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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 31 views · 2.3K replies

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A Anonymous Veteran
3.6K messages
joined May 2005
#241 ·
So, I went to the doctor today and they prescribed Elocom ointment. Has anyone here actually tried it? Does it actually work? I’ve been dealing with psoriasis for about two months now, but it’s only showing up on my elbows so far. Is there a chance it could spread to other parts of my body?
Hannah Davis18 Hannah Davis18 Active Member
170 messages
joined Sep 2008
#242 ·
Of course it exists; but honestly, it’s just been stuck on my left elbow for years now.

I haven't tried Elocom; but if you search the thread, I think it’s been mentioned before. Maybe.
placidpanther12 placidpanther12 Member
11 messages
joined Sep 2006
#243 ·
I stumbled upon this forum just the other day, and honestly, I’ve been quite thrilled—mostly because I don't know a single soul who deals with psoriasis. As for me? Well... let's just say I've been fighting this since I was a kid (though it took doctors ages to actually figure out what was going on with me). The strangest part is that nobody else in my family has it, so growing up, I was always treated like the "family outcast." I have tried absolutely everything under the sun, but I just cannot bring myself to try those little medicinal worms—the thought of something actually crawling on me is just repulsive. Does anyone here actually have experience with them? The last thing I experimented with was homeopathy, and I would highly recommend it to anyone with an infinite amount of patience. I specify "patient" people because, frankly, you need about two months of treatment for every year you've been sick. But it truly pays off—all those creams, ointments, and lotions only treat the surface; they essentially just push the psoriasis deeper into your system, causing it to flare up even harder every single time.
I have one quick question: I recently got a tattoo, and now I'm wondering if anyone has had their psoriasis spread over the tattooed area? And if so, what does that actually look like???
Now, for a bit of food for thought—something everyone should ask themselves, which is exactly what my homeopath asked me: Do you consider yourself a healthy person or a sick person? I answered instantly—HEALTHY! What about you?
Joshua Bennett4 Joshua Bennett4 Active Member
53 messages
joined Sep 2008
#244 ·
miro28zag said:I went to the doctor today and they prescribed Elocom ointment. Has anyone used it before? Does it actually work? I've been dealing with psoriasis on my elbows for about two months now... Is there a chance it might spread?

I’ve been using Elocom for about ten years now, and honestly, it works pretty fast and effectively for me! The only thing is, since they are corticosteroids, you really have to be careful with them. Don't overdo it, and make sure you only apply it to the affected area (definitely not the healthy skin around it!!!!)...😳
Joshua Bennett4 Joshua Bennett4 Active Member
53 messages
joined Sep 2008
#245 ·
Angelstar said:I just have to say, I've been using the Zorac 5 day cream and it is absolutely amazing. You guys really should give it a shot! 🙂

Does anyone know how I can actually get my hands on this stuff?? I really don't feel like sitting in a dermatologist's waiting room for four hours just to get a specialist prescription. Can you buy this over the counter without one? 😬
placidpanther12 placidpanther12 Member
11 messages
joined Sep 2006
#246 ·
Linda Chase81 said:How can I actually get my hands on that cream?? I really don't feel like sitting in a dermatologist's waiting room for four hours just to hunt down a specialist's prescription. Can you just buy it over the counter without all the hassle? 😬

[B[/B]Well, it’s pretty obvious nobody hangs out on this forum anymore—honestly, I’m getting zero replies from anyone lately either. As for that specific cream you're asking about, I hate to say it, but I don't know a thing about it. I'm not sure if you've tried it yet, but personally, I find Belosalic to be a solid ointment. My usual routine involves using that for about six days before switching over to Elocom. At least, that's what my doctor tells me—apparently, these two creams work best when they're used in tandem.
A Anonymous Veteran
3.6K messages
joined May 2005
#247 ·
Hey there, everyone!

Does anyone here have any actual insight or personal experience using these biologics?
Specifically, what’s the real deal when it comes to the difference between Ameviv and Raptiva? From what I can gather online, Ameviv isn't even approved for use in Europe, whereas Raptiva seems to be widely available over in Canada..
I also stumbled upon a price comparison chart that lists Raptiva at about $1,372 per month, while Ameviv jumps way up to somewhere between $2,800 and $3,980 monthly.

