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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 84 views · 2.3K replies

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Participants mistybear4rustymoose54nimbledriver81Kenneth Hernandez67Hannah Davis18Nicole JamesJeremy Flores10Matthew Scott2Casey Palmer5dustybison15Amy Fox97Anthony Rodriguez58Frank Alvarez8northernfalcon30Jerry Moore2electrictinker18wanderingowl7mistyhound2Tyler Sanchez3amberjackal14swiftsailor82casualnomad42Henry Newman9Zachary Ortiz …
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1621 ·
amberbear87 said:I only posted that comment because it drives me absolutely crazy when people try to profit off someone else's struggles,

I totally get that, and I’m right there with you on that sentiment!

But honestly, looking through these 1,700+ posts, there’s actually a ton of helpful advice, medication suggestions, and different therapies mentioned...
I really think it's worth a read!
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1622 ·
It’s great that you two finally got on the same page regarding how things should be handled.

I think most people here expect a different response from moderators when someone drops a malicious post meant to insult individuals or entire groups of members.
Instead, we just get sympathy for the person being abusive.

Just my personal take again: this forum doesn't belong to jadesailor14. She's just the moderator tasked with keeping this place at a certain standard.

Best regards
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1623 ·
Michael Ramos3 said:I’m just going to state my opinion again—this forum isn't owned by "jadesailor14." She’s just here as a moderator to make sure everything stays running smoothly at the right level.

Best regards,

Oh, please!😲
It’s definitely not mine😕
🤣

I think we all know perfectly well who actually owns this 😉
. You don't need to go dropping those "truth bombs" on us now!

And if I'm wrong, then you've got me there.
I should have just wiped out all those "ointment" posts entirely, 😬
but I've kept them up for the reasons I've mentioned a few times already, so everyone can decide for themselves.

👋To you,

But anyway, let's get back to the fun stuff! 🙂
amberbear87 amberbear87 Newcomer
5 messages
joined Nov 2007
#1624 ·
jadesailor14 said:Well, within those 1,700-odd posts, there’s a whole spectrum of advice, medications, and various therapies floating around...
I truly believe it's worth reading through them.

Of course, that’s exactly why I decided to join this forum in the first place.

Even if I had spent a day and half the night digging through, say, half of those 1,700 posts, and then called my friend the next morning, I probably could have only told her two things—one bad and one good. Since she insisted on hearing the bad news first, I told her straight up: there is no magic cure. But the good news? She isn't going to die.
What I actually did was grab a notepad and start jotting down the names of any medications people were raving about. Every time I found a "happy" success story, I'd add it to the list, but after just a few more posts, I’d see someone else describing how that exact same product made their condition much worse... and I’d cross it right off.

By the next morning, I had this lengthy list, and almost all of it was crossed out. The only thing left standing was Dovonex, but you can't even find that anywhere in NYC.

That’s ultimately why we reached the conclusion that her first move should be adjusting her diet. She does use Synoderm occasionally based on an old doctor's recommendation, but honestly, it hasn't done much for her.

As for stress, there's no easy fix there; her family situation is just heavy—she’s dealing with an elderly, nearly immobile mother and a very hyperactive child, if you know what I mean.

And as for those specialized fish treatments? There's just no money for that. I mean, if it were a permanent solution, I'd happily shell out $1,000, but she simply cannot afford a massive expense like that every few years. Very few people in this country can swing that kind of cash.

So, for now, we'll see if she can stick to taking fish oil, eating plenty of fish and lean protein, fruits, and veggies (minus anything citrus), and cutting out the cookies, white bread, junk food, and Coca-Cola. She'll limit coffee to the mornings and since she doesn't drink alcohol anyway, we'll just have to wait and see how it goes...
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1625 ·
amberbear87 said:I actually started keeping a notebook to jot down every medication people raved about! I was so excited, but after a few posts, I noticed someone else saying the exact same thing made their condition way worse... so I had to cross it out. By the next morning, my long list was basically just a bunch of scribbles and strikeouts...

That’s honestly how it works with so many different health issues—there really isn't a "one size fits all" cure for everything.
Sometimes you just have to trial and error your way through a ton of different options!

amberbear87 said:One thing left on my list was Dovonex, but I can't find it anywhere here in NYC.
...

