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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 29 views · 2.3K replies

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Participants mistybear4rustymoose54nimbledriver81Kenneth Hernandez67Hannah Davis18Nicole JamesJeremy Flores10Matthew Scott2Casey Palmer5dustybison15Amy Fox97Anthony Rodriguez58Frank Alvarez8northernfalcon30Jerry Moore2electrictinker18wanderingowl7mistyhound2Tyler Sanchez3amberjackal14swiftsailor82casualnomad42Henry Newman9Zachary Ortiz …
Thomas Palmer31 Thomas Palmer31 Member
11 messages
joined Mar 2005
#121 ·
dustywalker25 said:I personally know people who went to Naphtalan, and for some, the condition completely settled down. For most others, the symptoms are just managed—they ease up, but there’s always that lingering tendency for it to flare back up after a while. The reality is that Naphtalan is actually the only place with proven results for treating psoriasis, yet our broken healthcare system refuses to cover the costs. You can only get a referral if you have a diagnosis of rheumatoid arthritis. For folks living near a major hub like Chicago, it isn't even a huge hurdle since they can commute daily from home and just pay for the treatment itself, whereas everyone else has to foot the bill for both therapy and lodging.

My father has been dealing with psoriasis for what feels like at least 17 years now.
He has tried absolutely everything under the sun, and the most effective thing he ever found was Dr. Višnjić's therapy (I think it was somewhere out near Makarska).
He used a specific method to identify which foods were triggering his body's inflammation, and by cutting those out, he could reduce the psoriasis flares.
The tricky part was that, for instance, tomatoes would trigger him during the summer but wouldn't bother him in the winter, making it incredibly difficult to maintain a consistent diet.
Back then, he was taking a mountain of medications and constantly applying various ointments and creams.
If my memory serves me right (and this was quite a while ago, maybe 15 years), his psoriasis had almost entirely cleared up.

Over all those years, we collectively realized that the one thing that truly helps him see any improvement is absolute peace of mind and psychological stability—staying completely stress-free—which, let's be honest, is incredibly hard to achieve.

Last winter, a medical board finally approved a three-week stay at Naphtalan for him due to his rheumatoid arthritis, but it didn't help him at all.
Again, I suspect it might just be a psychological effect.

He told me that the group of patients at Naphtalan spend their days drinking liters of wine and eating heavy, greasy food, yet they seem to feel better.
It's because it serves as a total escape from home, wives, kids, work, and endless responsibilities... they socialize, they relax, and simply because of that mental break, the psoriasis recedes.

I once watched a program where a German doctor treats psoriasis (!) using snake venom (like, one drop in a pool of water) by administering an injection once a week for three months into the nape of the neck.
One shot costs about $1,000 (if I recall correctly), but apparently, the results are fantastic and long-lasting.

Ultimately, my takeaway is that psoriasis is strictly an aesthetic issue. It doesn't bother me, I don't find it repulsive, and I find it perfectly normal to see someone with scaly skin. The real struggle is the psychological toll.
My dad, for instance, hasn't gone skinny-dipping at the beach or even taken his shirt off in front of anyone in probably 25 years; it really weighs on him emotionally.

As far as a permanent cure goes... I don't think one exists.😢
Linda Hughes88 Linda Hughes88 Active Member
89 messages
joined Jun 2006
#122 ·
Did Belobaza cream actually do anything for psoriasis?
Basically, I get this nasty stuff breaking out on my arms and legs and the itching is just unreal, so I slap some of that cream on and it clears right up...
It always flares up during the winter, but then it just seems to vanish once summer hits...
My dermatologist keeps insisting it’s just dry skin because the water here in Chicago isn't great for me, but honestly, to me, it feels way more like psoriasis symptoms...
Thomas Palmer31 Thomas Palmer31 Member
11 messages
joined Mar 2005
#123 ·
RuzanPrljavGlup said:Has anyone found any effect using Vaseline on psoriasis?
Basically, I get these awful patches appearing on my arms and legs that itch like crazy. If I apply that cream, they just vanish.
It flares up during the winter, but seems to clear itself up in the summer.
My dermatologist insisted the issue is just dry skin aggravated by the local water here in Chicago, but to me, it feels exactly like psoriasis symptoms...

