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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 33 views · 2.3K replies

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Participants mistybear4rustymoose54nimbledriver81Kenneth Hernandez67Hannah Davis18Nicole JamesJeremy Flores10Matthew Scott2Casey Palmer5dustybison15Amy Fox97Anthony Rodriguez58Frank Alvarez8northernfalcon30Jerry Moore2electrictinker18wanderingowl7mistyhound2Tyler Sanchez3amberjackal14swiftsailor82casualnomad42Henry Newman9Zachary Ortiz …
Jacob Castillo16 Jacob Castillo16 Newcomer
1 message
joined Apr 2006
#221 ·
Oh, right, Zorac! I’ve actually heard a few whispers about that one, though nothing truly substantial—and by substantial, I mean achieving at least six months of total peace without psoriasis flaring up all over my body—just like with any other medication out there. But hey, I suppose it'll do the trick when things get really intense!
Gerald Davis2 Gerald Davis2 Newcomer
4 messages
joined Sep 2005
#222 ·
With psoriasis, there is no such thing as a permanent cure—only a series of temporary reprieves.
Jacob Castillo16 Jacob Castillo16 Newcomer
1 message
joined Apr 2006
#223 ·
Yes, it’s a constant cycle of temporary fixes, involving mandatory breaks from using creams and gels just so I don't end up wrecking my adrenal glands
Honestly, everything is manageable—all those medications and such—but if it's at all possible, I'd much rather just tough out those skin patches for a bit. Unless things turn into an absolute disaster, I'm happy to just hold on and wait for some beautiful weather so I can finally escape to the coast and soak up the sun!
A Anonymous Veteran
3.6K messages
joined May 2005
#224 ·
I’ve been dealing with psoriasis for four years now, specifically on my neck and chest. That first year was a total nightmare—I was bouncing from one dermatologist to another in Chicago with absolutely zero progress. Finally, I saw a private specialist who prescribed me some Dermovate. Honestly, it’s been a lifesaver. It is a corticosteroid, but since I only need to apply it once a month, I don't have to worry about the side effects. Plus, if I go to a tanning salon, I just use it even less frequently. My only real headache is that those specific versions (they make an ointment, and there's even a lotion for the scalp) aren't stocked locally here in the States, though almost any pharmacy can order them from overseas for you.
graniteeagle10 graniteeagle10 Newcomer
4 messages
joined May 2006
#225 ·
Chris Morgan67 said:Olive, St. John's Wort, and flaxseed oils—you just apply them to the skin to help it heal itself.
Just stay brave!!!!!

Where can I actually find this St. John's Wort oil? What is it exactly, and what is it made from? I haven't heard of that one yet.
How do you actually treat your skin with these oils—what's the order of application, and how often do you do it?
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#226 ·
That’s essentially St. John’s Wort oil. You can find it in any local pharmacy. It’s made by infusing the plant into olive oil, which releases the active ingredients that help trigger skin regeneration.

The frequency doesn't strictly matter; you could apply it ten times a day or just once a week. No oil is going to do you any harm. My doctors have actually suggested that for chronic psoriasis, ointments or oils work better than standard creams. Generally, anything greasy penetrates the skin more effectively to promote healing.

It is also vital to keep your skin hydrated consistently. After every shower, apply something oily or at least a decent body milk. The moment you feel an itch, nourish the skin immediately with a cream or something similar.
Noah Alvarez78 Noah Alvarez78 Newcomer
5 messages
joined May 2006
#227 ·
I honestly can’t even tell how old this thread is getting, I’ve been dealing with this since I was sixteen. It started out as just this tiny little patch on my elbow that I didn't really bother with, then it moved to my scalp, but for the hair stuff, I used Ecural—and seriously, hats off to whoever came up with that 🙏—because it works wonders for scalp psoriasis. For me, it starts receding after just two days, and then the whole thing vanishes for a few months before deciding to show its face again, and we start the whole cycle all over. But the ointments? Man, nothing worked. Ecural cream did nothing, Beloderm was a bust, Psorifug didn't touch it, even olive oil was useless. Now it feels like about 70% of my skin is hit, and it's even starting to mess with my nails. The problem is, the specific cream I actually need to track down, Kanesten, isn't exactly easy to find around here in the States. A trip to the beach and some sunshine helped clear up the redness and the scaling, but I'm still stuck in this ongoing battle with 👎. And as for people and how they act... honestly, they never change. Back in high school, kids would tell me I had some contagious disease and stay far away from me. Once graduation rolled around, I finally just told them exactly what I thought of their bullshit and stopped letting it get under my skin 😬
Noah Alvarez78 Noah Alvarez78 Newcomer
5 messages
joined May 2006
#228 ·
Man, I don't know... did those absolute hacks actually help anyone? 😬
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#229 ·
Maybe give phototherapy a shot along with some Cortizone...
Rebecca Myers38 Rebecca Myers38 Member
22 messages
joined Jan 2005
#230 ·
Noah Alvarez78 said:then there's the scalp issues, but I personally used Ecural (kudos to whoever invented that stuff 🙏 ) and it absolutely works for scalp psoriasis; for me, it starts receding after just two days, though it tends to flare up again after a few months, forcing me to start the whole process all over again.