If I recall correctly, it goes by another name too.
Can't you guys order it from somewhere else or have someone pick it up for you?
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1626 ·
👋 to you too, I'm honestly 👋

jadesailor14, you're being a total 🙂
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1627 ·
Michael Ramos3 said:👋

Seriously, you try to do someone a massive favor by helping them out with some free marketing
and they just tell you to get lost! 🙄
So much for being helpful!
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1628 ·
jadesailor14 said:So you basically do someone a massive favor by promoting them
and they just give you the middle finger in return. 🙄
Great. Just great.

pardon, either I missed something or I totally misread the situation. That little green guy waving hello (since I couldn't find your little yellow guy with legs waving back).
I don't bother learning what the emoticons are called, I just look at them.
My bad if I messed up and offended anyone.
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1629 ·
👋 This one is called "double W." I honestly don't get it.

Or maybe like this: just wanted to say hi to everyone, feeling pretty good. jadesailor14, you're an absolute angel.

Just a quick hello to everyone.
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#1630 ·
goldenscout6 said:Hey everyone 🙂

For years now—probably like 5 to 8 years—I've had these little pits on my nails, almost like I poked them with tiny needles. I'm wondering if there's any link to psoriasis.
Other than that, nothing else is changing with my nails, skin around them, or cuticles.

On the flip side, I've been struggling for ages with seborrheic dermatitis on my face (nose, sides of the nose, part of my chin, eyebrows) and my ears. I keep it under control using shampoo (Selsun Blue and Vichy were huge lifesavers for my oily skin) and applying a flaxseed mask to my face daily.

But honestly, the nail thing is really starting to freak me out, even though it's been the same for years, except maybe the little pits have spread a bit more across the surface.

Any advice is welcome 🙂
Thanks in advance 🙂

You really need to have a dermatologist take a look at those nail pits, preferably a solid one. There's no way to guess what it is online. It's a little weird you haven't asked a doctor about this over the last 5-8 years. When it comes to diagnoses, it's always smart to get a second opinion from another dermatologist. At least your fingers get some decent airflow. 😁
best regards, let us know how it goes 🙂
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1631 ·
amberbear87 said:Exactly, that’s why I joined this forum in the first place.

Even after staying up half the night reading through, say, 850 posts, I could only tell my friend two things the next morning—one bad thing and one good thing. Since she wanted the bad news first, I told her there is no cure, but the good news is she isn't going to die.
I actually started taking notes, writing down every medication people raved about. But then, after a few more posts, I'd see someone else whose condition got worse using that exact same thing... so I'd cross it off.

By morning, I had a decent list, and it was all crossed out. The only one left was Dovonex, but you can't even find that anywhere in Los Angeles.

That's why we decided to try changing her diet first. She uses Synoderm sometimes because her doctor suggested it once, but it hasn't really done much.

As for the stress, there's nothing we can do about that. Her family situation is just tough—she's dealing with an elderly mother who's nearly immobile and a hyperactive kid, if you know what I mean.

Fish oil is too expensive. I mean, sure, if it were a permanent fix, we could scrape together $1,000, but she honestly can't afford that kind of money every few years. Hardly anyone in this country can.

So, she'll stick to fish oil, eat plenty of fish and lean meat, fruits, and veggies (except citrus), and cut out cookies, white bread, junk food, and Coca-Cola. Coffee only in the morning, and she doesn't drink alcohol anyway, so let's see how it goes...


Dovonex or Psorcutan
Regarding that medication, I had a pretty severe allergic reaction to it.
Since you're already crossing medications off the list, you might as well add that one too.
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1632 ·
amberbear87 said:Exactly, that’s why I joined this forum in the first place.

Even after pulling an all-nighter reading through, say, half of 1,700 posts, all I could tell my friend the next morning was two things—one bad, one good. Since she wanted the bad news first, I told her there’s no cure. The good news? She isn't going to die.
I actually sat down with a notepad and started listing medications that people were praising, all the "happy" stories. But then, a few posts later, I'd see someone else whose condition worsened on that exact same thing... so I'd cross it off.

...