Best,
A Anonymous Veteran
3.6K messages
joined May 2005
#248 ·
Hey everyone!🙂

So, here’s my situation: I’m 29, and I’ve been dealing with psoriasis for about seven years now. I live in Chicago and get my treatment at Northwestern Memorial. I’ve tried pretty much everything under the sun—Western medicine, bioenergy, mineral oils, fish oil treatments, homeopathy, and all those "miracle" creams you see advertised. Even though they come with side effects, I mostly stick to Western meds. I know they just mask the symptoms rather than fixing the root cause, but they're the only things that actually provide some short-term relief. Over the years, things have generally gone downhill. No one else in my family has psoriasis, but I did inherit the B27 marker, so for the last two years, I’ve also been struggling with arthritis. To make matters worse, I have quite a few moles, some of which I've already had removed. Because of the risk of melanoma, I’ve stopped using phototherapy, even though it used to help me a lot. Long story short, the fish oil stuff didn't do anything for me; it just softens the scales, leaving the red skin exposed where new ones keep forming. If I were at the beach during the summer, the combination of sun and ocean might have helped more, but honestly, just being out in the sun and near the coast usually does the trick for me. I basically live for the summer months; spending a month by the ocean really helps, though my body reacts differently every year. Also, everyone's reaction to medication is so individual—some people love it, while others find it makes them worse. For me, it’s a total toss-up; sometimes a med works wonders, and other times it's a disaster. This year, Psorcutan was a lifesaver (once a day, left on for an hour). Right now, I’m using Zorac 5 day/Beloderm, and for my scalp, I use Belosalicov lotion once a week. Winters are definitely the toughest part of the year.👎
Brian Mitchell44 Brian Mitchell44 Member
48 messages
joined Feb 2006
#249 ·
I’m not sure if anyone else from the West Coast has caught wind of this yet, but those little medicinal fish they've been talking about? They’re actually making their way to Los Angeles. I won't bother retyping the entire article—it's tedious—but they did provide a specific number for anyone looking to dig deeper into the details, so I figured I'd just drop it here:

555-019-82-70
Joshua Bennett4 Joshua Bennett4 Active Member
53 messages
joined Sep 2008
#250 ·
medeni said:Hey everyone!🙂 This year, Psorcutan was a total lifesaver for me (once a day, left on for an hour). Right now, I’m sticking with Zorac/Beloderm, and for my scalp, I use Belosalic lotion once a week. Winters are definitely the hardest part for me...👎

Where did you find Psorcutan, and how did you get it?? 😕
I've just been relying on Elocom and some sunshine since my psoriasis started about 10 years ago, but I'm totally open to trying something new... 😳
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#251 ·
Linda Chase81 said:Hey, where are you located and how did you get your hands on Psorcutan?? 😕
I've just been sticking to Elocom and some sunlight since my psoriasis started (10 years ago), but I'm open to trying something different... 😳

It's mentioned above, but I'll say it again for you.

There's a pharmacy in downtown Chicago... they order the cream from Germany and you can have it in two days. A 30g jar of Psorcutan costs $59
...
placidpanther12 placidpanther12 Member
11 messages
joined Sep 2006
#252 ·
Whew, this thread is basically a "back in the saddle" reunion—it feels like we’re all resurfacing at once.
Honestly, I haven't even heard of half these creams you guys are tossing around, and believe me, I've been dealing with psoriasis my entire life. My dermatologists here in the States always swear by Belosalic and Elocom; according to them, those are the heavy hitters that actually get the job done.

Can someone please address the question I posted a while back? Nobody gave me an answer, and it's actually a pretty significant concern for me:

placidpanther12 said:I have a quick question: I just got a tattoo, and now I'm wondering if anyone else has had their psoriasis flare up over the ink? If so, what does that actually look like???
Joshua Bennett4 Joshua Bennett4 Active Member
53 messages
joined Sep 2008
#253 ·
Chris Morgan67 said:It’s mentioned above, but I'll say it again just to be sure.

The pharmacy over in downtown Chicago... specifically at 9/1st Floor, they order the cream from Germany and you can pick it up in two days. A 30g tube of Psorcutan costs $59


I'm actually out in Phoenix, but thanks anyway! At least now I know the price and I bet I can just order it the same way... 😬
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#254 ·
Linda Chase81 said:I'm from Phoenix, but thanks anyway—at least now I know the price and I can probably order it the same way... 😬

