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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 94 views · 2.3K replies

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Maria Doyle27 Maria Doyle27 Newcomer
1 message
joined Apr 2007
#1601 ·
So, here is the latest update on my treatment plan for this whole psoriasis mess—which, mind you, is currently tangled up with Bechterev disease... They’ve put me on Methotrexate for about six months, along with three injections of Extencel over the next three months, mostly because they actually detected strep in my system... Honestly, this psoriasis just won't quit; it hasn't shown any sign of letting up for a year and a few months now...
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1602 ·
Maria Doyle27 said:Here is the latest they gave me for my psoriasis (which is tied up with Bechterev disease): Methotrexate for six months and three shots of Extencel over three months because they found strep in my system. Usually, my psoriasis hasn't been letting up at all for the last year or so.

I have a buddy who deals with Bechterev disease; he’s getting treated at the Military Hospital. They say he’s one of the few doctors there actually specializing in this stuff. If you guys need some info, I can put you in touch.

Gentlemen greetings.
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1603 ·
rapidpanther41 said:Don't expect us to find a cure for psoriasis just by chatting on this forum anytime soon—or if one will even be found at all. top:


It’s worth pointing out that this is just your subjective take on how things are going on this forum. It doesn't necessarily reflect the actual facts, much like my view or anyone else's.

With faith in God
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1604 ·
Hey everyone,
Even though things have been pretty quiet here lately, I wanted to jump in and ask a question I forgot to bring up with my doctors.
Is it actually possible to deal with both plaque psoriasis and guttate psoriasis at the same time?
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1605 ·
Maria Chavez55 said:Hey everyone,
even if we haven't been talking much lately, I still want to ask a question I forgot to bring up with my doctors.
Is it possible to have both psoriasis vulgaris and guttate psoriasis at the same time?

I think that old forum regular "Okto" actually dealt with exactly that.
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1606 ·
Oct;9211528 said:

Thank God, it's not erythrodermia—it's actually follicular psoriasis. It’s rare, and when combined with the vulgaris type, it can flare up all over the body... but we'll get into that later...

Back after a quick break! I'm here with you guys.
If Maria Chavez55 and Michael Ramos3 were talking about this specific part of Oct's hospital discharge report, here’s my take on it.
Did Oct express himself correctly when he mentioned follicular psoriasis?
We all pretty much know what common psoriasis is and how it's treated.
But anything tied to terms like follicle, folliculitis, or follicular usually points toward diseases caused by bacteria like strep or staph.
It hits the hair follicles, showing up as those pus-filled bumps. It can spread from person to person or just move from one part of your body to another by rubbing against the skin. It can cover almost everything except the palms and soles of the feet.
Having a forum like this is absolutely vital. It’s the only place where we can swap ideas on how to ease our symptoms, talk therapies, and all that. Honestly, being here shows us we aren't alone and that some people have it even tougher than we do.
Greetings to everyone in the community!👍
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1607 ·
Michael Ramos3 said:I should probably emphasize that this is just my own subjective take—my personal perception of how things are going on this forum—which doesn't necessarily have to reflect the objective reality, much like anyone else's view or my own.

With faith in God

Well, obviously it’s just my subjective opinion—I mean, what else could it be? The actual facts are pretty much reflected in the state of everyone on this forum, and if we're talking cold, hard facts, the results are unfortunately pretty grim. That's exactly why we're still hanging around here, hoping those facts eventually start looking a little better.👍
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1608 ·
Hey Oct, come on, say something! I’d really appreciate it if you could clear up some things for me regarding this follicular type of psoriasis.

I asked about the vulgaris and guttate forms because, even though my biopsy confirmed vulgaris on my elbows and shins, I've also been breaking out in all those drop-like spots on my upper arms over the last week. Because of that, my doctor sent me to get a throat and nasal swab.
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1609 ·
Nebojša, thanks for getting back to me 🙂
crimsonranger54 crimsonranger54 Newcomer
5 messages
joined Nov 2007
#1610 ·
I’m pretty new here, just joined recently, and I’ve been scrolling through almost all the pages. Honestly, looking at everyone else dealing with psoriasis and seeing how much everyone is struggling, I don't really have much to complain about. I see Michael Ramos3 isn't actually a patient himself, but more like a middleman handling sales. I mean, I don't have anything against him doing his thing.
I noticed a few members have used that specific supplement of his, so maybe it would be helpful if, after a few months, they could share how they're doing? It would be great if people could post photos in the next few days so we can actually see if this stuff works. Until then, I guess it's fair to be a little skeptical about what's being written and the actual quality of the product.
I see you're complaining that the community is inactive, so maybe you should try reaching out to the people you sold the supplement to? If we see some good results, I think the forum would come back to life pretty quickly.
I don't think sending photos should be an issue; people can always protect their privacy by making sure their faces aren't in the shot.
Talk soon.
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1611 ·
Hey there.