Does one require a prescription for that, or can you just pick it up off the shelf? 😕
Noah Alvarez78 Noah Alvarez78 Newcomer
5 messages
joined May 2006
#231 ·
It's for a private prescription, and I actually have this one pharmacy over in the Lower East Side that pulls it in from Germany for me, so the little bottle should be arriving around $93—it's actually coming tomorrow 👋
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#232 ·
I’d suggest trying Cortizone. Unlike standard corticosteroids, you won't see results for about two weeks, but it manages psoriasis much more effectively over the long term. When paired with phototherapy, it works wonders without the typical side effects you get from steroids.

I wouldn't recommend Beloderm, Belosalic, Zorac, or other steroid creams; they might offer quick relief for a couple of days, but they end up wrecking your adrenal glands...
Hannah Davis18 Hannah Davis18 Active Member
170 messages
joined Sep 2008
#233 ·
Cortizone didn't do anything for me😳

Steroids, man. You have to use them for way more than two days just to see if they even work at all.
If you're only putting it on for two days, you might as well not bother at all.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#234 ·
Hannah Davis18 said:Cortizone didn't help me at all😳

Steroids... you really have to apply them for more than a couple of days before you see any actual results.
If you're only applying it for two days, you might as well not bother at all...

You're supposed to apply Cortizone twice a day for at least two weeks. Ideally, you'd do it for a month or two straight alongside phototherapy. But once you do that, you should be clear for six months to a year, if not longer.

You misunderstood my point about steroids. I have quite a bit of experience with them, and doctors usually recommend at least a week of application. For me, the effect lasts about three days—not months like it does with Cortizone. I don't need a medication like that, thanks... plus, my psoriasis covered a massive area of skin. The yo-yo effect was real.

But of course, every person dealing with psoriasis has to figure out what works for their own body and find the right combination...
Hannah Davis18 Hannah Davis18 Active Member
170 messages
joined Sep 2008
#235 ·
ugh; look, Cortizone didn't do anything for me, zero. nothing changed. it’s not even about how much I was putting on, it's just that my elbow stays exactly the same no matter what I do with that stuff.

yeah, you don't really use punctuation so I got a bit lost there; this extra explanation makes more sense, I guess.
for me, it's the other stuff that works—especially Diprosalic.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#236 ·
Well, you're lucky you only have that on your elbow🙂
Rebecca Myers38 Rebecca Myers38 Member
22 messages
joined Jan 2005
#237 ·
Chris Morgan67 said:I wouldn't suggest using Beloderm, Belosalic, Zorac, or any corticosteroids; while they might offer temporary relief for a couple of days, won't they ultimately just devastate the hypersensitive liver?

As for me, my doctor actually prescribed both Beloderm and Belosalic 🙄

Should I perhaps ask him about using Cortizone instead?😳
Noah Alvarez78 Noah Alvarez78 Newcomer
5 messages
joined May 2006
#238 ·
Look, these creams aren't some kind of magic wand that works for everyone; I’ve tried stuff that did absolutely nothing for me, even though it worked wonders for a buddy of mine. What clears up my skin might just make someone else break out. That's why I've gotten pretty cynical about it—now I just test everything on one tiny spot first, and if I actually see some improvement, then I'll commit to rubbing it everywhere. Oh, and I even heard someone mention today that using juice from young green walnuts is supposedly amazing for the skin... has anyone actually gone through the trouble of trying that?
Joshua Bennett4 Joshua Bennett4 Active Member
53 messages
joined Sep 2008
#239 ·
I haven't given it a shot yet, though I definitely need a ton of walnuts! 😢

I'm going to grab that Psorcutan and get some sun, then we'll just see how it goes... ☕
A Anonymous Veteran
3.6K messages
joined May 2005
#240 ·
Hey everyone, I honestly have to "brag" a little bit—I’ve been dealing with psoriasis since I was 12. It’s a milder version, sure, but it still makes me want to hide. It gets especially annoying at work; I hate it when people start prying and asking, "What's that on your skin?" Like, seriously? As if I'm some kind of outcast or something. But you guys actually get it. I’ve tried everything under the sun, even went so far as saying I’d try that Noni stuff. Honestly, what a joke... Forget all that nonsense. Just let me tell you, I’ve been using the Zorac 5 day cream and it is absolutely incredible. You should definitely give it a shot. 🙂

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