dancer_girl said:For the past year, I’ve been dealing with constant back pain paired with a persistent low-grade fever—it stays hovering right around 98.6°F, rarely dipping or spiking.
After dealing with non-stop pain and a fever that spiked to 104, I ended up in the ER only to find out I have a kidney infection. So, yeah... there we go. It’s official now.
I was still dealing with those pains and running a fever, thinking it was my kidneys acting up again.
But look, five months ago, they told me the cyst was clear—I’d actually ended up in the ER because I was dealing with heavy, painful bleeding roughly every two weeks.
I was constantly going back for scans, and it was always one thing or another—one moment the left side looked clear, then suddenly the right side was flagged. One day the mass would be larger, the next it would seem smaller. It was just a constant, frustrating cycle of shifting measurements.
So, basically, my ovaries have been killing me constantly, which is why I headed back in for another checkup...
The inflammation was intense. I figured if I just used some Vagisil, the whole thing would be sorted, but I clearly underestimated how bad it actually was.
After my transvaginal ultrasound, the gynecologist told me they found a hyper-echoic, oval formation about 2 cm in size on my left ovary—specifically a Dermoid.
There’s also a 3 cm CA-125 tumor formation on the right side.
He told me to get my CA-125 checked first thing tomorrow morning. Now I’m just sitting here waiting on the results, and he wants me to call him the second they come in.
He told me it doesn't look good... but he said I need to wait for the results.
I did a little digging online, and from what I can gather, a dermoid is classified as a tumor.
My doctor wouldn't say a damn thing to me because he was clearly terrified of how I’d react. Honestly, while he was trying to break the news, he could barely even get his words out.
I tried telling him that I honestly couldn't care less what he has to say about it.
Look, he didn't actually say anything concrete; he was just circling around the point.
And now, I’m just sitting here waiting on the results.
I’m actually wondering if this could actually be a tumor—like, can you really tell what's going on just by looking at the CA-125 marker? Is that enough to know for sure?
If anyone actually knows what’s going on, I’d really appreciate some insight. To give you some context, I’ve been through the absolute wringer—multiple surgeries without anesthesia, fighting off sepsis, and being put on a ventilator twice. I've been right on the edge of death more than once. Because of all that, I’m not going to lose my cool or take things personally, no matter how bad the news is. I just want the truth.
So, I'm 20 years old.
I guess I went a bit overboard there... hopefully you guys don't mind the wall of text. 🙂
Thanks a million. 👍
Don't go thinking CA-125 levels are some kind of foolproof diagnostic tool when you're dealing with women of childbearing age. It’s honestly misleading half the time. You can see these massive spikes in the numbers that would make anyone panic, but they don't necessarily point to something malignant. Take endometriosis, for example—it can cause significant cellular changes and growths that send CA-125 levels through the roof, yet there isn't a single cancerous tumor in sight. Context matters.
Look, I’m no doctor, but I’ve dealt with my fair share of ovarian issues and spent way too much time digging through the research. To be blunt, I have this nagging feeling that you're looking at two separate things that, when lumped together, look like some massive red flag—but in reality, they aren't actually indicative of anything sinister.
Those kidney infections you're dealing with could very well be triggered by Escherichia coli. It’s a nasty little thing that’s notoriously difficult to shake once it takes hold. While it plays its part perfectly fine in your digestive tract, things go south fast if it wanders into your urinary system or reproductive tract. If it migrates there, it can cause sepsis within those organs, which is no joke. To rule this out as the culprit, all you really need is a urine culture. Just head to your primary care physician and ask for a referral. In the morning, catch your first urine sample in a sterile cup—you can pick one up at any local CVS or Walgreens—and drop it off at the lab for testing.
Another thing you might be dealing with is chocolate cysts, which could very well be popping up because of those constant bouts of inflammation you've been fighting.
Have you had any swabs done, a Pap smear, or anything like that?
Look, if you want an actual diagnosis, you can't just sit there waiting for one answer. You have to hunt for the cause in multiple places. Too often, doctors just stop looking too early—honestly, that’s exactly what happened with my own case. You simply have to go out and seek second, third, even fourth opinions. Don't just take one person's word for it; go ask around.
Have you had a color Doppler ultrasound done yet?
Honestly, my take is that you need to push for a referral to see a specialist at a major hospital. I’d highly recommend heading over to Mayo Clinic and seeking out Dr. Miller. Just show up there with your referral and all your previous test results and ask him to take a look. If he can't fit you in, any of his colleagues will be just as capable; they are all top-tier experts.
I suspect your primary doctor hasn't given you much info because, frankly, they probably don't know. Most gynecological diagnoses aren't 100% certain until they perform a laparoscopic exam right before the actual surgery.
You’ll likely need some kind of procedure, but right now, the priority is clearing up that infection you've been dealing with.
As for the Dermoid, it's basically a tumor that grows from skin cells. It frequently has actual hair growing on its surface, and from what I understand, it isn't dangerous.
A user named User2 on an old medical forum—who I believe was a physician—wrote this:
A Dermoid, or dermoid cyst (presumably on the ovary), is a type of hamartoma, which are essentially nature's "glitches." During embryonic development, a cell from the ectoderm—the foundation for epithelial tissues and their derivatives (like skin, hair, sweat glands, sebaceous glands, nails, teeth, and even neural tissue)—gets misplaced and settles on a different organ, most commonly the ovary, where it develops in isolation.
In the vast majority of cases, a Dermoid is benign and won't come back once it's removed. The only thing is that multiple cysts can occur; if they found and removed one, there might be others lurking nearby.
By the way, dermoid cysts also show up on the scalp or face quite often—they look almost identical to an atheroma, but when they are opened, you find more than just sebum inside.
Basically, your little "alien" is a peaceful little pet, a total sweetheart... there is absolutely no reason to be afraid of it.So, go get that specialist referral from your doctor! That is my strongest advice to you!