There’s already been plenty of back-and-forth about the photography issue. Look, I’m not trying to pull any strings or dictate anyone else's choices. Everyone should just follow their own gut and conscience.
My take? Any ten-year-old with an internet connection can download any image they want and edit it to fit whatever narrative they're pushing. With modern photo manipulation, we wouldn't stand a chance at spotting the intent behind it.
Plus, experience tells me that even if the photos actually got released, a huge chunk of people would still be nitpicking and looking for reasons to be suspicious.

Bottom line: It's unlikely those photos will ever see the light of day—at least not on a large scale. That leaves you to make a call based on other factors, or maybe find a way to get the forum members to step up, take their own shots, and show you themselves. If they did that, would it change your mind?

With faith in God

Best,
amberbear87 amberbear87 Newcomer
5 messages
joined Nov 2007
#1612 ·
Good afternoon, everyone,

First off, I want to say that this forum is wonderful—both as a source of information and as a community for support.

I don't personally have psoriasis, but my best friend does. Since she doesn't have reliable internet access, I’ve been doing some desperate late-night surfing to find anything at all that might help her, which is how I stumbled upon you all. The information I've found here has been incredibly helpful, though I admit I haven't had the chance to read through everything yet.
My initial goal was to find a specific medication, an ointment, or perhaps some kind of breakthrough treatment, but I’ve honestly felt quite lost in the sea of options—from traditional pharmaceuticals to the various alternative remedies mentioned here and on other sites. My friend eventually decided to start by changing her diet to see if that yields any results. Because of that, I wanted to reach out and ask: am I giving her bad advice?
To give you a little background on her history:
Her symptoms first appeared when she was around 30 years old. She isn't sure if there's a family history of this condition, but she can't rule it out either. It might be worth mentioning that the psoriasis flared up right around the time she gained some weight. I'm not sure if there's a direct correlation there.
After a while, it actually cleared up on its own. At the beginning, it wasn't even particularly severe; it was mostly just localized around her elbows.
Then, about ten years later (I'm not entirely certain of the exact timing), she had her baby. It was a very difficult pregnancy followed by a rough delivery—she had a C-section and then dealt with sepsis afterward—and she says that following those complications, the psoriasis began to gradually return. I wasn't living in the same city as her back then, so I don't know all the fine details.
However, it has never been as bad as it is right now. It used to be that being near the ocean really helped her, but she bought a condo this year and hasn't had the opportunity to get to the coast. Since the beginning of the summer, things have taken a turn for the worse. I saw her arms and legs recently, and I was truly shocked. It isn't just her limbs anymore; it has spread to her scalp and parts of her torso. She’s quite self-conscious about it and hates even discussing it. I’ve been trying to push her to take action—even if she can't cure it, I just want her to stop it from spreading further. I try to talk to her about it as if it were nothing more than a mosquito bite, hoping she might eventually accept it as a normal thing to manage. To make matters worse, she's recently started getting red spots on her face.
So, starting today, she is going to change her diet (or at least, that's the promise). She's cutting out "forbidden" foods: cookies, chips, sour foods, and Coca-Cola. She plans to limit her coffee to just one cup in the morning and will instead focus on fish oil, fresh fish, vegetables, apples, and plenty of water. From reading your posts, I’ve gathered that much of this revolves around Vitamin D, so I was wondering if something like a Vitamin D supplement might provide some relief.
I would most sincerely appreciate your advice: is this the right way to go about it, or should she jump straight into medical treatments before her condition worsens even further? It feels like such a difficult decision, especially since reading through your various experiences, I've realized that a medication that works wonders for one person might actually make things worse for someone else.
Thank you all in advance.
amberbear87 amberbear87 Newcomer
5 messages
joined Nov 2007
#1613 ·
crimsonranger54 said:I’m relatively new here—I just joined recently—but I’ve already made my way through almost every single page of this forum. Based on what I’ve read, I have a pretty solid grasp of the different types of psoriasis our members are dealing with and just how much their bodies are being affected. I don't have anything against anyone personally. However, looking at Mr. Izlijeceni, it seems to me he isn't a patient himself, but rather a middleman focused on sales. Now, don't get me wrong, I have no issue with someone running a business or peddling products.
That said, I’ve noticed several members claiming to have used his specific preparation. It would be highly prudent if, after a few months of use, those individuals shared their current progress—ideally by posting photos in the coming days—so we can actually evaluate the quality of this product. Until they provide that visual evidence, I reserve the right to remain skeptical about both the claims being made and the actual efficacy of the treatment.
I see you’re frustrated by the lack of activity from the community, so why not take the initiative? Reach out to the people you sold the product to and nudge them to post. If we see genuine, positive results, this forum will come back to life instantly.
In my view, sharing photos shouldn't be an issue; one can easily protect their privacy by cropping out their face.
Talk soon.