I think you lied to her about both. Saying there’s no cure is just your take on things. Either you didn't read everything carefully, or you misunderstood something.
As for the second thing you told her, I have no comment unless you meant she won't die from psoriasis (meaning the disease doesn't end in death, as specialists say). If that’s what you meant, you used too extreme a word just to comfort her a little. In my opinion, anyway.

On what basis did you decide that because a product helped one person but made another worse, it would definitely fail your friend, leading you to permanently cross it off your list? Are you consciously taking responsibility for your advice to her? What if that specific product is the one that actually works for her? You can never know for sure.
That kind of thinking isn't going to help anyone.

Best,
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1633 ·
EkatarinaVelika;11508945 said:Hey everyone 🙂

For quite a while now—maybe 5 to 8 years—I've had these tiny little dots on my nails. It looks like someone poked them with needles. I’m wondering if this could be linked to psoriasis.
Aside from that, I don't see any other changes on my nails, the skin around them, or my cuticles.

The nail situation is really starting to worry me. Even though things haven't changed much over the years, those little spots seem to be spreading and covering more area.

🥳
It definitely can be related to psoriasis. There's actually a specific type calledPsoriasis unguium that shows up pretty often. With that, the nail ends up looking kind of like a thimble.
You might also see stuff like brittleness, roughness, ridges, or even yellowish spots under the nail.

That's basically what I know, though maybe some other folks here can give you a more detailed breakdown.

Either way, it's probably best to go see a dermatologist. They can give you a real diagnosis and figure out the right treatment plan for you.

Take care!
crimsonranger54 crimsonranger54 Newcomer
5 messages
joined Nov 2007
#1634 ·
Michael Ramos3 said:👋 to you too, and I was actually just 👋

Poli, you really are a true 🙂

😕 I guess I'm wondering if you aren't actually fully recovered yet, or maybe you're just feeling a bit discouraged because sales for that ointment are low, especially when you're talking to a lady like that.🙂
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1635 ·
I really appreciate you guys taking my issues seriously and actually engaging with them.

I just don't get what your issue is here.

And frankly, I'm worried you don't see it either.

Best,
amberbear87 amberbear87 Newcomer
5 messages
joined Nov 2007
#1636 ·
Maria Chavez55 said:Dovonex or Psorcutan
Regarding that specific medication, I actually experienced a pretty severe allergic reaction from it.
Since you're already looking into cross-referencing different treatments, you might as well toss this one onto your list.

Thnx Zuko... We've actually already placed the order. So, my best advice would be to have her test it on just a tiny patch of skin first to see if a reaction triggers. Honestly, I was browsing dovonex.com and noticed they list that exact side effect right at the top of their warning list.

Around here, the Calcipotriol—which is just the generic name for the drug—is only manufactured in capsule form. I can't recall the specific brand name of those capsules off the top of my head; I left all my paperwork back at home. Has anyone else here ever taken them?
Donna Sullivan7 Donna Sullivan7 Active Member
112 messages
joined Aug 2007
#1637 ·
so, what actually triggers psoriasis... is it just stress or is there more to it?
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#1638 ·
Steven Ross74 said:What are all the actual triggers for psoriasis, from stress to whatever else?

Stress doesn't cause psoriasis. If it did, like 70% of Americans would be dealing with it—probably mostly politicians these days. 😁 We've covered this enough on this thread already, so you're better off just scrolling back through the archives. Everyone's got their own theory, and I'm not trying to play expert here.
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1639 ·
Steven Ross74 said:What actually triggers psoriasis? Is it just stress, or is there more to it?

Nobody knows the exact cause for sure. Most experts say it’s usually tied to genetics, though I don't have anyone in my family who dealt with it. Triggers can be anything from certain bacterial infections—like strep—to issues with your liver, stomach, or even dental health. Diet, pregnancy, menopause, surgeries, or certain medications can all set it off. For me, it started during my pregnancy.
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1640 ·
Michael Ramos3 said:I really appreciate you all listening and actually giving a damn about what I'm going through.

The thing is, I just can't wrap my head around what your actual issue is here.

And honestly? I'm pretty sure you don't get it either.

Best,

Look, I have absolutely no clue what you're getting at—why are you stressing out so much if they just don't want your "magic potion" help? Just move on and live your life, maybe they'll change their minds down the road.☕

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