First off, you really need to confirm if you're actually dealing with psoriasis.
Vaseline acts as a base for almost all creams, so it does help with psoriasis because the most important thing is keeping the area moisturized—the specific ingredient matters less than the hydration. (My old man used to slather himself in ointment and wrap his legs in plastic wrap before bed to sleep).
HOWEVER, it’s actually better to use a cream or ointment that is much thicker and oilier, which Vaseline isn't quite. Personally, I use Vaseline for my heels; instead of scraping them with a razor, I just coat them in Vaseline, put on some socks, and let it soak in overnight. The results have been phenomenal.🙏 )
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#124 ·
A quick tip...
I’ve noticed that even sipping on small amounts of alcohol tends to make things worse...
Tyler Sanchez3 Tyler Sanchez3 Newcomer
5 messages
joined May 2005
#125 ·
Look, just cut out the booze. And if you’re smoking, you might as well ditch the cigarettes too. Maybe a beer or some wine once in a while is fine, but don't let it turn into a habit...
amberjackal14 amberjackal14 Newcomer
3 messages
joined Mar 2005
#126 ·
My "psoriasis" is just... gone. Totally. It’s been gone for a while now, and honestly, I feel kind of stupid even thinking about going back to see my doctor. Like, what am I even supposed to say? "Hey, remember that thing I thought was psoriasis? Yeah, turns out it's not there anymore." It sounds so ridiculous when I say it out loud.😳
I'm just stuck now, I guess. I don't really know what to do with myself..🙄
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#127 ·
Tyler Sanchez3 said:It’s definitely worth cutting out the alcohol—and if you smoke, honestly, quitting those cigarettes would be a huge help too. You can have a beer or a glass of wine every once in a while, but just be careful that it doesn't turn into a daily habit.

Personally, I was never really much of a heavy drinker, but I eventually realized that things go much smoother if I just skip those "occasional" beers altogether.
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#128 ·
amberjackal14 said:My "psoriasis" is gone... completely... it happened quite a while ago—now I feel silly even thinking about going back to my doctor just to say, "Hey, remember when you thought I had psoriasis? Well, it's totally gone now."😳
I honestly don't know what to do with myself at this point..🙄

Why don't you just wait 😁

If it really is psoriasis, it’ll eventually flare back up—and once it does, then you can go see your doctor again...
amberjackal14 amberjackal14 Newcomer
3 messages
joined Mar 2005
#129 ·
Gregory Turner71 said:Just keep asking😁

If it’s psoriasis, it’ll just flare up again anyway, so you might as well talk to a doctor...

I can just keep asking questions then..😁
I mean, yeah, I'm sure it'll come crawling back the second I travel somewhere else.. bitch..🙄
Gerald Davis2 Gerald Davis2 Newcomer
4 messages
joined Sep 2005
#130 ·
Decided to spend some time scrolling through forums and the web to see if there’s anything new out there to fight this relentless disease...

I've been dealing with this for over 10 years—maybe even longer. It started when I was about 10. It runs in my family on both sides; apparently, it passes down from grandfather to grandson. At first, it showed up on my elbows. My primary care doctors insisted it wasn't psoriasis, but then a dermatologist stepped in and prescribed Beloderm. After using it for a few weeks or months—it was a long time ago, I can't recall exactly—my elbows lost all their pigment. It took quite a while for the color to return. Take it from me: be careful with those steroid-based creams. Don't overdo it. Later, it moved into my hair, and eventually hit my face—specifically my cheeks. It isn't overwhelming on my face, but it's noticeable; my cheeks get flushed and peel periodically. I'm hesitant to apply too much cream there because I don't want to bleach the skin on my face. Ultimately, what I've noticed most is that stress is the biggest trigger, followed by diet. Salty and greasy food is absolute death.
amberjackal14 amberjackal14 Newcomer
3 messages
joined Mar 2005
#131 ·
Gerald Davis2 said:supposedly, it’s a family thing passed down from grandfathers to grandsons.

why the hell didn't it go to my brother instead of me? I mean, look at how gorgeous I am...🥳

It started showing up in my hair first... then eventually on my face, mostly my cheeks.