Since I’ve managed to digest over 30 pages of this forum in just about a day and a half, I might actually have a clearer perspective than some of the long-term members here. This is strictly my personal opinion, but I am almost certain that all these patients of Mr. Izlecen are actually just his own aliases. I’ve reached this conclusion based on the general vibe of the posts and, more importantly, certain subtle patterns in the writing. So, I’ll ask him directly right at the start: please don't waste your breath trying to push your "miracle cure" on me.
Now, look, Big Pharma certainly makes a fortune off medications, but those drugs undergo years of rigorous clinical trials and testing before they ever hit the shelves, and they have to clear countless FDA commissions before getting approved. I’m talking about serious, prescription-strength medicine. (Unlike the Wild West approach you sometimes see where you can buy anything if you have the cash—though even having money doesn't guarantee you won't end up with some low-grade junk imported from overseas). The only "references" we get from these amateur herbalists or old-wives-tale practitioners are things like, "Oh, a guy I know—my cousin's neighbor's brother—was cured overnight after doctors gave up on him!" (As if a close relative would make up such a story!)
The one point where I actually agree with Izlecen is regarding the photos... without them, there is absolutely no guarantee of anything.
I might be wrong, but I have my doubts, and that's just what eleven years of lurking on various internet forums and message boards has taught me.
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1614 ·
rapidpanther41 said:The last thing I used that actually worked wonders is this Dove hand cream—it’s the Neutrogena version I picked up at Walmart. It was only $2.75 for the 125ml tube. It’s packed with beeswax, Vitamin E, and olive oil. Plus, the Nivea in there really soothes the skin, and since it's PEG-free and dermatologically tested, I feel safe using it. Honestly, I use it everywhere on my body where my psoriasis flares up.

Hey there!

So sorry for the radio silence! I know you've been posting and backing me up, and I really appreciate it. I wanted to reach out and explain why I haven't replied sooner, and I hope you understand.
The main issue was that I just couldn't find those specific creams you mentioned locally. I really wanted to switch up my treatment plan, but getting my hands on them was proving impossible here.
Luckily, a friend of mine who travels to the US pretty often managed to grab them for me! They should arrive in a few days, and then I'm officially starting your regimen. I'll keep you posted on how it goes and what kind of results I see—I'll hit you up via PM or just post here. I'll stay in touch!

Best regards!
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1615 ·
Michael Ramos3 said:Morning!

Since we’re on the subject, Octa still hasn't dropped any official or final word regarding that messy, confusing situation from yesterday.
I'm going to try giving them a ring on my cell.

God willing,

You mentioned you'd try calling Octa on their mobile—what's the plan?😕
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1616 ·
amberbear87 said:Since I've read over 30 pages of this forum in just a day and a half, I might have a slightly better overview than the long-time members here. This is just my personal take, but I'm pretty convinced all these patients Michael Ramos3 talks about are actually just his aliases. I figured that out from the general vibe and, more importantly, certain little details. So, right off the bat, I’d ask him not to waste his time typing away or trying to push his miracle cure on me.
Big Pharma makes money off drugs, sure, but those things require years of research and testing before they hit the market, and they have to clear a hundred different commissions just to get approved. I'm talking about serious medications that require a prescription. (Not like here, where you can buy anything if you've got the cash, though having cash doesn't guarantee you won't end up with some cheap Chinese sh*t). The only references you get are from illiterate herbalists and old wives: "Oh, some guy—my second cousin's uncle's neighbor, a true story, why would family lie?—he was cured overnight after doctors gave up on him."
The only thing I agree with Michael Ramos3 on is the stuff about photos... that really isn't any kind of guarantee.
Maybe I'm wrong, but I highly doubt it. Just speaks from my experience of nearly 11 years lurking on various internet forums.


I'm really happy for you, having 11 years of experience navigating various internet forums. That's a wonderful and irreplaceable life skill that probably helps you out a lot in daily life. It's nice of you to try and help a friend through her suffering.

