, I'm using Cutrid, but the itching won't stop. I try not to scratch, but I end up ruining everything in my sleep at night...
I hope everyone dealing with this finds some relief, or at least learns how to live with it...
The itching should subside if you take an antihistamine—like Claritin, Benadryl, or Telfast.
Try applying neutral moisturizers or oils to the area...
You might also want to pick up some Cortizone cream... it could help.👍
#218 ·
Hey! Looks like there's another psoriasis survivor joining the club:-)
I’ve been dealing with my psoriasis since I was five years old. I’ve tried everything under the sun—from medical treatments to the mental battle against those stupid flakes. I've finally accepted that meds only offer temporary relief, so I only use them when things get really bad. I try to stay away from corticosteroid creams (like Beladerm or whatever), preferring the calcium calcipotriol stuff (Cortizone). It’s pricey, and you have to pick it up at the drugstore, but damn... it works.
Doctors just seem to circle the drain with psoriasis; they don't actually know anything, so I stopped listening to them.
My skin is doing great right now because I finally got my life together and I'm a much calmer person. That's what happens when you fix your head.
I’ve been dealing with my psoriasis since I was five years old. I’ve tried everything under the sun—from medical treatments to the mental battle against those stupid flakes. I've finally accepted that meds only offer temporary relief, so I only use them when things get really bad. I try to stay away from corticosteroid creams (like Beladerm or whatever), preferring the calcium calcipotriol stuff (Cortizone). It’s pricey, and you have to pick it up at the drugstore, but damn... it works.
Doctors just seem to circle the drain with psoriasis; they don't actually know anything, so I stopped listening to them.
My skin is doing great right now because I finally got my life together and I'm a much calmer person. That's what happens when you fix your head.
#219 ·
Hmm... heard about this today. Might be worth a shot, at least.
A new psoriasis gel developed by Johnson & Johnson.
More details here:
A new psoriasis gel developed by Johnson & Johnson.
More details here:
#220 ·
Oh, right about the Zorac! I’ve actually heard some whispers about that, though honestly, nothing sounds truly permanent—and by permanent, I mean getting at least six months of peace without psoriasis flaring up all over my body—just like with all those other medications we try. But hey, I suppose it'll do the trick when things get really intense and thick:
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