😲 😲
this psoriasis is such a total bitch...😢

stress plays a part, and then there's diet (all that salty, greasy food is basically death)...

honestly, you just want to die right then and there..😢
Gerald Davis2 Gerald Davis2 Newcomer
4 messages
joined Sep 2005
#132 ·
amberjackal14 said:Why the hell wouldn't she go for my brother instead of a girl like me...🥳

You misread me. I meant skipping an entire generation—not going for the son or daughter, but the grandchild.
amberjackal14 amberjackal14 Newcomer
3 messages
joined Mar 2005
#133 ·
Gerald Davis2 said:You totally misunderstood what I meant... I was saying skipping a generation means going straight to the grandchild, not just the son or daughter.

Nah, I think you just phrased it poorly..😉

to the grandson

Grammatically, it should be grandsone
velvetwolf9 velvetwolf9 Newcomer
5 messages
joined Mar 2007
#134 ·
amberjackal14 said:No, you just phrased it wrong..😉

The right word would be great-grandsone

Hilarious. Also, totally irrelevant to the thread, so...
amberjackal14 amberjackal14 Newcomer
3 messages
joined Mar 2005
#135 ·
velvetwolf9 said:Hilarious. Totally irrelevant to the thread, but anyway...


Ah 🙄
My bad, really sorry for going off on a tangent here 🙄

And by the way, it wasn't supposed to be funny

...wait, did I just derail the whole thing again?
😳

Right, about the psoriasis
A little patch flared up on my arm
And I have to head out to New York soon...
Rebecca Myers38 Rebecca Myers38 Member
22 messages
joined Jan 2005
#136 ·
Gerald Davis2 said:What I was actually trying to convey is the concept of skipping an entire generation—not simply passing something down to a son or daughter, but directly to a grandchild.

In my specific situation, that certainly isn't the case.😢 😠 🙂 🙂
Betty Moore Betty Moore Newcomer
3 messages
joined Sep 2005
#137 ·
Trust me, I’ve been there too, and it played out exactly the same way. Absolutely nothing happened...
gentlebear36 gentlebear36 Newcomer
8 messages
joined Aug 2005
#138 ·
Gregory Turner71 said:They say about 2% of the population—and I suppose I fall into that group myself (yay... 🙄 )—deal with this incredibly tedious condition...

Because of that, I thought it might be helpful to have a dedicated thread here on the forum where we "lucky" 2% could share our experiences, swap advice, or just offer a little virtual shoulder to lean on.

So, is there anyone else here dealing with this nuisance? How are you managing, do you have any sage advice, or anything at all...

A friend of mine has psoriasis. She finds that applying some local ointment from a pharmacy in Chicago helps her affected areas, though she has to do it every single day. It tends to flare up periodically.

Getting some sun can help too. Some people even swear by tanning beds.

Since things seem to get worse when you're stressed, maybe try doing yoga or some other sort of nonsense like that.

Unfortunately, there isn't a permanent cure. But I guess you can at least manage the symptoms or prevent them from getting much worse.

Good luck. 👋
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#139 ·
Haha... that bit about stress is a nice touch...
I mean, I’d love for someone to explain how you're supposed to be a college student at a place like MIT—while dealing with two seriously ill family members, being perpetually broke, having a landlord who's trying to kick you out of your apartment, and *still* somehow avoiding stress 😁
As for tanning beds... does anyone actually know how to get those beneficial effects from IBM without ending up with skin cancer? 😁
nimbledriver81 nimbledriver81 Active Member
96 messages
joined Aug 2007
#140 ·
Gregory Turner71 said:Regarding tanning beds... does anyone actually know how to get those beneficial IBM rays without basically inviting cancer to move in?😁

Honestly, just ask your doctor to send you down to the coast—get some real sunlight on some quartz sand instead.

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