It's also nice that you saved me the trouble of wondering if you were bored. Thanks a lot.

If you could clarify the situation and the dynamics of this forum a bit more, since you claim to have a better overview than those of us who have been here longer. It would be great if you shared that expertise so we could also gain the "power" to recognize an "alias." Maybe you're someone's alias right now, maybe mine, or maybe there are more on this forum. That would be both nice and useful from you.

I think you went a little (but only a little) too far in your OTHER post on this forum by accusing someone of "pushing" something on someone else. But it's not that big of a deal.

You insulted the people on this forum a bit (who are herbalists, since they make preparations from herbs and use them) by calling them illiterate and random, when they are actually veteran members of this community.

It's also nice how much trust you place in pharmaceutical products that are verified and heavily certified. You can pass your compliments directly to them via their official websites (you have plenty of experience with that, as you mentioned).

I'm just worried about one thing (again, just my personal opinion, but I'm almost certain because I have some life experience dealing with people, especially sick people): I'm afraid that with an attitude like yours, you won't be of much help to your friend.

So, I suggest you just print out all 69 humble pages of this forum for her, hand them over personally, and let her draw her own conclusions based on her own experience and intuition. 👍

Best regards to everyone.

With faith in God
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1617 ·
Robert Clark2 said:You mentioned you were going to try calling Octa on their cell, what happened😕

Octa and his family are doing fine. He travels a lot and is always tied up with work. His psoriasis is mostly under control now, just a little bit acting up on his elbows.

best regards
goldenscout6 goldenscout6 Newcomer
1 message
joined Nov 2007
#1618 ·
Hey everyone 🙂

So, I’ve been dealing with these tiny little pits on my nails for quite a while now—probably somewhere in the five to eight-year range. They look almost like someone took a needle to them. It’s got me wondering: could this actually be linked to psoriasis?
Aside from those little indentations, my nails seem fine, and there isn't any weirdness with my skin around the cuticles or anything.

On the flip side, I’ve been battling seborrheic dermatitis for years. It’s spread across my face—mostly my nose, the area around it, part of my chin, and my eyebrows—as well as my hairline. I do manage to keep it under control, though, thanks to some specific shampoos (Selsun Blue and Vichy have been total lifesavers for my oily scalp) and applying a homemade flaxseed mask to my face every single day.

But honestly, these nails are starting to really worry me. Even though nothing has changed drastically over the years, it feels like those little pits might be spreading or covering more surface area lately. Is that just my imagination, or should I be concerned?

I would truly appreciate any advice you all might have 🙂
Thanks in advance for the help 🙂
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1619 ·
amberbear87 said:Just my two cents here, but I’m pretty convinced all those patients Michael Ramos3 keeps talking about are actually just his different personas!

As far as a moderator can check, no, they can't
but hey, moderators can't verify everything (thank God for that, I don't need more stress!), so if his "miracle cure" is a sham,
well, that's on him!

Anyway, let's move on from the topic of miracle cures 🙂
amberbear87 amberbear87 Newcomer
5 messages
joined Nov 2007
#1620 ·
jadesailor14 said:How much access does a moderator actually have? I mean, honestly, where do they draw the line when it comes to checking things?
No moderator can actually verify this—thank God, because that’s the last thing I need right now! Seriously, what even is that guy's "miracle cure" supposed to be?
That really speaks to his soul.

And that’s it—we are officially moving on from the topic of my acne. 🙂

With all due respect to you, jadesailor14, I’m just not sure how a moderator can truly verify anything other than an IP address—and even that isn't foolproof. Between proxies and VPNs, there are so many ways to mask one's digital footprint. It’s like trying to identify someone through a heavy fog; you might see a silhouette, but you can't be certain who is actually standing there.

Look, let’s get one thing straight: I didn't come here to pick fights or engage in some endless back-and-forth debate. My goal is simple—I want to learn about psoriasis. I came looking for genuine advice and real-world experiences that might actually help. The only reason I left that previous comment was out of pure frustration. It honestly makes my blood boil when I see people trying to turn someone else's genuine suffering into a way to profit or make a point. I realize that when you're feeling backed into a corner by a condition like this, it’s hard to stay objective. You find yourself grasping at anything for relief—sometimes you're reaching for a lifeline, and sometimes you're just grabbing at straws. At any rate, I have no intention of engaging with that gentleman further or responding to any more of his posts. I'm here for information, not drama.

With faith in all those who act with good intentions and true integrity. 😉

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