Yes👍 if you need my number, I'll send it via PM
Bradley Cox2 Bradley Cox2 Newcomer
2 messages
joined Jun 2007
#255 ·
About three or four months ago, I was under an incredible amount of stress. It was during that time that I noticed something strange happening on my palms and the soles of my feet—within just a few days, my feet looked absolutely terrifying. My hands were slightly more manageable... I tried everything to calm things down; soaking my feet twice a day, trying to gently exfoliate, applying various ointments and random creams I had lying around, but nothing worked. Eventually, I went to see a dermatologist in a clinic near Chicago, and she diagnosed me with psoriasis. After spending three days soaking my feet in a hypermangan solution (the kind that turns the water purple and makes your feet look awful) and then applying a custom cream containing Beloderm, things are looking much better. For my palms, she prescribed Diprogent, which I can only use for seven days before switching over to a calendula ointment. She also insisted that I get blood work done to check my blood sugar levels.
Honestly, I was left in total shock when she told me what I was dealing with, especially since there’s no history of psoriasis in my family. I always knew my skin reacted intensely to stress—back in the day, I used to break out in terrible acne, and those heavy dark circles I got during one particularly brutal period never really faded—but I had no idea that you could actually develop psoriasis from stress 😢.
Joshua Gray4 Joshua Gray4 Newcomer
4 messages
joined Apr 2006
#256 ·
It’s a harsh reality, I suppose. Constant, senseless stress can really wreak havoc on your health, and honestly, how are we even supposed to avoid it when the pace of life in America has become absolutely relentless? It feels like if we could just stretch a single day to 48 hours, we might actually stand a chance at getting everything done without losing our minds.
I have been personally battling some intense stress and pressure over the last couple of months, as my life currently feels like a high-speed race track. Reading this was a sobering little reminder of just how far things can spiral when the tension builds up.
People dealing with M07 Psoriasis really ought to try and lead as stress-free a life as possible, because if they don't, the condition tends to flare right up. 😢
Bradley Cox2 Bradley Cox2 Newcomer
2 messages
joined Jun 2007
#257 ·
It all started when they tried to force me out of my job. I managed to handle it—found a new gig already—but now I’m seriously weighing the option of suing my former employer and the politician who pulled the strings to get me fired, all because of this chronic illness I've developed. It isn't about the money, really. It's about making sure someone finally pays for the absolute nonsense they pull, the kind of stuff that actually makes people sick, and ensuring they face the consequences for good 😢. I am genuinely livid, and I think I might actually go through with it.
Walter Thompson Walter Thompson Member
11 messages
joined Jul 2006
#258 ·
When I was about 16, I noticed this ring-shaped fungal patch on my right thigh during one of those hot summers. Now that I'm 28, you can probably guess how that turned out. It has since migrated to all the usual spots—my elbows, arms, legs, scalp, and back. My doctor has been prescribing Belosalicov lotion specifically for my scalp, while for the rest of my body, she just has the pharmacists whip up some custom compounded cream. The flare-ups come in waves, but honestly, I think I'm just more exhausted by the whole ordeal than anything else. Every single day, sometimes even multiple times a day, I find myself scratching until I bleed out of pure frustration. I suspect that intense stress might have even played a role in those strep infections I used to get constantly back when I was a teenager. Over the last few years, I’ve felt like I'm reaching my breaking point; there will be a few days where things seem to be settling down, and then suddenly, in a single afternoon, my whole body flares up again, and I'm right back at square one. There are moments when I genuinely feel like just giving up and walking around looking like a complete mess. I mean, can anyone tell me there's a more tedious, draining condition than this?
Donna Price4 Donna Price4 Newcomer
7 messages
joined Oct 2009
#259 ·
I totally agree, this disease is such a nightmare...

I deal with facial redness quite often, especially on my forehead and around my nose... it’s just this constant redness that gets itchy...
If I scratch at it, things only get worse... I went to see a doctor, but he told me it isn't psoriasis, just some kind of redness triggered by stress and stuff...
Basically, for years now, whenever this flares up, I apply some Belosalic overnight and everything settles down by morning...

But the worst part is that it keeps coming back every week or two, so I'm stuck constantly using this medication because nothing else seems to work...
Normally, I stick to light daily moisturizers, and every night I put on some Vaseline or something similar, because if I didn't, my whole face would be red... hopefully, things get better soon. Best,
A Anonymous Veteran
3.6K messages
joined May 2005
#260 ·
Hey Jerry Doyle67,
I honestly think you're looking at seborrheic dermatitis. Let's be real—most dermatology diagnoses are just descriptive labels because, frankly, modern medicine still hasn't cracked the code on what actually causes it.
The most logical explanation I've come across is that it's fungal-related; basically, these fungi thrive on the sebum (the natural oils) on your skin.

Anyway, based on my own experience, here’s what worked for me: 1. Cut out sugar entirely for at least a month (and if you can, keep avoiding it altogether). 2. Wash your face 2 or 3 times a day with a good cleanser (I personally swear by Sebamed). 3. Try to get outside as much as possible to soak up some fresh air and sunlight.
It made a massive difference for me—I'd say I'm about 90% clear right now! And the best part? I didn't even need corticosteroids, which really do nothing more than provide temporary relief...

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