Posts by melloworca6

So you dug up a five-year-old thread just to post this nonsense. 🙄

Aha, everything clicks now. Thanks for clearing that up. 🙂

swiftbear86 said:Wrong. You don't need a prescription for it!
Also wrong. It's on the Medicare list!

www.medicare.gov

It's right there in the drug database under Pentilin.

You can pick it up with a private doctor's prescription, $14 specifically for the 20 tabs/400 mg pack.

If a medication isn't on the Medicare list, it just means it hasn't been cleared for distribution here in the States, so pharmacies can't legally stock it. There are exceptions for importing via a private prescription, but that has to go through Medicare approval first. Getting that kind of stuff takes about three weeks!

So does that mean if I see my immunologist and she prescribes that specific therapy, it’s fully covered, or am I still going to be paying out of pocket?

I'm honestly not even sure if I'll ask about it. My blood pressure is already low, and I'm terrified of taking anything that might tank it further. I just want to know what my options are.

Hannah James76 said:My dad is gone 🙂

I'm sorry. 😢

🙂

😲

Yeah, I remember hearing about some medication for Raynaud's—can't recall the name right now—and I really wanted to get my hands on it. But then I read somewhere that people with low blood pressure shouldn't touch it because it can drop your pressure quite a bit. Since my blood pressure is already bottomed out, I wasn't about to go playing chemist with myself.

Plus, dealing with thyroid issues means I get tachycardia, too, so I'm not sure how smart it would be to mess around with drugs like that. Then again, this Raynaud's syndrome is driving me absolutely insane. I need to do something, even if it kills me, because it’s becoming unbearable. Every winter it just gets worse. Last year, everything started flaring up along with all the usual crap, plus these stabbing headaches at the base of my skull whenever I'm out in the cold. They don't let up until I finally warm back up. 😢

It doesn't matter, just let me know if this stuff actually works. 🙂 I'm crossing my fingers that it helps ease the symptoms. 🙂

For me, it would be a huge deal just to stop my fingers from turning white and flooding with blood the second I step out into the cold. Right now, it’s a total disaster after only five minutes.

So, we're talking $50 a month. Honestly, maybe it’s cheaper to just grab it across the border in Mexico or Canada.

I might actually look into that. It would be nice to skip the whole runaround with my GP just to get a prescription, especially since prices over there can be half what we pay here. But then again, you can't just walk into a pharmacy and expect them to hand it over without a doctor's note.

As for Ginkgo, I've tried it and felt absolutely nothing. For me, it was a total wash. Seriously though, let me know if this stuff actually works for you. If it does, I'll bug my immunologist about it and maybe give it a shot myself.

I'm definitely not just going to start playing doctor with myself. I'm going to check in with my immunologist first to see what they think. I really hope there's something that actually helps, because this situation is getting ridiculous. Every single winter, things just seem to get worse and worse. 😢

So, who’s actually prescribing this stuff? And does anyone have any idea what the cost looks like?

I did a little digging on it, and apparently, it's used for poor peripheral circulation. Honestly, the side effects don't look too terrifying to me.

So, did anyone actually get a prescription for it, and from whom?

I deal with Raynaud's myself, so this is right up my alley. Honestly, nobody's been able to treat it for me yet.

The link worked for me. 🤷 I just copied that link from above into the topic list, so it should be up and running now.

There’s plenty to talk about right here: voluntary blood donation. 😉

Maybe try asking some moms-to-be about what bleeding during pregnancy actually looks like; they’ll probably give you a much better answer than I can.

My own gut logic suggests that with a period, you're dealing with the uterine lining shedding, whereas with pregnancy bleeding, there's no shedding happening—it's just straight-up fresh blood (though I could be totally wrong on that one), so maybe that's how you tell them apart. 🤷 Honestly, I have no clue. I just hope someone with actual medical expertise gets back to you.

Lisa Carter, you can hook up with one guy just once in your life and still walk away with all sorts of diseases, while someone who’s out there having a wild time might stay perfectly clean. There aren't any rules to it. Plus, condoms aren't a 100% guarantee, especially when it comes to stuff like this. 😉

I’m running into the exact same thing. If I’m not logged in, everything defaults back to some outdated timestamp, but once I sign in, it all fixes itself. 🤷

Google says it's clean. 🤷 I'm sure some expert will pop up here soon enough to explain whatever it is you're looking for.